kris00j
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kris00j
SpectatorWell, everything is set.
March 5 is my embolization. It is with the same radiologist that did my last embolization successfully. I don’t remember if I posted, but I had 3 different radiologists try a different embolization last summer. 1 failed. 1 didn’t even try after he or she got into the vein, and the 3rd went in and did the embolization successfully. THAT is the radiologist that will do this embolization. My surgeon says she’s the best on staff, too.
She will go thru the right side of my liver into the vein and will block off the left branch of the vein so most of the blood goes into the right side of the liver. This will have the left side sort of “die off” and the right will take over the work. (what normally happens AFTER the resection). It’s a little scary because if she nicks the vein I will have compromised blood flow, or no blood flow to the right side and that will be the end of my liver. But that WON’T happen! Dr. Brown is the best radiologist at SK and I believe she can do this. Of course, it doesn’t keep me from worrying…
Then March 26 I have a CT scan to check on growth.
As long as all goes as planned, the resection is April 4th. I believe it is an auspicious day, as it is 1 year to the day of when I met Dr. Fong. So it’s a sign that all will go well. I’ve told my parents to expect a 15 day hospital stay… I think it’s safe to guess that much since I will be losing 75% of my liver. And I found out why he is taking so much out: it all has to do with blood flow and drainage. Those parts of the liver will die off when he removes what he HAS to remove, so he has to take them out, too.
I’m trying to stay positive but as all of you know, this is really scary. Worse to my nerves than being inoperable. Now I have the biggest hope and the biggest fear all at the same time.Kris
kris00j
SpectatorSharon:
I am so sorry to hear about your mom. I hope you are able to take comfort in the fact that she is no longer suffering and is at peace. And she will always be with you.Kris
kris00j
SpectatorLisa:
I continue to pray for you nightly. I wish you didn’t have to wait until Tuesday to find out: hopefully you get a call sooner. The stress of not knowing is awful! Stay strong and keep fighting!Kris
February 21, 2012 at 12:33 am in reply to: Update on my husband after failed ERCP – Devastating news #57957kris00j
SpectatorOh, Phil, I am so sorry to hear. You’re right, this cancer is awful. They are having new trials opening all the time. Did you check the trials and alternate therapy page?
I don’t have words for you other than I’m sorry for your news. I hope you find some answers that will help Gerry. My thoughts and prayers are with you.Kris
kris00j
SpectatorLisa: Sending all my energy and prayers that the test show it’s NOTHING but another scare.
Kriskris00j
SpectatorThank you Jim and Cathy. I will accept as graciously as possible. Which in my case is hard, as I’m so darned independent!
I don’t like this stupid condition as I have to rely on friends to help me… and that’s hard for me to do! But I’m trying to learn.
So thank you and barring bad snowfall I will give Kim and Denise a hug for you.Kris
kris00j
SpectatorLeeAnn:
Thanks for the post. It’s nice to hear about people that have had successful resections.
And Lainy: Thanks for the offer. My parents will be flying up for the resection but not for the embolization.
I know I shouldn’t worry as much as I am, but it seems nothing about any of the procedures or surgeries they do are “normal”. By normal, I mean they are always having to turn left to go right when it comes to my situation. I just would like for one thing to not have an additional complication!
It is so tempting to put this all off, as I am otherwise healthy. I have very little discomfort, in the scheme of things. Very little pain. And since they stopped chemo in Nov. I haven’t had to go to the hospital at all! (Yep, it’s the little things)
But I know I need the surgery. And if the tumor starts growing again I’ll be in trouble with operability again. It doesn’t make it easier emotionally, tho. I am putting my life into not one but 2 doctor’s hands within weeks, and what I heard yesterday is scary. I would love to tell them to wait. Maybe the nanoparticles I’ve been reading about will help? Maybe the tumor will keep shrinking and disappear? And MAYBE I’m wishing for too much, but the brain won’t stop asking.
I know I have to trust that my doctors know more than I do, and have weighed the options and the dangers. After all, this is what they do. But it doesn’t seem to get thru to my brain.
Kriskris00j
SpectatorSally:
Definitely contact the doctor. This sounds like severe side effects. Hopefully he can find out what the problem is. My chemos were during warm weather so I don’t know about the eyes, but this sounds pretty severe.
I hope he can straighten this out and you get some answers. Unfortunately, maybe the Xeloda/Ox cocktail is too much for her system.
I hope she finds some relief soon.Kris
kris00j
SpectatorI met with the radiologist today and she said this is, while not common, done more often than I know. I said no one had answered this post saying they had it done. But I digress:
The embolization is set for March 5th. Under normal circumstances (those who know me, know I am NOT normal) she would go in thru the left vein and block it off. Well, the left vein has 3 branches, 2 of which look like they’ve already been clipped. The remaining branch is so skinny and snaky that she doesn’t feel she would be able to puncture it and complete the embolization.
Now here’s the scary part.
She plans on going thru the right branch of the vein and following it until she gets into the left branch and can close it off. If she damages the right side in any way I will lose blood flow to the good part of my liver.
I had 3 radiologists try to do an embolization this past summer. 2 failed. Dr. Brown is the one who succeeded. And my surgeon says she is the best. I told her he said that and I trust her, but I’d be lying if I said I wasn’t scared. One mistake and there’s no reason for a resection…
I just have to think positively and trust that God is watching over me. But it’s hard to do.kris00j
SpectatorLisa:
Good luck next week. I will keep you in my prayers.Kris
kris00j
SpectatorTiff:
I am so happy to hear the good news! I just knew you were going to post positive news!!! I’m so happy for you and I bet you are on cloud nine!
Good luck with a search for a 2nd, 3rd or 4th opinion. Whatever it takes until you are comfortable with what you are being told.
I know living with this is scary, but just remember 2 months ago I was inoperable and now I’m looking at a resection in the near future. So you never know.
Kriskris00j
SpectatorHey, I wasn’t asking! I just wondered if I would meet anyone there that I “know”. I haven’t even met Kim or Denise yet.
But if you want to mail me a donation I will get it to Kim or Denise. Better yet, if they have easily mailable prizes I’ll put you in for them!
I’m a pretty happy, semi-outgoing person, but going there alone… well… that will take some thought from me.
Kriskris00j
SpectatorAre you going to the fund raiser on Sunday? It’s a little expensive for me, but I’m thinking of going. (I realize $50 isn’t much, but it’s my week’s food charges!!)
kris00j
SpectatorJim:
I am so happy you have found all these doctors who you love so much and have so much faith in! I am sorry you have to go thru another bump in the roller coaster journey, but happy that you and your doctors are so certain of your next steps.
I also hope for a non-cc related mass. But I’m hoping it’s benign!! Second place, I hope it’s a primary… always hoping the cc hasn’t spread.
Maybe if I end up in NY around the 10th or so I’ll stop in and meet you and your wife! If I’m at the main hospital for S.K. it isn’t far.
Kriskris00j
SpectatorTiff: You’re next to post!!! We are waiting to hear! Fingers, toes, and eveyrthing possible crossed for you!
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