gavin
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Loads of positive thoughts coming your mums way Sirena for a full and speedy recovery. And positive thoughts heading to your mum as well Marion.
Hugs,
Gavin
Dear Janet,
I am so very sorry indeed to hear of the passing of your husband Pete. Please accept my sincere condolences. I so wish that at times like this there were words that I could say that would help ease the pain that you feel right now. Please know that my thoughts are with you and your family right now.
Hugs,
Gavin
Hi Mandy,
Welcome to the site. Sorry that you had to find us all here and I’m sorry to hear about your husband. But glad that you have joined in with us all as you are so in the best place for support and help and I know that you will get loads of each from everyone here.
Thanks for sharing what has been going on with your husband, you sure have been through so much with everything already. And major GRRRRRR to that onc with that attitude!!! You are so doing the right thing in looking for help for your husband and please do not be put off from doing so with that terrible attitude from that onc. Have you sought second or third opinions as to treatment options?
Keep coming back here Mandy as you are around people who so know what you are going through right now and how you feel. We are here for you and will do our best to help and support you.
My best to you and your husband,
Gavin
Hi Sirena,
Thanks for the update and great to hear from you. And what great news you have to share about your mums surgery! That is great that she was able to have it and my fingers are crossed that it went well and that she makes a speedy recovery!
Yes there are risks with any surgery Sirena, but please stay positive. We are here for you as well and please keep us updated on how things go for your mum.
My best to you and your mum,
Gavin
Hi Tom,
Thanks for posting and the update on how Ben is doing, or King Ben should I say! Laughter is such a good thing and if you can find it in any situation then I say good for you both! My dad used to laugh a lot no matter what was going on and I so know how laughter can help lift everyone’s mood no matter what is going on.
Your onc is so right about Ben being such a fighter and you guys have been through so much with everything. That’s great that he is doing so much better than you thought and I am so hoping that he continues to improve as well. And yes, so agree that getting to grips with the pain is so important.
My best to you and Ben,
Gavin
Thanks for the link Kirsty and I so agree with Lainy, here’s to many, many more such walks for you and your family!
Hugs,
Gavin
Hi Kristy,
That’s excellent news indeed! Fingers are crossed that much good will come from all of your hard work with all of this! I forgot to post this link about SIRT that should be of interest to you.
I was at a conference here in Dundee earlier this year and the link above is the slide presentation from Dr Weir who presented at the conference. Hope it is of use to you.
Hope as well that you are having a calm Saturday and good luck with Brussels on Monday, and please let us know how you get on.
Hugs,
Gavin
Glad to be of help Kirsty!
That’s good that you got a recommendation from Juan Valle to one of his colleagues at the Christie. My thoughts on that would be that if Juan thought it would help to see Dr Hubner then that is something that is def worth considering. Also glad to hear that you are seeking an opinion from Prof Stebbing.
You are so doing the right thing here in seeking as many opinions and options as you can for your husband here and I so hope that you get some good positive answers. And please remember to keep us all updated on everything. You know that we are here for you.
Hugs,
Gavin
NICE guidelines for SIRT for CC in the UK –
Addenbrokes as well Kirsty –
Gavin
Hi Kristy,
Have a look at these links, they might be of use to you.
http://www.england.nhs.uk/2013/11/20/sirt-comm/
http://www.ammf.org.uk/cholangiocarcinoma/specialists/
http://www.christie.nhs.uk/booklets/642.pdf
If it was me Kristy then I would contact the Christie in Manchester and see what they can offer.
Hope that helps.
Hugs,
Gavin
Hi Kirsty,
No personal experiences that I can share with you on this topic as my dad never had this, but I’m sure that others will be along soon that can help with their experiences. In the meantime, a search here on the site for radioembolization throws up these discussion from the members here –
http://www.cholangiocarcinoma.org/punbb/search.php?search_id=1535539018
Hope some of that is helpful Kirsty.
My best to you and your husband,
Gavin