gavin

Hi Catherine,

Real glad to hear that your mum has the boxing gloves on again! Tell her from me to keep on punching and hit that CC with some large haymakers!!

My best to you and your mum,

Gavin

And Jayne, agree with Kirsty that in Juan Valle your sister would be in very good hands with him. As I said before, he is very much experienced with treating patients with CC.

Her also sits on our medical advisory board here at the CCF.

http://cholangiocarcinoma.org/juan-valle/

Best wishes,

Gavin

Very heavy hearts all round Marion.

Good analogy and good advice as well Duke on the whole stats issue. Another way to look at stats Serena is that politicians and economists of both sides of a debate will try and use the same stats to prove their argument and why it is right! If the stats worry you then my advice would be to just not read them!

Best wishes,

Gavin

Thanks for reposting here as well Jayne. I replied to your other thread in the hospital part of the site too. Here is a USA specific link that will be of interest to you and your sister should you wish to pursue treatment options in the USA, my apologies for forgetting to post it earlier. It has lots of contact info in it as well.

http://cholangiocarcinoma.org/for-patients/major-cancer-centers/

As Melinda says, there are a lot of posts here on the site where members have talked about their treatment and where it was done etc.

My best to you and your sister,

Gavin

Hi Jayne,

Thanks for that and for your post in the introductions section too. I am sure that you will get lots of repsonses over there. Very glad to hear that your sister will be seeking a second opinion at the Christie in Manchester and Juan Valle is very experienced as I said. Prof Lodge in Leeds is also very experienced with CC and I forgot to mention him so thanks Marion for that.

There are many options in the USA as I said and I know that you will get more opinions etc from our USA members on that option. Mayo Clinic is very good but there are a lot of good options in the US. The link I gave you from AMMF also has many good hospitals on it as well that are in the UK and I hope you will check some of them out.

Please let us know what they say at the meeting on Tuesday at Bradford and also what they say at the Christie also. Thanks as well for asking about my dad. My dad passed away back in 2009 but please do not feel bad at all for asking. I should have mentioned that in my earlier post to you when I mentioned him.

How is your sister doing today?

My best to you both,

Gavin

Marion, I was meaning the video of the web conversation on the 29th, will that be going online as I can’t see it from the link on the LL Notebook. Maybe I need glasses though and just can’t see it!!

Hugs,

Gavin

Hi Serena,

Thanks for that. Fried chicken wings, yum! I would def take that your mum asking for those is a very good sign that her recovery at home is going well! Appetite seems good to me!!

Yes getting a second opinion is a good thing, or even a third one or more as well if she wanted to. I hear what you are saying about not putting pressure on your mum to do treatment or not. I did the same with my dad. I said to him that I would support him all the way no matter what he wanted to do about treatment and said to him that he should do what he wanted to do or not do. It is indeed a very personal decision and I would say that the decision someone makes about treatment or not has to be right for them and them alone. Just my thoughts on this.

Please try not o think too much about the stats as they are just that, stats. And many of them are very old and out of date anyway. My advice to you about stats and all of that, if they discourage you then just don’t read them!

Hope that your mum continues to improve and remember that we are here for you and we care.

Hugs,

Gavin