gavin
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Thanks for posting this Marion. Lets hope that it does indeed shorten the time for enrollment in trials.
Hi Tom,
Sorry to hear this latest news about Ben. Grrrrrr to fluid on the lungs! Hoping that Ben’s med team can get to the root cause of this issue and do something about the cause of it and not just drain it away. Good idea contacting MD Anderson for their thoughts on this and please let us know how you get on with that.
Glad that you were at least able to enjoy some of your trip and my fingers are crossed for Ben.
My best to you both,
Gavin
Hi Maria,
Welcome to the site. Sorry that you had to find us all here and I’m sorry to hear about your mum. But I am glad that you’ve joined in with us all as you’re in the best place for support and help and you will get loads of each from everyone here.
I’m with Lainy on never having heard of a hospital refusing t help someone for their bili levels being too high. That seems very strange to me to say the least. I hope that others from your area will be along soon with some other suggestion to treatment facilities that are close to your mum. I can’t really help with that as I am from Scotland.
I do hope that the radiation treatment that your mum is away to start works well for her and does indeed lead to her being able to start the chemo afterwards. My fingers are crossed for your mum with her treatment and please let us know how things go. If you have any questions please feel free to ask and we’ll do our best to help if we can. Please know as well that we are here for you and we care.
My best to you and your mum,
Gavin
Val,
I so agree with Lainy that taking everything one day at a time is the right thing to do. I did that too when I lost my dad and I know that things are tough for you right now. Please know as well that we are all here for you too.
Hugs,
Gavin
Nonoknife Technology from a pancreatic cancer site in the UK –
Princess Grace Hosp in the UK –
http://www.theprincessgracehospital.com/hospital-services/services/nanoknife/
Trial in Italy for Nanoknife –
Pilot Study of Irreversible Electroporation (IRE) to Treat Metastatic Liver Cancer & Cholangiocarcinoma
Gavin
Hi Gros,
Welcome to the site. Sorry that you had to find us all here and I’m sorry to hear about your mum, but glad that you’ve joined us all here as you’re in the best place for support and help and you’ll get a ton of each from everyone here.
Thanks for sharing what your mum has been through and yes, your mum is the first person that I have heard of in the UK having nanoknife. That and similar treatments are far more common in the USA than they are here in the UK. I am from Scotland and there is no where to get that done up here. Glad to hear that the professor was happy that it went well and I will be keeping my fingers crossed for your mum.
Please let us know how things go with everything and know as well that we are all here for you. If we can help we will, all you have to do is ask and we’ll do our best for you. Hope that you keep coming back here, you are not alone in this.
My best to you and your mum,
Gavin
Hi Tom,
You def need a break and I so know what you mean about the guilt thing. Try not to feel too guilty if you can as I know that up till now you have done an amazing job here! And as you say, if need be you can always jump back on the plane again.
My best to you and Ben,
Gavin
Hi Julie,
How great it is to see you post in the section of the site and I’m with Lainy here on doing her yippeeing too!!! You sure have been through so much lately and I so hope that life now will be able to be enjoyed by you with your family!
Hugs,
Gavin
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Dear Val,
I am so very sorry indeed to hear of the passing of your dear dad. Please accept my sincere condolences. Having lost my dad to this cancer as well I so know the pain that you feel right now. I wish I could say some thing that would help ease the pain that you feel. Please know that my thoughst are with you and your family right now.
Hugs,
Gavin
Hi Alison,
Thanks for the update and no apologies are ever needed from you. Glad to hear that things went well at MD and glad also to hear how you got on with Dr Javle. I will keep my fingers crossed for your dads chemo and hope that it goes well and does it’s job. Please let us know how everything goes as well.
My best to you and your dad,
Gavin
You’re most welcome Catherine and I;ll join you and Lainy in doing the Yippee dance and shout!! Great news about your mum, thanks for sharing that with us all!
I hear what you say about your mum and the ticking time bomb etc. My advice would be to wait and see what the onc and the rest of your mums team say and take it from there. More waiting I know, grrr to that as we all know but at lest then you’ll have some more opinions on what can be done etc. And of course, you can keep looking for other possible treatments in the meantime.
I agree with Lainy as well, taking a break from everything, relaxing and enjoying the end of the summer sounds like a plan to me. Hope that you and your mum can enjoy this news and you know as well that we are always here for you too.
Hugs,
Gavin