jim-wilde

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Viewing 15 posts - 46 through 60 (of 353 total)
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  • in reply to: Radio Show Living with Cancer #54442
    jim-wilde
    Member

    If you want a good laugh, listen to this week’s program. See #3 or #5 below:

    Listen to Let’s Talk Cancer with Kim and Denise over the internet from anywhere

    1. Go to http://www.wwdbam.com/

    2. If it’s 12:30 PM, you may listen live by clicking on “LISTEN LIVE” at the top of the homepage
    OR

    3. Select “PROGRAMS” at the top menu bar.
    4. Scroll down to “Let’s Talk Cancer” and click on the little black triangle
    OR

    5. Select “download” to download and listen at any time convenient to you.. Download is available about 6 to 8 hours after each live broadcast, sometimes sooner. It’s available for a particular program until the next week’s program is put up.

    OR

    6. You can also listen by calling 712-432-6621

    WWDB-AM 860
    http://www.wwdbam.
    WWDB-AM 860

    To donate or advertise,
    “Let’s Talk Cancer”, a NJ incorporated non-profit
    P.O. Box 73
    Sewell, NJ 08080
    Email: letstalkcancer@comcast.net

    in reply to: Part 2: Clean so far (sort of …) #56522
    jim-wilde
    Member

    Lisa, I’m just not going to worry. I know I’m in good hands that are guided by God.

    in reply to: Part 2: Clean so far (sort of …) #56521
    jim-wilde
    Member
    kris00j wrote:
    Hey, I wasn’t asking! I just wondered if I would meet anyone there that I “know”. I haven’t even met Kim or Denise yet.
    But if you want to mail me a donation I will get it to Kim or Denise. Better yet, if they have easily mailable prizes I’ll put you in for them! :)
    I’m a pretty happy, semi-outgoing person, but going there alone… well… that will take some thought from me.
    Kris

    Kim knows your coming and you don’t need a ticket! She knows to look for the tall one! No donation needed, nor expected, but you must show up. I’m sure the crowd of S Pilly Italians will welcome you with open arms. Plus Kim and D are now expecting you.

    in reply to: Hello from a frustrated wife #57767
    jim-wilde
    Member

    Gavin, I’ll try to leave you a few working toes!!!

    in reply to: Part 2: Clean so far (sort of …) #56518
    jim-wilde
    Member

    I wish I could, but, Kris, you are going. I’ll pickup the other half. Give Kim and D hugs and kisses.

    in reply to: Part 2: Clean so far (sort of …) #56515
    jim-wilde
    Member

    I’m thinking discharge 3/9 or 10, barring any problems, Kris. For the last surgery, they kept me over a weekend, BC they didn’t have a single room. I had MRSA in 2001 following cardiac surgery, and Columbia’s policy now is I can only have a single room and they can’t discharge a patient from the ICU!

    It would be very nice to meet you … if we can’t work it in NYC, then maybe Phila with Kim and my wife. One way or another, we’ll make it work.

    in reply to: Hello from a frustrated wife #57765
    jim-wilde
    Member
    rhike wrote:
    Gavin:

    I am a new member and don’t know how to use this website. I see you have a lot of posts. I just want to introduce myself and post my son’s story.
    How can I get in the introduction forum?

    Rachel

    Rachel, when you log on to the site, go to “Introductions” by clicking on it. Then find the label on ht upper right “Post new topic” and click on it. Then just fill in the topic, type away in the large void space below. When finished with your post, click on “Submit reply” at the screen bottom and your done.

    Darn, I missed Gavin’s reply. Didn’t mean to step on toes!

    in reply to: Hello from a frustrated wife #57763
    jim-wilde
    Member

    Diana, you sound like my dear wife (I’m the patient), especially the Xanax part. You need to take care of yourself as well as your husband. I totally agree with Lisa … this is harder on the caregivers than the patients. Keep in mind this is not a bunch of isolated events, but a process, which may well turn out to be a very long journey. My wife started out wrapped around the axle and stressing way too much. I’m now almost three years from a resection, sort of clean and Janis has calmed down quite a bit. We try not to get too down over the bumps we encounter, nor too high over any good news.

