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Mark,
This is such positive and encouraging news, I hope you continue to feel better! You are in my thoughts.
Best,
JulieLisa, that is such wonderful news, so happy for you!!!
On the hives, was there any progress on the autoimmune diagnosis? I mentioned to you my Dad’s situation where he was having a lot of skin reaction too after the RFA. We saw a good dermatologist recently and he thinks its likely an autoimmune reaction. I was also having conversations with a liver specialist here in CA, and he also thought an autoimmune response is not unusual given the tight connection between the functions of the liver and skin. Hope you find the root of the hives and a comfortable remedy soon!
Julie
Pat,
I don’t know the answer to your question, but great to hear the liver looks clear! Hope you get a good answer from the oncologist.
Julie
Pam,
I can’t tell you how saddened I am by this news. You have an amazing family, and I am sending all of you my best thoughts for this difficult and trying time.
May Lauren rest in peace in heaven, and know that there are many of us who have never met you but have been touched deeply by your courageous fight, and are sending you our love.
Julie
Mark,
I’m very sorry to hear of the developments, but sending you the best thoughts and hoping that the treatments will bring good news soon.
You’re such a strong and admirable fighter, I wish you all the best.
Julie
Hi Patricia,
You’ve had an amazing journey so far, and it’s great to hear that you’re doing well. Sounds like you have a wonderful family and friends that are supporting you, best of luck to you!
Julie
Pat, I think Eli is right about the CT better than MRI for lungs. My Mom had lung cancer and post her surgery, she has been having CTs every six months. The doctors have said CTs were the best follow up scans for lungs.
Pam – all of my best wishes for Lauren’s recovery, I hope she will get through this with all the strength she has displayed in her fight so far, and pray for you and your family. Sending along lots and lots of good vibes!
Hi Pat,
I am no specialist on this topic, and I’m sure other will have more experience, but my Dad’s radiologist also recommended MRI over the CT scans. My Dad has had CT scans since he was diagnosed last April, but in preparation for the RFA a month ago, the radiologist looked at the prior CT scans and ordered new CT and MRI. Upon comparison, he told us that the MRI actually has better imaging, and since the RFA, my Dad has had a couple of MRIs and no CTs. I hope this is helpful – I have heard that which method depends on the location of the tumors, but as the new MRIs were ordered for follow up post procedure, I asked the radiologist and he informed me that he believes the MRIs are as good as the CTs, and unless my Dad’s oncologist believes he absolutely needs CT w and w/o contrast, then the radiologist believes MRI is better (plus it doesn’t have the radiation which is a bonus).
I hope this is helpful. Oh, and my Dad’s getting treated at UCLA and the radiologist is quite familiar with cc (along with other liver cancers) so we trust him and his opinions. Just want to make sure you know I’m not relaying info from some random dude.
Julie
Pam, sending a ton of positive thoughts your way. Lauren sounds so brave and wonderful, all the best wishes for a successful surgery!
Julie
Hi PCL,
I am not a dietitian, but like many others on this board, I have been cramming medical and nutritional knowledge like I was back in school studying for a seriously difficult exam. On the nutrition, I have been reading both Chinese and western nutrition books, cross referencing research and articles. There’s a lot of info out there but I also find that some are unreliable, while others have good intent but are not necessarily true. For example, there are a lot of articles on foods that are good for the liver, but there is a subset that’s better when a person has liver cancer. Anyhow, there isn’t a doctor in our family so I’ve been doing a lot of cross referencing to make sure we’re not eating things that are harmful, but there’s still trial and errors, usually through how my Dad’s skin responds.
On the yam – we find the easiest way to eat it to be steaming. I know it might not be palatable to those used to a western diet, but steaming is fast and preserves the nutritional content best. It’s hard to cook the yams directly into foods, as it usually takes too long to cook and disintegrates by the time it’s cooked. We’ve found the yams that’s orange on the inside to be the least starchy and Dad mostly eats that kind. Hope this is helpful! Just a caveat tho – this is purely based on our experience and research, I’m not a nutritionist.
Julie
