jathy1125

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  • in reply to: Don’s Story #50326
    jathy1125
    Spectator

    Don-So excited to read your story, I too am a CC survivor due to a liver transplant (I actually had two).
    I am glad to hear more sucess stories for CC due to transplant because it is our best hope. I also want people to know that if you qualify for a transplant the wait is not months or years like most, because we are considered end stage and dying.(Always a silver lining!!??) We receive extra points for having cancer on our MELD score. That usually puts us close to the top of list. I also recieved my first call after 2 weeks, but they decided not to use that liver. I had one other “fake liver” call before I was transplanted in May (my doctors were always aplogetic for it taking this long)
    I received my second liver with in 14 hours, after being put on list.
    There is HOPE, thanks for sharing your story and read mine at thetelegraph.com under christmas miracle!
    Lotsa of prayers-Cathy

    in reply to: Johns Hopkins or University of Chicago #52362
    jathy1125
    Spectator

    Amanda- Welcome and sorry you had to find us. My vote would be to start with a phone call to Dr. William Chapman at Barnes-Jewish Hospital in St. Louis MO!!
    The man is the best, he saved my life twice. Google him it is very encouraging.
    I am a CC survivor thanks to God, two strangers and Dr. Chapman.
    Lots of prayers-Cathy

    in reply to: Clean so far (sort of …) #47933
    jathy1125
    Spectator

    Jim-so excited for you!! Hope you and Janis “Dance like no one is watching”!!
    Lots of prayers-Cathy

    jathy1125
    Spectator

    Marion…I am curios do we have anyone in our “family” who has been cancer free 5 years (isn’t that the majic number)? I don’t mean survived or lived with CC for that time, but actually cancer free.
    Lots of prayers for all in the fight-Cathy

    in reply to: Posting my husbands battle with CC as there is HOPE! #52229
    jathy1125
    Spectator

    Deanna-Welcome and sorry you had to find us. Thanks for posting. Your posting shows us how important the right doctor is, it is litrally the difference between life and death. I am a CC survivor and give all the credit to God and Dr. Chapman. I know that if my own doctor hadn’t been on vacation I would probably not be posting. My own doctor would not have had the knowledge or expierence with CC and the false negative would be accepted and we would have a done a wait and see. Time is not our friend!!
    Lots of prayers_Cathy

    in reply to: 80% Survival Rate at Mayo Clinic #23665
    jathy1125
    Spectator

    AMEN Wayne- I am living breathing proof that a transplant works!! I post on here all the time that I am alive because of Dr. Chapman. I can never say or put into the right words about this man. I can only keep saying that I never even knew I was that sick, because of Dr. Chapman’s positive attitude.
    I never want to “ruffle any feathers” on this site, because we are here to help each other. It has been very hard to keep quite when negative things are posted about transplants by people who have not gone thru the trial or are just posting a research line from a medical journal. As much as we don’t want it to be, a transplant is our only real cure. (80% is great odds!)
    I know that not everyone will qualify for at transplant and when I just visited with Dr. Chapman the one thing we discussed, is that a transplant should be ruled out by a doctor who believes its an option.
    I can not say enough about this man, I shouldn’t be here, especially after my hepatic artery ruptured. I was given the last rites twice, that speaks for it self. I am alive because of God, two strangers and Dr. Chapman. And once again I will say that is how Dr. Chapman would list it.
    Lots of prayers for all fighting- Cathy

    in reply to: Introduction #52069
    jathy1125
    Spectator

    Hello Ginger -Welcome and sorry you had to find us. I am a CC survivor!! There is HOPE. I was diagnosed 3 years, and 3 days ago ! I have been cancer free for 2 years. I was treated by the best, Dr. William Chapman at Barnes-Jewish Hospitable in St. Louis MO. I can never say enough good about this man, he is the kindest, compassionate and knowledgable doctor. I am only alive because of God, 2 strangers, and Dr. Chapman.
    Please read my story at thetelegraph.com under christmas miracle, it will give you HOPE. Barnes is considered a cholangio center. I stongly encourage you to contact Dr. Chapman. Please feel free to contact me, I believe God saved me so I can share my story to give HOPE to this awful cancer.
    Lots of prayers-Cathy

    in reply to: Trying to figure best optaions for my Mom #52051
    jathy1125
    Spectator

