gavin

Hi Brigitte,

Sorry to hear of this delay to everything. Have been watching everything that has been happening in Houston over here on the news and it looks terrible to say the least. Thoughts are with everyone affected by the flooding. Have you phoned MD or your Onc to see what they are saying about Friday being able to open or not? Very frustrating for you indeed to say the least.

Hugs,

Gavin

Hi Adithya,

I replied to your other posting on the other page.

Thanks,

Gavin

Hi Adithya,

Welcome to the site. I am sorry to hear about your dad and all that you are going through right now and having been there with my dad also I know what you are going through right now. We will help if we can but please know that we are not doctors and can not as such give you medical advice etc. We will help with sharing our knowledge, support and experience etc but can not give specific medical advice as to do this, take this etc would be medical advice.

As far as supplements in general goes, please be very very careful as to what your dad takes. And please do NOT believe all of the claims that are made about something on the internet as so many of them are fake and could be very dangerous. Quercetin which you mention I have no knowledge or experience of but I found this link for you –

https://www.mskcc.org/cancer-care/integrative-medicine/herbs/quercetin

The only reason I post this link is that the source, MSKCC is highly reputable to say the least but once again, please be very wary of any and all internet claims regarding anything really. And please make sure that you discuss this fully with your dads medical team to see what they say or recommend.

Please also take a look around this board here as that may be use to you as well –

http://www.cholangiocarcinoma.org/punbb/viewforum.php?id=23

As to where supplements can be shipped from I have no ideas on that front. Please keep in touch and let us know how things go with your dad.

My best wishes to you and your dad,

Gavin

And thanks for this link as well, loads of info there and a great resource for all.

Gavin

Hi Catherine,

That is great to hear that progress is being made with your mum and the surgeon and the upcoming PET next week also. Fingers, toes and everything else will be crossed for the best possible news here and remember to let us know how it all goes.

And I agree with Melinda, rant was well warranted and welcomed!

Hugs,

Gavin

Hi Kasia,

I did a quick search on HAI for you and came up with these threads –

http://www.cholangiocarcinoma.org/punbb/search.php?search_id=1783282853

If you use the “search forum” function at the top of the page and enter the exact details of what you want to search for, postings, links, studies etc then that way they should be able to be found easily, I hope!

A quick google search also throws up these links –

https://www.google.co.uk/search?q=hepatic+artery+infusion+cholangiocarcinoma&oq=hepatic+artery+infusion+cholangiocarcinoma&aqs=chrome..69i57j0.7536j0j7&sourceid=chrome&ie=UTF-8

I hope that some of that is useful to you and your brother. And please, keep us informed of everything if you can and we will all help as well if we can. A tip, if you see a link or something that you like then please bookmark it on your browser so you don’t lose it. And you can print off a hard copy for reference and to show to your onc or keep etc.

My best to you both,

Gavin

Hi Hopeseeker,

Thanks for that and glad the links were of help. Yes shortness of breath can be one of the side effects of Gemzar along with other ones as well. They can be found here –

http://www.macmillan.org.uk/cancerinformation/cancertreatment/treatmenttypes/chemotherapy/individualdrugs/gemcitabine.aspx

And some more info here as well –

http://www.rxlist.com/gemzar-side-effects-drug-center.htm

Glad to hear that your MIL will be having the chemo changed and hopefully that will help with the side effects, and also kick some CC butt as well! Fingers crossed for that. Please keep us updated on how things go and what the new chemo that she goes onto is.

Molly, hope some of the links are of use to you as well regarding your Gemzar and your coughing. Perhaps this is something that you can pursue with your onc again?

CRUK also list breathlessness as one of the possible side effects also.

http://www.cancerresearchuk.org/about-cancer/cancer-in-general/treatment/cancer-drugs/drugs/gemcitabine/side-effects

Hugs to you both,

Gavin