lainy

We are very sorry to hear about your mom. You sound like a wonderful daughter and although your mom is not in your sight she remains in your heart and mind forever and will be guiding you from her new home. A home free of pain and disease.

I’m writing this from Heaven.
Here I dwell with God above.
Here, there’s no more tears of sadness;
here is just eternal love.
Please do not be unhappy just because I’m out of sight.
Remember that I am with you every morning, noon and night.
That day I had to leave you
when my life on earth was through.
God picked me up and hugged me
and said, “I welcome you.
It’s good to have you back again,
you were missed while you were gone.
As for your dearest family,
they’ll be here later on.
God gave me a list of things,
that he wished for me to do.
And foremost on the list,
was to watch and care for you.
And when you lie in bed at night,
the day’s chores put to flight.
God and I are closest to you…
in the middle of the night.
When you think of my life on earth,
and all those loving years.
Because you are only human,
they are bound to bring you tears.
But do not be afraid to cry:
it does relieve the pain.
Remember there would be no flowers,
unless there was some rain.
One thing is for certain, through my life on earth is over.
I’m closer to you now, than I ever was before.
There are many rocky roads ahead of you
and many hills to climb;
Together we can do it by taking one day at a time.
And now I am contented….
that my life was worthwhile.
Knowing as I passed along the way
I made somebody smile.
When you’re walking down the street
and you’ve got me on your mind;
I’m walking in your footsteps
only half a step behind.
And when it’s time for you to go….
from that body to be free.
Remember you’re not going…
your coming home to me.

Hi Buggsie, yes it is all really scary until you start and then learn so much that you become the pro you never wanted to be. To me, it sounds like your doctor really has everything under control. Teddy has only had radiation and the only side effect was extreme tiredness towards the end of the treatments. It lasted about 2 months but during that 2 months he just rested and every few days seemed to get a little stronger. Sorry can’t help out on the chemo. You are doing great and just have hope and stay strong.

You are NOT abnormal. Just drives one crazy that we all have to put up with so much then we get the Nurse Ratchett!!!! They have no business changing doctors orders. I give you permission, if you ever get her again to call her Ratchett!!! Good luck on the PET.

Dear Peanut, we are so very sorry to hear about your mom. The important thing for now is that she is not in pain. The biggest problem with CC is that it sneaks up on you and a lot of people are diagnosed too late. There is nothing more you can do for her than you have already done by being a loving child and being by her side through this nightmare of a journey. She knows how you feel, really she does and now is the time to just let her know you are still by her side. Our thoughts and prayers go out to your mom and your family.

OK. I just read the Issels web page and it is very much like a treatment Center we have here in Phoenix. Mmmm wait I have to find the name….www.Envita.com. My daughter’s boyfriend was DX with Lymphoma 2 years ago. He went to Envita and was very impressed. They believe in intravenous Vitamin C. He was happy there but after a few months of treatment found a Natural Pathic Doctor near him that did the same thing for 1/2 the price. Insurance will not cover this although most N.P. doctors will work with your Oncologist. Blake still goes to her, is in remission and went through chemo beautifully while taking these treatments. My daughter just started with the N.P. for under active thyroid. Bottom line with my thoughts, only…. I don’t think you need Issel if you can find a good N.P. doctor in your area and ask about Vitamin C Intravenous. Go on line and read about Envita. Now, I know our key words are hope and attitude but I have to be honest, we know of no one with CC that tried it so really can’t say if it works with our particular little monster. Anything is worth a try and if you decided to come to Phoenix….we are here! Please keep us posted.

Hi Dianne, good to see you! I don’t know how long ago you had the radiation but it does keep on working for several months. Not sure why you have to wait so long for the PET results as we always get them in a week. Isn’t that the worst? I think the worry about test results just about tops anything. We just got Teddy’s latest results on PET and LABS and they were good so hope you follow in our footsteps. Please keep us posted as it is good for you and good for our Board.

Tara, you are at great hospitals and wow, your dad really became a CC poster kid. This is such a monster, isn’t it? We just don’t know much about it or how it will react so I always say, the only thing we really know is that we know nothing. You are already doing a lot of reading and researching and that’s a good thing. Right now the best I can tell you is to stay strong, have lots of hope and don’t forget to be good to yourself. Its a long journey and we are here for you so please visit us often.

Hi Tera and welcome to the best little club in the world that no one hopes to join. My husband had a Whipple 4 years ago and the CC came back a year ago where his duodenum used to be. First he had radiation then cyber knife and now and it is gone. Yes, everyone is different but if my doctors were perplexed I would try to get another opinion. We are fortunate that the CC has not gone to Teddy’s liver and hopefully will stay away a long time now! Think about that other opinion and please keep us posted. Was the CC confined to the bile duct at the time of the Whipple? Please keep us posted.