    Pgaska-Welcome and sorry you had to find us. I am a CC survivor!! I am 2 years cancer free. I also have connections to KY. We have a permanent spot on Kentucky Lake, so have many Kentucky and Tennesse friends. I know Vanderbuilt is one of the top hospitals, but I don’t know that they have the CC expierence. I was treated at Barnes-Jewish Hospital in St. Louis MO, by Dr. William Chapman. The man is the most amazing doctor and man you could meet.
    I have such a “miracle” story to share please go to thetelegraph.com under christmas miracle and read it. I was very lucky (my first miracle) when I was diagnosed that my doctor knew what he was looking at. I was told in 5 minutes what takes most people weeks and multiple opinions that I had CC, it would come back a false negative and needed to be put in the care of Dr. Chapman. I was stage 4 inoperable and given 6-8months to live. I am alive because of God, 2 strangers and Dr. Chapman. Dr. Chapman is one of the tops for CC. There are few of us on this site that believes he walks on water!!
    Please feel free to email me, there is HOPE!!!
    Lots of prayers-Cathy

    in reply to: How did you know something was wrong? #51882
    jathy1125
    Spectator

    MN- Hi, my only sympton I paid attention to was being ITCHY, no rash though. I now realize there were other, lots of nausea and stomach issues, but when you have any weight issues those are in the” lose 20lbs cure “!! I also ignored being tired because we own a very busy lawn care business and “lose 20lbs”!! I also ignored my great tan because I am italian, a california girl and work outside (also 20lbs extra looks better tan!), little did I know that all the “golden” was caused by jaundice!! So for me being ITCHY was a good thing, God sometimes really has to knock hard!!!
    Lots of prayers-Cathy

    in reply to: 3 month MRI #51894
    jathy1125
    Spectator

    GREAT!!! We need to keep posting the positive, so those starting the fight have HOPE!!
    Lots of prayers-Cathy

    in reply to: Introduction #51900
    jathy1125
    Spectator

    Hi Suzanne, Welcome and sorry you had to find us. I am a CC survivor. I have been cancer free for 2 years. It will be 3 years July 31st I was diagnosed and my world as I knew it stopped.
    You will find a well of compassion and information at this site. My best advice to you is make sure you are being treated by a knowalgeable doctor and hospital. We at this site are big fans of second and third opinions.
    I am alive thanks to Barnes-Jewish Hospital in St. Louis MO and Dr. William Chapman. Being in Indy that is not to far an option, or another great place for CC is the Mayo Clinic.
    There is HOPE, just keep asking questions!
    Lots of prayers-Cathy

    in reply to: Walter Payton, a cholangiocarcinoma patient remembered #51868
    jathy1125
    Spectator

    Walter Peyton did wonders for the IL Organ Donation Awareness program!!Just read about another football player, James(Mad Dog) Mandich (tight end with Miami Dolphins) died at 62 in May 2011 from CC.
    Cathy

    in reply to: Good scan… #51737
    jathy1125
    Spectator

    YEA YEA!!! I am so glad that we could both post positive CC success stories on the same day. Hopefully this will start a new trend for our site. Nothing like HOPE with facts to back it up, to keep you fighting!
    Congrats Randi
    Lots of prayers-Cathy

    in reply to: New member #51710
    jathy1125
    Spectator

    CG, Welcome and sorry you had to find us. I am a CC survirvor. I am alive and 2 years cancer free because of a liver transplant. I was treated by Dr. William Chapman at Barnes-Jewish Hospital in St. Louis MO. Barnes is considered a CC treatment center, which are very rare. Dr. Chapman is in the top 100 doctors.
    Transplantation is considered the only cancer free cure for CC. Please make sure that is an option, and if ruled out, make sure it is done by a doctor/hospital that believes in this trial.
    Please read my story at thetelegraph.com under christmas miracle, it is full of hope. I also have it posted on my FB page (Catherine Sims-Dunnagan) along with another CC survivor treated by Dr. Chapman. Please consider calling him or Mayo to discuss transplant.
    I am alive because of God, two strangers and Dr. Chapman. Please feel free to contact me if I can help or if you have questions.
    Lots of prayers-Cathy

    in reply to: Chemo pump #51705
    jathy1125
    Spectator

    Hi-Lily, I had no immediate side effects from 5FU. I did mine with radiation, so about a week after finishing both treatments, I became so exhausted. My exhaustion just meant a lot of “recliner time”!!
    Lots of prayers-Cathy

Viewing 15 posts - 406 through 420 (of 574 total)