lainy
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Dear Brigitte, I want to wish you the very best results! Usually I cross everything even my eyes but on the 11th I am having my first cataract removed so cannot cross that eye. Hope one eye will help! I will be thinking of you and praying for the best. Actually I think you will feel the spirit from all us on the 11th.
Dear Hopeseeker, Welcome to our remarkable family and the best place to be for CC support. We know when you hear the word Cholangiocarcinoma it is a whole lot to take in at one time. Here are a few items that may help you through the first leg of the CC journey.
Knowledge is the most important tool to begin this fight. When you have a chance, read some of our Members posts or if you have a question you can use our Search Engine at the top of the page. Type in a word or 2 and many posts will appear on that subject.
Make sure that the Oncologist you choose and the Hospital for treatment, are very experienced with CC. Don’t be shy about getting 2, even 3 or 4 opinions. This is a very rare Cancer and no Doctor will mind you wanting more opinions. Keep a folder of all test and LAB results.
Here is a site you may find helpful: http://cholangiocarcinoma.org/newly-dx/
You and she are doing all the right things. Good that she is already grazing all day on food instead of 3 big meals. I am hoping and wishing for her to get a good report on tumor markers.
Please do keep us updated on your Mother-in-law’s progress as we truly care.Marion, thanks a bunch, I totally forgot. That will pay for us to cruise where the temperature is 35o!!!!!!!!!!!!!!!!!!!!
Dear Barry, Welcome to our remarkable family and the best place to be for CC support. We know when you hear the word Cholangiocarcinoma it is a whole lot to take in at one time. Here are a few items that may help you through the first leg of the CC journey. Knowledge is the most important tool to begin this fight. When you have a chance, read some of our Members posts or if you have a question you can use our Search Engine at the top of the page. Type in a word or 2 and many posts will appear on that subject.
Make sure that the Oncologist you choose and the Hospital for treatment, are very experienced with CC. Don’t be shy about getting 2, even 3 or 4 opinions. This is a very rare Cancer and no Doctor will mind you wanting more opinions. Keep a folder of all test and LAB results.
Here is a site you may find helpful: http://cholangiocarcinoma.org/newly-dx/
Please do keep us updated on Colin’s progress as we truly care.Dear Carmen, please make sure that the patient’s Doctor is aware of the saliva problem as he should know about it and would probably know what to do. Best wishes.
Dear Tiah, I am so very sorry to read about your Mum. She is resting comfortably and remember that even though she is sleeping she will feel your touch and soft whisper’s of I love you. I personally found that by releasing our loved ones to go to their peace it also helps us to better accept that journey.
Dear Anna, what a beautiful person you are and I am sure your Dad is so very proud of you! One thing I used to do was to keep our CC books on hand and when going to a Doctor like a GI, GP actually almost any, I would give him/her a book. It is surprising how many are still not in the know when it comes to CC.
Dear Spokanemom, FANTASTIC news. Looking for more good news in posts to come. News like this makes the whole family HAPPY!
Dear LOU , Welcome to our remarkable family and the best place to be for CC support. We know when you hear the word Cholangiocarcinoma it is a whole lot to take in at one time. Here are a few items that may help you through the first leg of the CC journey. Knowledge is the most important tool to begin this fight. When you have a chance, read some of our Members posts or if you have a question you can use our Search Engine at the top of the page. Type in a word or 2 and many posts will appear on that subject.
Make sure that the Oncologist you choose and the Hospital for treatment, are very experienced with CC. Don’t be shy about getting 2, even 3 or 4 opinions. This is a very rare Cancer and no Doctor will mind you wanting more opinions. Keep a folder of all test and LAB results.
Here is a site you may find helpful: http://cholangiocarcinoma.org/newly-dx/
There are quite a few Meds for Nausea and perhaps a change would do well for your wife. I know many feel that the more sick you are with Chemo side effects the more it is being effective. SO far nothing has been proven but it is a good thought.
I do want you to know that we have many members here who were DX with multiple tumors and Stage IV and they eventually went on to have a resection after chemo. Hang in and hang on this is quite a ride. Know that you are not alone we are all family here. Please do keep us updated on your wife’s progress as we truly care.Hi, Brigitte, wanted to wish you the very best for next Monday. Just let the tech know that your family here will not accept anything but good news! Yep! If it would all be that easy, right? Sending you all good wishes, vibes and hugs for some great news!
Red, Teddy did not have chemo but after radiation this happened to him. The ONC but him on B12 shots and what a world of difference it made. He had a shot once a month. You might ask the ONC about it and also make him aware of the extreme tiredness.
Dear Sandra, I am so sorry about your Mother and please accept my humble apologies. As to why people do what they do, I am still trying to understand. You just keep on being you and I am sure your Mother is very proud of you, her daughter.
I’M STILL HERE
I’m at your side each night and day,
In your heart is where I’ll stay.
You can feel, see or hear, I am not gone, I’m always near.
I’m the colorful leaves when fall comes round,
The pure white snow that blankets the ground.
I’m the first bright blossom you’ll see in Spring.
The first warm raindrop that April will bring.
I’m the first ray of light when the sun starts to shine,
And you’ll see that the face in the moon is mine.
I’ll whisper your name through the leaves on the trees,
And you’ll feel my presence in the soft summer breeze.
I’m the salty tears that flow when you weep,
And the beautiful dreams that come while you sleep.
I’m the smile you see on a baby’s face.
Just look for me, I’m every place!Dear Joe, I am so terribly sorry to read your post about Mom. You are an awesome son as we can tell by your posts and your love and concern for your Mom. Sadly It is normal to feel as you do. Has the ONC recommended Hospice to help Mom and the family get through this journey? They are of great help and they give you the time to spend wisely being with Mom. I am thinking of you often and am sending prayers, strength and love to help you all along. Make the most of what ever time there is and we are all behind you.
