lainy
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Hi Tony and welcome again. You have a great attitude and that will get you to where you want to be! Not sure about the chemo being more disastrous than the CC but you really would help yourself by doing the Natural stuff along with the chemo and it may help you get through the chemo less unscathed. You defied the odds once and you will do it again! Keep us posted!
I think you have a right to be nervous and anything else you want to be! You can be all that and still have a good attitude, which I believe you do. Yes, keep asking until you are confident of the answers! My Teddy is doing ok. He just finished his cyber knife treatments. His CC was in the bile duct valve and then returned where his duodenum used to be. You can see my posts when you want something to do. Good luck with the ONC. Oh, I know there are some board members in your area and I am sure you will be hearing from them also.
It appears you have read our board well, so I will simply say welcome and sorry you had to join! The one thing we know for sure about CC is that we know nothing! Its bad enough to fight this but worse to feel like you have blinders on while fighting. I guess at this point I would send my records to a 3rd party and see what they say and then go from there. I am sure you will get some very sage advice here from others as my husband has had radiation and cyber knife but no chemo. There is a protocol with CC and it seems most have to have chemo or radiation first prior to surgery. Glad to hear your attitude is fighting mad as that is what it takes and as we say, Attitude is everything. Please keep us posted.
Hi Celeste and welcome to the best little club in the world that no one wishes to join! Not sure about the chemo stuff as my husband had radiation and cyber knife. I always feel if one is in doubt about what is happening to them and for them it never hurts to get a second and third opinion or 20 opinions until you are completely satisfied with the responses. I do know you will be hearing from a few more experienced members on this. You have come to the right place and please keep us posted.
Well, Mary, I guess the only thing we know for sure about this cancer is that we know nothing for sure!!! I can relate on the stent changes. Though at this time Teddy’s are for the kidney I think at 76 he would rather loose the kidney than go in every 2 months for a stent change. Decisions, decisions. Just a suggestion, why not just get one more opinion? For sure, CC redefines our whole life, yes????
Dear Chris we are so very sorry to hear of John’s passing. You know that he is in a much better place, free of pain and suffering. How wonderful that he had his beloved wife and amazing new child to help him to the end of this painful journey. He will never be far away and will always be looking down from his star in the heavens to watch over his awesome son. Our prayers go out to you and your family.
Welcome, Tom, to the best little club in the world that no one wishes to join!
You will fine the most courageous and caring people right here! You are the 3rd person in the last week, in the 20’s to have this monster of a cancer. We wish you the very best and feel free to vent, ask or brag! Please keep us posted.Jeff, we have NEVER thought of the bloat being inflammation instead of just bloat! What a novel idea! T is going to try the IBU. I tell you man, you are just something else!!!! T is very happy the Cardinals won yesterday!
Oh my gosh, Jeff. If there is one thing we can always count on in this world its you. I shall now be prepared if Necrosis happens. So far so good just tiredness for T. My brother is visiting from Chattanooga and T feels bad as he can’t do to much. He is having a lot of digestion problems (bad bloat and extreme gas) and we are not sure if its from the CK or the stent for the ureter. But we see the Oncologist Friday. Good as usual to see you come on as it is always a signal that you are still fighting strongly. We send our love to you!
Hello Tiffany and welcome to the best little club in the world that no one wishes to join. It sounds like you are doing ggood and we are all happy about that. I do believe that you are the youngest person we have had on the site. Of course we don’t know all the ages but it seems you are. Sounds like your “cocktails” are working well. This is a superb spot to ask questions, vent and even joke. This has to be a board with the most brave, caring, loving people in the world! Please keep us posted.
To Darla, Joyce, Pauline and Sue: Fortunately I cannot know the emotions that you feel since Teddy is still with me. I have watched your posts and just felt the urge to put this poem in one more time, that I just love. What more can I say as I have not walked in your shoes. I have thought of you girls often and hope this will mean a little something to you.
If I should be the first to go,
And leave you alone, My Dear,
Let not your heart be lonely,
Nor in your eye a tear.Grieve not for me, my darling,
I’ll not be far away,
With petals of love and tenderness,
I’ll pave for you the way.To join me in our sanctuary,
And ne’er again we’ll part,
Grieve not for me, my darling,
I live within your heart.Take joy again in living,
As you did in years gone by,
God knows of what He’s doing,
And not be questioned why,Grieve not for me, my darling,
My life with you on earth,
Each moment filled with happiness,
And love so few be worth.I’ll be waiting for you Sweetheart,
Where skys are ever blue,
With eager heart and open arms,
Patiently for you.Grieve not for me, my darling,
May faith and my love keep
Your soul filled with contentment,
Eternally I sleep.Hi GK. Mu husband finished his CB Dec 22nd and the only side effect has been tiredness. Did your dad get real tired and if so do you remember how long it lasted? Otherwise mine is doing just fine. Oh, and our radiologist said the tumor will take time to shrivel up and eventually will just be a piece of dead tumor. It will take a few months but perhaps that is what your ONC saw.
Welcome to the best little club in the world that no one wishes to join! From the tone of your letter I would say you are already on your way to beating the odds!!! Attitude is everything and you absolutely have a fabulous attitude. I would imagine having that little girl is going to help as well. MD Anderson, I understand, is one of the best. Keep up your good work and please keep us posted!
Hello Charlotte and welcome to the best little club in the world that no one wishes to join. Sorry to hear about your husband’s diagnosis. The only thing we know for sure about CC is that we do not know enough! Everyone is different. But we all feel that you get second and if needed third opinions. MD Anderson is one of the best. You will see that reading up on this helps and if you have questions just go to our search engine. As caretakers our emotions run the gamut of being totally stunned to becoming the best patient advocates.
I started a new post to you so that it would not get lost. Stay strong, real strong and keep us posted. We are here for you to ask and to vent.
