jeffg

HI gmjack2…… I echo Kris sorry you had to come to this site, but you have a whole array of information here if you need it. I just wanted to mention my sister lives in in Cary, NC and she completed her nursing degree about three years ago at UNC. She has given me great reviews of UNC, as I was going to go there at one point for another opinion and stay with her for a bit. She has mentioned many times how demanding and meticulous the doctors were. Coming from a student that’s a good sign for the patient in my book. wish you all the best!
Jeff G.

Good Morning Kris….. I truley understand what you are saying. Just a little secret for you. When your scans are done they are read by the radilologist within the hour if not minutes. The hospital I go to has evreything computorized so the report is typed in to the system initially and then the scans are reviewed again by usually by the same doctor and signed off as verified. If where you go is computorized record keeping and like in the same facility your doctor or nurse has access and can print you a copy, although legally I’m suppose to go the Admin section (release of Information) to obtain copies of my medical records or indvidual reports. I do that as well depending on who I see first. Federal Law allows them up to 30 days days to get you a copy here in the states but there is nothing saying they can’t release it earlier, so I get mine within 2 days by physically going and asking for a copy. I also go to a Veterans Hospital now, so it may be a little easier for me to do than your system. I’m like you and pace the floors or go bonkers just waiting a couple of days. It is nerve racking. So give it a try Kris and put on the orphan Anny look and go ask for a copy. If need be call your doctor and tell him your anxiety is causing sleeplessness. I don’t know how it is where your at but it is your medical information and you should be able to sign a release of Information form and get it sooner. I have run in to some grouchy people when I have been referred some where else who will say “well by law we have thirty days” and I usually come unglued and make quite a scene a tell them in front of all, I have the cancer and I don’t really want to wait thirty days when all you have to do is take 2 minutes and make a copy. And then I asked them would you want to wait. I don’t know I hate being rude but sometimes the system just doesn’t care about your pyshcological torment. Now calm down and take some deep breaths I just wanted to let you know I understand completely.
Bless Your Heart Kris , I know that feeling of anticipation and need to know. Wish you luck!
Jeff G.

Neill and Cindy….. A great testimony of faith , belief, and prayer. Palsm 23 is a verse that I memorized in Sunday school 40 years or so ago. I still recommend today for people to read it to find comfort. God Bless and continued health for you both.
Jeff G..
P.S. As a sense of responsibility: All who reads information on this so caring site must understand the questions,general information, or links that others have kindly provided is information freely provided, for you to digest and to help you in making a more informed decision about your treatment. There are many Hospitals, Cancer Centers, and Surgeons with great credentials. Bottom line is: It’s the patient’s choice/decision of where and whom.
Also, this particular discussion title is “Cured of CC” I pray that it is true; but taking another perspective I know personally that cholangiocarcinoma can be undetectable for a period of time and can recur to about any part of your body. Just one little seed can float around until it finds the enviornment it likes and attaches. I’m not trying to put a damper on any one’s miracle or hopes but only provide a friendly reminder on the nature of this disease. We all Pray and hope it reminds silent !!!
God’s Speed to you all !

Dear KD… Thank You for sharing your story as hard as it must have been. It really sadden’s my heart to hear of such a young man being grabbed by this horrible disease. KD if your Husband is able maybe he can write a letter to his little girl and put it in a time capsule for later. Some of Daddy’s words may be comforting when she is old enough to fully understand. This is sort of away for him to be a part of her life later on. It sounds like your husband has and still is putting up a couragous battle. Prayers coming your way. Please don’t hesitate to post anytime you wish. God Bless ! Jeff G.

Hi Deanna… I admire your positive attitude. Prayers coming your way. I would like to ask a few questions… What type of radiation and chemo is or did your husband recieve? what size is his tumor? What Cancer Center is treating him as it sounds like they are on the ball? Has the transplant coordinator discussed all issuses on how to gain a positive transplant waiting list approval? I am just so curious as others have tried and run in to a brick wall for one reason or another. I surely wish you and yours only the best in your fight against this disease. Will look forward to your reply.
Jeff G.

Hi Carol, I have been where your husband is at. It is not a good place. It is lonley and very depressing. I just wanted to be left totally alone and have nothing but peace and quiet. I know my odds of beating this disease up front is not good in the long run. I’ve been at the point of feeling so guilty for being so irritable and snappy that I even at one time thought of ways to end the pain. Not my pain but the pain I was causing others, my loved ones! Carol he really doesn’t mean to be the way he is acting but that chemical imbalance of the mind working overtime takes control. It took Months for me to snap out of it. When he understands there is hope and when he can see his life is worth fighting for he’ll dig deep and give it another whirl if you continue to show the love and support. The one thing that brought me around is my wife inviting relatives to visit and getting me to laugh and come out of my shell. Yes I was frustrated at that as well. But I overcame that and started to remember the good times and laughter. It is hell not being in control of your own body and destiny. At least that is what I thought. The bottom line is you do have control over your body and destiny to more extent than you realize. Going back to the little train chugging up the big hill “I know I can Do it!” is the attitude to take and stop feeling useless. I get up and make my wife breakfast before work, doing the laundry and vacum the floors and do the errands she my nort have time to do, make dinner. You will see just how usefull you are charlie! Your to darn young to be throwing in the towel yet! Yes it’s hard but by God and with his help I’m going to do the best I can for as long as I can and if I leave this world I’m going to leave it happy. After all it was a gift to begin with and I want to show my gratitude and see smiling faces when the time comes and I emphasize “when” heck we don’t know. I say all this and make it sound so easy . It isn’t by a long short. I may fall back into that trap of isolation again but I pray not as it is to lonely and sad and creates to much heart ache for those who I love!!! Love!!! Love!!! This come from the heart Charlie with the Lords guidance as I’m not one who shares so opening as this. You can now make a choice and bark at this post or be happy!! I’ve got a 9 year anniversary coming up in March. Nine Years that I thought I would have never been around to see. I’m sorry Carol if this has gotten to heavy . If Charlie is receptive please let him read this . If you think he wouldn’t like it , Heck show him anyways. He is still a man with a heart full of love! Love in his name to you both!!!!!
God Bless,
Jeff G.
No , I’m not an every Sunday church going person, but I still read my Bible that I got in my fifth year of Sunday School. Yes I do believe in spite of more obstacles that will probally come my way.

Lana … I agree with Maryanne. There is alot of information to digest. Don’t feel pressured by your family for starters, secondly we recommend to always get a second opinion; especially if your being given a bleak can’t do attitude by some doctor. Third, there is no right or wrong decision when it comes to this disease. You try your best and pray for the best. It is a bumpy road no matter which way you turn. Lana, don’t second guess yourself and discuss with your father what he would like to do. I’m sorry if I missed an earlier post and don’t know all the facts. The bottom line is if you trust the medical care and advice your now getting steer the course. The one thing to know for sure is there is no cure for this disease but with different treatments for different people it is possible to extend life for many years. Just take a positive approach and and never give up hope.
God Bless You and your Father!!!
Jeff G.

Jliu168….I’m so sorry for your lost. I’m happy that he awoke from his coma and was able to say goodbye. Like you said he can peacefully rest in Heaven now. May God give you the strength to lighten your heavy heart. Until the time comes for that great reunion may you have peace of mind that your Dad is okay now.
God Bless,
Jeff G.