gavin

Dear Ruali,

I am so very, very sorry indeed to hear of the passing of your dear mother and brother. I so wish that I could say something that would help ease the incredible pain that you and your family must be feeling right now. It is hard enough losing one member of your family but to lose 2 in such a short period of time is beyond belief. Life can be so very cruel sometimes.

Please know that we are here for you and my thoughts are with you and your family right now.

Hugs,

Gavin

Hi Lorraine,

Sorry to hear about the spike in Donnies numbers. Hopefully you will get somewhere and some answers today from Edinburgh about that second opinion and you are right to keep pushing for it. Please let us know how Donnie gets on today and my fingers are crossed for you as well.

My best to you and Donnie,

Gavin

Hi Catherine,

From what I know about ERI and all of the reports that I have heard from it I can tell you that your mum was in very good hands with the surgical team there. Was it Steve Wigmore that was responsible for your mums surgery? I heard him speak at a conference here in Dundee and he is very experienced with all things CC.

There are other options re the chemo and should it be the case when the gem cis is done then it may be a good idea to seek another opinion from Prof Juan Valle. He works out of the Christie in Manchester and has a ton of experience treating CC patients. He has treated a few of our members here and that is something we can look at later if your mum wants to. Let me know if I can help with this should your mum want this. Prof Valle is also the vice chair of our medical advisory board here at the CCF.

http://cholangiocarcinoma.org/juan-valle/

http://www.christie.nhs.uk/about-the-christie/whos-who/our-consultants/juan-valle.aspx

My best wishes to you and your mum,

Gavin

Thanks for these and the other links the last few days Marion, most useful as always!

Hugs,

Gavin

Hi Catherine,

Welcome to the site. Sorry that you had to find us all here and I am sorry to hear about your mum, but glad that you have joined us all as you have come to the best place for support and help and you will get loads of each from all of us. Thanks as well for sharing what has been going on with your mum.

I too am from the UK, in Dundee and my dad was dagnosed and treated here in 2008. Can I ask where in the UK your mum had her treatment and diagnosis and where she will be getting her chemo? Have you thought about seeking a second opinion re chemo as well?

And yes, your mum is most certainly not a statistic at all! Please do not give up hope. I know that your head will be spinning right now with everything that has and is going on with your mum, that is common. But please know that you are not alone in this now, we are here for you and we care. Keep coming back and let us know how everything goes.

My best wishes to you and your mum,

Gavin

Brilliant stuff! Thanks for posting that Melinda!! Not good at public speaking either, especially best man speeches!

And you and your story brings tons of hope to so many people. Thanks again!

Hugs,

Gavin

Hi Donnie,

Great to hear from you as always! And stable for the tumour, we love hearing news like that and yes and Lainy says, that is good news indeed! Hopefully though the numbers will keep coimig down and then the dreaded itching will go away also. My dad hated the itching as well so you are not alone in that. Running down the road in the nude, well……that could be an option as it is certainly cold enough here for that!!! Ha!!

Glad to hear as well that the classes are doing you some good, they did a lot of good for my dad as well and he liked going there. And should you feel like having a moan then go right ahead and do so. That’s what we are all here for to help if we can. Keep in touch Donnie, you got a ton of people in your corner with you now!

My best wishes to you,

Gavin

Put these links on the FB page and Twitter as well, very useful and sure they will be of use to many.

Thanks Marion,

Gavin