    Good luck getting the very best care.

    in reply to: Part 2: Clean so far (sort of …) #56513
    jim-wilde
    Member

    They all never cease to amaze me. They have a huge, gaudy, red and white banner that hangs over Ft. Washington Avenue which proclaims AMAZING THINGS ARE HAPPENING HERE and it’s true!

    in reply to: Part 2: Clean so far (sort of …) #56511
    jim-wilde
    Member

    This has been a medically busy week. Tuesday AM PET/CT at NY Presbyterian, then noon appointment with Dr. Josh Sonett, the lung surgeon who did a tricky left lung procedure last spring. He talked with radiology, who didn’t see anything seriously illuminated on the PET/CT. This was a routine followup. Wed am appointment with Dr Abby Siegel, onc. The formal radiology report was now up and she’s a VERY careful reader. She saw something about a very small right lung mass that had grown from 4mm in 10/2011 to 9mm now. She got Dr,. Sonett on the phone right away to discuss this new finding. Bottom line, get another scan, a CT done stat the same day. I went back to Dr. Sonett’s office to see whether we should go back to MD or stay in NJ. He very quickly decided that it was to be surgery for me (March 7) and I completed almost all the pre-admission testing yesterday. All I can say for this huge hospital (29,000 employees, 6000 of them doctors) is they can really cut through the bureaucratic BS when there’s a need, and knowing where I live, they do handstands to avoid me making any unnecessary trips there. I love the care they’ve given me and they never cease to amaze me with their responsiveness. A truly wonderful hospital.

    We’re still pursuing the elevated CA 19-9 and bili numbers, and a new blood test was ordered. Apparently, inflammation in the pancreas without cancer can also cause elevated numbers and slight pain/discomfort in the right kidney region. The scans both show no evidence of cc returning at this point, which is always great news.

    My hope is this is an adeno carcinoma, unrelated to cc, and a new primary, but only a final path report in March will tell what the deal is. CC is not all bad. Had it not been for cc, the lung tumor removed from the left lung last year and this new one in the right lung would not have been discovered until much later, since there were zero symptoms with either, and wouldn’t have been until I was in dire straights. Perverse as it may seem, this all still belongs in the “Good News” section. At least, that’s how I’m reading it.

    in reply to: Radio Show Living with Cancer #54441
    jim-wilde
    Member

    Call in today! The number is 610-664-4100. Personally, due to hernias I got, I don’t get to put the garbage out any more or carry anything over ten pounds! I may call in myself.

    in reply to: Kathy wright #57739
    jim-wilde
    Member

    Lisa, this is Kathy’s screen name here: chezWright@aol.com..

    She posted recently in hte “Good News” section

    in reply to: insurance denying radioembolization #57630
    jim-wilde
    Member

    Ed & Percy, the result of the Y90 was for a total of 15 small lesions, 12 became dormant and three stable (no size growth). Percy, the person I’m referring to is Kim, who you heard on the show. If you go to the Let’s Talk Cancer public FB page and Kim’s Krusaders , a public FB group, you can contact Kim if you would like more info. She is very open, especially with cc patients. Send her a FB friend invitation (Kim Cirucci).

    in reply to: Radio Show Living with Cancer #54440
    jim-wilde
    Member

    The next program, Thursday February 16 will focus “things I got away with because I have cancer.” Call in number is 610-664-4100 between 12:30 and 1:00 PM EST.

    I learned today we have at least one listener in The Peoples Republic of China and at least one guy in California. Isn’t that special.

    in reply to: insurance denying radioembolization #57624
    jim-wilde
    Member

    OK, I’m quite familiar with Y90, as a close friend had it last November, and I can assure you that’s not experimental AND was fully covered w/o any issues by her BC/BS insurance.

    I’m quite puzzled at the issurers to saying that. Sounds like they are trying to weasel out of paying by claiming that the procedure is ‘experimental’.

Viewing 15 posts - 46 through 60 (of 353 total)