jules1982
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Wow, what a great report! Fantastic news. My mum is currently considering either SIRT or IMRT, for a tumour the same size as Mark’s, also confined to the liver – this report has given us such hope.
Best wishes and continued good news for Mark!
Hello all,
Sorry for a bit of a delayed reply and thank you so much for all of your thoughts. We have deliberated and the current plan is to just wait for my Mum to have her next PET and MRI (mid Feb), then both surgeons are going to look at the scans and battle out the question of surgery amongst themselves. I think that my Mum wanted to avoid getting a third opinion as she’d like a little break from it all – it does get so confusing. Pam, I think it is the same op as Lauren had. I guess with such big surgery and also it being relatively new, there are going to be big differences in opinions. Like Lauren, my Mum would likely opt for a chance of a normal life, so I think she’d give it a shot if the surgeons give her the go-ahead!
If surgery is not an option then the next step is apparently SIRT. We’ve been looking into IMRT and TACE too, but not sure if these are available in the UK for Cholangiocarcinoma. I’ve tried to have a think about which treatment would be most appropriate for Mum but it does get very confusing and the research varies so much. If anyone has any opinions on these treatments then please do pass on your thoughts.
Also, Porter, am I right in thinking that your surgery is next Monday (27th)? If so, good luck. I will be thinking of you and sending loads of prayers your way.
Jules
Thanks Lainy, I thought that you may say that
Unfortunately I wasn’t able to be in the appointment with my mum today but I was shocked by some of the things he said to her. Along with the funeral comment, he told her that her liver was a ‘shot to pieces’. I work with patients in my job too, and i’d never speak to people in this way. Luckily my mum is a tough cookie, so she takes it in her stride, but a lot of people would be really damaged by these insensitive comments. Arrrrrrrgh, I feel a rant coming on but I will resist!We love surgeon number one, not just because he thinks that surgery is possible, but because he treats my mum like a human being and even if he’s delivering bad news, he does so with so much respect.
Dear Milena,
I am so very sorry to hear about your beautiful mum. Life is very unfair at times and you sound as though you were very close to your mum, which is something to cherish.
Although she is not here in body, she will stay with you always, in your thoughts, in your dreams and in your heart. She is part of you, and that will never change.
I second what Darla said, please don’t be too hard on yourself. Many of us find it very difficult to talk with our loved ones about death; it is a natural part of loving someone so much and never wanting to be without them. You did the very best for your mum in extremely tough circumstances, and I’m sure that she knew that.
Many thoughts and prayers are headed your way, and you have a lot of support here.
Hugs,
JulesHi Percy,
I’m very interested in immunotherapy but unfortunately I am unable to access the articles. Is there any other way I could access them?
Best wishes,
JulesThanks for posting this info. Marion. We are both excited and terrified about this operation. It’s scary that there is little knowledge about long-term outcomes but on a positive note, our surgeon has just performed it on an 85 year old man, who survived and is currently doing well. Any thoughts from other members would be greatly appreciated.
Jules x
Hey Lainy,
Festive greetings from across the pond!
Wow, how interesting, maybe these meds are working for you. Fantastic on being five years cancer free, that’s great great news. We’re certainly going to consider this treatment, if we run out of options.
Things are currently going okay thanks – we’re really looking forward to the holidays.
We’re holding our breath at the moment as my Mum is on a few week chemo-break as she has a bad cold and her Onc wants her to recover before she re-starts treatment. Other than that, amazingly, she seems pretty well. We’ll then be holding our breath again, as she will be reassessed in Feb for a pretty major surgery. All we need is for everything to stay nice and stable. We have the most wonderful surgeon, and we feel blessed to have found him (and we did so through this lovely board!).
Jules
