jeffg

Hi Terry, Welcome to the site. I’ve been moderating for this site for two years coming October 10th. This site has grown tremendously in respect to gaining knowledge on CC specifically. Knowledge is power. Don’t settle for the day to day routine hear say information. Members of Cholangiocarcinoma have fisrt hand experience and knowledge, who are more than willing to share. Also using the Google custom Search above you’ll be able to get infor previously shared about particular subjects in dealing with this CC. Use the links provided above and the websites forum to increase your knowledge. Again, welcome and i personally wish you the best outcome possible. I continually preach positive attitude and love will take you far. Also, you have to be your own best advocate. Your the patient ,your in control. Pleas don’t let them push you to far to fast and burn out your immune system. Try and keep your platelets,wbc’s and rbc’s above safety levels. Weekly labs while doing chemo and monitor yourself from a printout would be great. There is nothing wrong with holding off treatment aweek or two to preserve your immune system. Here I am, on my wagon again. Any questions or if you would like any suggestions or opinions just jump in.

God Bless,
Jeff G.

Hi Peter, Five procedures in a month! I definitely would say it’s time for a medical break. Enjoy the break and keep on shooting those pieces of artwork. I love the pumpkins and gourds. I can just feel the cool crisp air. So refreshing. In my case it sure does remind me of home sweet home.

Cheerios,
Jeff

Super Kris, Enjoy the Carolina’s !
Jeff

Radiologist Oncologist/Oncologist

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When and what type of radiation is appropriate for which areas, cyber, gamma, IMRT, 3-D conformal ? Can radition be used same area more than once if lower dosage ? Recommendation on radiaton to liver and lungs ? Combination radiation and chemo? Some oncologist say no. Most common complications of radiation? Is there some type of medicine that can be given via portacath to make radiation more effective? Does radiation actually kill cancer cells in other parts of the body/blood stream from absorbtion while working on a particular tumor. Why do or should oncologist wait or are so conservative with recommending some form of radiation? How many rounds of chemotherapy does it normally take to tell if effective? If using a chemo and tumors are remaining stable it could be the tumor is just being indolent/not progressing and chemo has nothing to do with it is there a way to determine so that chemo does not have to continue and depleting immune system. What’s the lowest and safest level for platlets, red cells and whites before chemo should be with held? Some push to the limit of no return; Is it considered if platlets and r&w cells are depleting chemo is possibally being effective? Simply, standard protocal for chemo to save on the bodies own immune system? Why aren’t genetic profiles completed prior to chemo? Wouldn’t that save time and money and give more specific on which chemo may benefit the patient more so than othe type chemos? What about immunology treatment? Especially for indolent progression? It just appears to be simply trial and error and push the chemo until the body can’t support itself. Why try to be so aggressive? Why when you CC most Oncologist explain all is pallitive treatment? If CC is systemic does it not make sense to keep removing tumors as they appear, especially if it is distant areas and slow progression; wouldn’t it prolong life considerabally for many? Why aren’t anabolic steriods use to help fight cancer? some types are bad for liver but other types aren’t any more dangerous than the chemos. Isn’t it true there is no antidotes for these chemo drugs,once in your system, all that can be done is treat be given pain killers and antacids?
This is a few starters? Basically true or not, where is the common ground/protocal? We are idividuals but basics are basics.
Jeff

Hi Lainey, I have heard of it and have seen it. Never tried it as I have never seen any positive imput from anyone who has tried it. You can get it on line or at your health food stores like “Food for Thought”. Or the store can order it for you. Store always seems more expensive as thats where I get my IP-6 with inostol, which I don’t know if it does any good either,but seems to be more hype about it in the pass. I believe walmart sells it as well, in the section with all the other supplements. If she was cured from breast cancer just using COQ-10, It should be a major break through and on the news. But Miracles do happen you know? Have a lovely day! Finished radiation this AM. 4-6 weeks for full effect to be done. Man,this radiation treatment was a bugger! Bone pain, itchy, sunburn feeling and a little nausea and bloating. You would think someone just jumped up and down on my ribs and back. Shall pass I’m sure. Had Lot longer buzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzes this time.
Cherrios,
Jeff

Hi Peter, In addition to what I posted on Pagehill. Last night I was thinking and said to myself, I love my Pasta’s as well. If It were I and I felt hungry well? I then began to think some more. It’s just not easy,( ifs,ands,buts). Life is beautiful and of course a man has got to eat! Sorry Peter, I couldn’t resist. I support you 100% with what ever you dicide my friend. If you really feel you can gain weight,strenght, and vigor? Then comes them what if’s again. I wish gaurantees came with surgeries. You and only you knows what your body is capable of doing. Your long over do for a miracle and I ‘ll leave it at that. Peace with in!

Gods Love,
Jeff

Thanks Mary, I think this radiation is doing the trick, I’m back to sleeping during the night again, with only a little discomfort. Just two more days of radiation I hope. Wears you out just driving back an forth every day Ha! Glad it’s only a little ways done the road.

Bless Ya!
Jeff

Hi Jan, Sorry to hear about your Dad. Has he been able to manage his pain okay? It seems like this disease just doesn’t want to stop for nothing. Your Dad’s progression sounds similar to mine, except I am still getting about and have no need for oxygen yet. Maybe hospice and a break from treatment is what he needs. I’ve taking several breaks, to allow my own immune system to build back to half way normal. Sometimes continuous aggressive treatments takes to much out of you to quickly. I wish we could welcome you to the site on a more positive note, but welcome anyway; and if there is any questions or concerns on your mine, please feel free to ask. We are quite forth right and tell it like it is. Jan have you been to any caregiver/patient support group meetings? They can be very supportive for you at a time like this. My wife and daughther started attending a few weeks ago and it has made a significant differennce for them emotionally. Jan any time you want to vent ,just go for it, as we all here understand completely and are here to support you the best we can. Ideas and suggestions will flow your way, just take them in slowly and one at a time.

God Bless you and Your Dad,
Jeff G