lainy

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Viewing 15 posts - 421 through 435 (of 10,019 total)
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  • in reply to: Port in #92233
    lainy
    Spectator

    You are lucky that if he was going to sing at leas the had a nice voice! LOL Not ever heard of that but like the idea and attempt. I hope the soreness eases up and wishing you the very best.

    in reply to: Back in the hospital #92218
    lainy
    Spectator

    YEA Kris! Nothing like being home and being with your lil baby. Better than anything the Docs can do! Keep on feeling better and better. I just knew you could do it! Yes, those RX can be worse than any of it and hope you get to clear of those quickly. Thinking of you!

    in reply to: Update on wife’s CC #90850
    lainy
    Spectator

    Dear Frank, I am so very sorry about Heidi. Please accept my humble condolences. The following poem could be from Heidi to you:

    If I should be the first to go,
    And leave you alone, my Dear,
    Let not your heart be lonely,
    Nor in your eyes a tear.
    Grieve not for me, my Darling,
    I’ll not be far away,
    With petals of love and tenderness,
    I’ll pave for you the way.
    To join me in our sanctuary,
    And ne’er again we’ll part.
    Grieve not for me, my Darling,
    I live within your heart.
    Take joy again in living,
    As you did in years gone by;
    God knows what of he’s doing,
    And not be questioned why.
    Grieve not for me, my Darling,
    My life with you on earth
    Each moment filled with happiness,
    And love so few be worth.
    I’ll be waiting for you Sweetheart
    Where skys are ever blue,
    With eager heart and open arms
    Patiently, for you.
    Grieve not for me, my Darling,
    May faith and my love keep.
    Your soul filled with contentment
    Eternally, I sleep.

    in reply to: Hello from London Uk #92197
    lainy
    Spectator

    Lydia, welcome to our remarkable family and the best place to be for CC support. Looking forward to hearing more about your husband. Anyone’s experience can be good advice for another’s CC. Take care and wishing you the very best.

    in reply to: My Mum, 49yo in Australia #89894
    lainy
    Spectator

    OOPS, I read this one 2nd but such good news it is! Sending prayers, good vibes and lots of juju. I know you will let us know how Mum gets along and wish her a Happy Mother’s Day.

    in reply to: Alternative therapies: what’s the harm? #92025
    lainy
    Spectator

    Tiah, I so agree with you. Hope you are doing well and just wanted to pop in here and say Hi to you! Take care!

    in reply to: Back in the hospital #92213
    lainy
    Spectator

    Kris, hospital hair can be lovely! We are almost twins as I have a beautiful scar down each side of my head now. Going to dinner tonight with one married set of Grands but will wear a Cap so that diners around me don’t get upset. I think we should go to that horrible Chinese restaurant and both go bare headed. That will teach them to serve such awful food. Glad you are having visitors.

    in reply to: Newly diagnosed #92152
    lainy
    Spectator

    Dear Jill, I apologize but somehow I never saw your post. I hope you will consider another opinion as we are big believers in 2nd and 3rd opinions due to the rarity of this Cancer. How large is your husband’s tumor and where is it located?

    in reply to: Back in the hospital #92208
    lainy
    Spectator

    Kris, well, at least they did check for that. My gosh, girl, you sure don’t do things in a small way! I am sending the best vibes ever and am with you in spirit. Looking forward to the next report. Love you!

    in reply to: Back in the hospital #92205
    lainy
    Spectator

    Come on, Cookie, you know you have to get better for Stazi and for us. Kris this sounds so like the blood infections that Teddy used to get. I feel stupid asking but have they collected a blood culture? After the culture showed an infection they put him right on Levequin and bada bing bada boom the healing started. Only dif. is he did not cough. I am doing everything in my power to wish you a turn around! Thinking of you and sending hugs, { } { } { }

    in reply to: Sean’s intro #92204
    lainy
    Spectator

    Dear Tim and Julie, WELCOME to the best place to be for CC support and for joining our remarkable family. I read your post with happy tears as Sean’s journey has been a Miracle! THANK GOODNESS FOR YOUTH, yet it is always so upsetting when CC hits someone so young. You all did all the right things and we hope to hear good reports from here on. Below is a site you may find helpful and please do keep us updated on Sean’s progress. We are so very glad you decided to join us! I had to give a little chuckle as my husband who “relocated” from CC has 2 kids named Tim and Julie!

    http://cholangiocarcinoma.org/newly-dx/

    in reply to: Update #92189
    lainy
    Spectator

    Dear Sharon, I hope so too. Will be sending lots of prayers, good vibes and juju! Please let us know how he does. I would think it may help quite a lot. Sure hope so!

    in reply to: New Diagnosis and Very Lucky #92168
    lainy
    Spectator

    Dear Brian, welcome and know that you have come to the best place to be for CC support. I feel that you can tell your wife and daughter the truth as they deserve to know so that they can feel a part of healing and helping you. We also have a booklet that explains and answers questions and you may find that very helpful. We do NOT listen to statistics as everyone is so different and many seem to beat those numbers. We also try to remain realistically optimistic. One more rule of thumb is to get more opinions. You want to make sure that you give yourself the opportunity to have a try at different options for treatment. Many Doctors see things differently. Below is a site you may find helpful and please do keep us posted on your progress as we truly care.

    http://cholangiocarcinoma.org/newly-dx/

    in reply to: New to site – 2.5 years living with Cholangiocarcinoma #92186
    lainy
    Spectator

    Dear Annie, welcome to our remarkable family and the best place to be for CC support. Don’t worry about multiple postings as our Gavin loves to erase! I am really happy that you are returning to the USA as I think you will find we are more advanced in treating CC therefore giving you more options. Hang in, hang on and please keep us posted on your progress as we truly care.

    in reply to: It’s a long story — I have an ask… #90820
    lainy
    Spectator

    Jim, I am so very sorry to read about Mary but know that your wonderful attitude is what is getting you both through this journey. Giving in, not up is perfect and will allow you to enjoy what ever time is to be given. When my Teddy went in to Home hospice he told everyone we were on our Honeymoon! You will never look back at would haves, could haves you are doing it all with grace and dignity! Wishing for Mary to be comfortable and keep on making good memories as those are the ones you will remember in time. We are here for you and please keep us posted on Mary’s progress.

Viewing 15 posts - 421 through 435 (of 10,019 total)