jladams

Forum Replies Created

Viewing 7 posts - 46 through 52 (of 52 total)
1 2 3 4
  • Author
    Posts
  • November 2, 2010 at 1:15 pm in reply to: Liver Resection #43542
    jladams
    Member

    Hello,
    I found out yesterday that my CC is Stage IIIB intrahepatic carcinoma. I will start on cisplatin and gemzar on Monday to shrink the tumor. I am still holding out for surgery. I go to Penn today and Dr. Pawlin at Johns Hopkins wants to see me also. Thanks again for all your support and ideas. Sincerely, Johanna

    November 1, 2010 at 2:59 pm in reply to: Treatment Centers/Physicians #29924
    jladams
    Member

    Hello All,
    I am sending all the info I have on myself to Dr. Pawlik at Johns Hopkins-thanks again to all of you! Sincerely, Johanna

    November 1, 2010 at 11:46 am in reply to: Liver Resection #43539
    jladams
    Member

    Hello Margaret,
    Thank you, I am anxiously waiting for a phone call from a Dr. Hertl from Mass. General today about a resection. If not, I believe I will seek out Johns Hopkins or the Mayo Clinic for a second opinion.
    I have been told be 2 local doctors that the tumor is impossible to resect. I appreciate your support-I want to live and will not give up on this. Johanna

    October 31, 2010 at 9:50 pm in reply to: Liver Resection #43537
    jladams
    Member

    Thank you Margaret. How long has your husband been diagnosed with CC? I have no jaundice, my bilirubin is normal because the tumor is not impeding the vein or artery.
    Do you mind me asking how big the tumors were? My tumor is 10cm.
    I hope you don’t mind me asking these questions.
    My oncologist told me I have 6 to 12 months to live-I don’t even look sick! I have lost 12 pounds just from worrying before I got a diagnosis.
    Sincerely, Johanna

    October 31, 2010 at 5:54 pm in reply to: Liver Resection #43535
    jladams
    Member

    Sorry Lainy-can you tell I am a little freaked out! Johanna

    October 31, 2010 at 5:40 pm in reply to: Is there a best place to be treated for cholangiocarcinoma? #43529
    jladams
    Member

    Hello Dianne,
    I am thinking about going to Mayo. My husband is worried about me going to all these different places for opinions. I want to know all my options. If you saw me, you would not think I was sick at all (which I am thankful for). I am so glad I found this site. Johanna

    October 31, 2010 at 4:06 pm in reply to: Is there a best place to be treated for cholangiocarcinoma? #43527
    jladams
    Member

    Thank you Jenny. I am so scared. Johanna

  • Author
    Posts
Viewing 7 posts - 46 through 52 (of 52 total)
1 2 3 4