jeffg

Hi Barbara….. Sorry to hear of your husband Frank’s condition. Not to be nosey but what has been done for Frank? Has any stents been put in or a line to get his billibrium count down? Where is his tumors located? Also, the standard question, has he had more than one opinion of his condition? I have several tumors but that does’nt mean I’v’e only got two months. Has he been actually diagnosed with scans and biopsy. Has he been having pain and juandice? I’m sorry to ask so much about such an emotional subject, I’s just hard to suggest anything not knowing a little more. Barbara please scroll to the top of page and click on Newly Diagnosed or Cholangiocarcinoma. It will give you a lot of information you might want to know. If you have any specific questions, please do post and ask as someone will suggest what ever they may have is experienced.
Again , I’m so sorry this disease has touched your life but if we can suggest something to help in some way we will.
God Bless,
Jeff G.

Ron … My heart felt sympathy goes out to you and your family. I had just read the update on Tammy the other day and lit another candle. May she rest in peace and the lord give you strength.
God Bless,
Jeff G.

Hi Pauline… Wishing you and Anthony the best with this trial. Taxol also known as taxotere has been one of the chemos I just finished trying. I had some positive results with the liver tumor reducing in size but with my mets to lungs it was a toss up. Some slightly grew and some slightly shrunk. I had 8 cycles and over all felt it kept things at bay for some time. It’s so hard to tell some times. Like some one mentioned the other day it depends on the doctor deciefering the scans, the tumors could be a little smaller or larger. Hair loss was my biggest side effect from taxotere(Taxol). 3 times as I stoppped and started to do little trips I had planned. Avastin I don’t remember if I’ve tried before, I’d have to check the generic brand name. I also wanted to share that the mets to Anthony’s lungs is not considered lung cancer but CC mets to the lungs. My Onco had to re explain that to me again the other day when I was giving him a hard time about what I wanted to try next. Mets to any part of my body he said is still considered CC/bile duct cancer, not lung or bone,etc. So i replied we can keep on trying anything then right? He grinned and just said we’ll try what ever scientifically has merit. I said that’s all I wanted to hear. Then he reminded me that it is amazing and basically not heard of a cc patient surviving this long. I told him He needed to visit our web site as it is happening. He feels that combinational treatments have been showing promise. So, with all that said it sounds like the trial Anthony is going to have is combinational of different chemos which canbe of benefit as they work in unison with each other for better results. Lots of possibilities still exsist and seem to be popping up here and there in my opinion. I hope and pray for the best with Anthony’s trial and everyone else who is trying anything novel.
God Bless,
Jeff G.

Joyce… I feel your pain and heart ache. Please understand she will be with you as long as you want in spirit. I might suggest if you don’t mind, to get a personalized Diary just for your Mom and you can write and communicate to her everyday and in some little way you will occassionally feel her presence to let you know she is okay, I really do believe that. I have felt my Dad’s presence since he passed over. My wife has as well. We loved him dearly. He passed on Mothers day 2years ago and still feel his presence once and awhile. The day of his mortal death I walked out on the porch all emotional and it was like an experience like never before. a white dove landing in the tree out front just for a moment and then flew away and I heard a voice inside my head Say “Thank You” Everything is just fine” I promised my dad that I would keep him and Mom together until death take them apart. I fullfilled the promise and that was what the thank you was for. I just sensed it and felt it. I don’t really care if anyone thinks I’m nuts. I know what happened and told my wife immediately. Either that is what my mind and eyes that wanted to see and hear for validation or the lord made it possible. One day we’ll know for sure. Joyce you don’t have to let go, You never have to let go if you don’t want to. Just make peace with yourself and communicate your feelings in your Mom’s personal diary a gift from you to her. It will feel good I promise. Written expression is so beautiful and heavenley coming from the heart.
God Bless You, Coco, and your Mom,
Jeff G.
P’S. The good thing about being in heaven is you don’t need computers to communicate.

Hi Margie… 9 years and 2 months liver and gallbladder resection, many chemo regimens and a couple imrt radiation treatments. Not the person I use to be but functional enough to be happy and alive, driving and handy man work in spurts. If i can just get one of these chemo treatment to keep on working maybe a cure will pop up from nowhere! Would that be nice for all? Your doing really great Margie by the sounds of things. Good follow-up and maintenance and advocation. Listen to your body and know when to tell the docs to slow down and cut back. For some of us that are still battling the hard knock, I think the the docs have a tendency to push to much to fast and to the point of our bodies can’t withstand if you know what I mean. Welcome to the sight. Yeas there our others with long term survial and still battling, some in remmssion, some clear with great prognosis and unfortunately some to advanced before diagnosis and we have had to say our goodbyes; We miss them dearly thier loved ones more so. Different thing are being tried every day now. My doc says once it mets it gives him the room to offer an try other treatments; he dosen’t have to stick to CC protocol entirely. Which I think is good. That is definitely why I’m still hanging in there. Plus mediatation, Practice mind and body healing and eat like a pig even when I don’t feel like it. and exercixe to keep muscle and tisse from wasting. Dog Gone I’ve ramled away time to stop.
Bless Ya! and again welcome. ask what ever question you may have on your mind the good members of this site are not bashful in passing on their experiences which are many in many countries and states; They have been to some of the best treatment centers in the world. Standard protocol to experimental like dentric cell, internal radiation beads and so on. Hope for survival exsist and long term surval as well. But < But< But< CC is quite an unpredictable cancer and acts differently on deferent people so at the moment treatments are what will work and what Insurance Companies will cover or who wants to morgage their home to keep the battle going. Second an thied opinions is preached loudly onthis site. We have seen turned downs from surgeons and others take on the task and with good results. I said I was going to stop . I'm on my first cycle of new regimen and I think they put a little extra steriods in my premeds Ha!
Cheerio for Now!
Jeff G.
Jeff G.

Hi John.. So sorry to here about your dad. Did you get a second opinion ? Did any doctors think placement of a stent would not give him comfort and extend his life? or put in a billary Drain? Maybe that has already been done, to reduce the juandice and get he bile flowing? What age is your dad? Maybe it is gone to far but if extending life without causing pain and suffering is what is seek , may a second opinion be something to consider. It sounds as though he has had a rough time health wise though and maybe he is ready to let go if he’s really eldery. It’s so tuff and painful at any age as you said. My heart felt feelings go out to you and your Family.
God Bless,
Jeff G.

Hi Kris ..
I got my list of herbs and spice from the list under the (websites). The list is provided by Memorial ,Sloan-Kettering. A-Z list I don’t remember exactly which ones I got and mixed but they were off the Walmart spices and herbs section. I did’nt go to a health food store .
Bless You Guys!
Jeff