lulu07

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Viewing 8 posts - 151 through 158 (of 158 total)
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  • in reply to: Introduction #33874
    lulu07
    Spectator

    Gavin

    Thank you for your welcome. I have already found this site to be informative and supportive I too am so glad I found it. I did sign up for a Cancer Care group but they did not have a cc group so they grouped me with women over 40 with cancer. Although they are very supportive and caring most are not familiar with cc being with others who are means a great deal to me.

    in reply to: Brother diagnosed #33928
    lulu07
    Spectator

    Bean

    You have probably found the best place to be at this website. I was diagnosed with cc october this year 5 days before my sons wedding. I have done much research on the web really nothing compares to the information that you will receive here. The people are wonderful, sharing I have read some miraculous stories. Posts on this site give me hope and determination to beat this everyday and I will not stop. My cc is presumed stage IV. I’am going for a second opinion. My thoughts and prayers are with your brother,you and your whole family.

    in reply to: Introduction #33868
    lulu07
    Spectator

    Kay
    Thank you so much for the infromation. I’am so sorry to hear that your dad has had a reoccurence. Did he originally have surgery to remove the tumor? I’am on my first cycle and have had 3 treatments with the Gemcitabin/Cisplatin so far no side effects. Did your Dad have any other treatment-radiation? is he a candidate? Being diagnosed just in early October I have so many? my oncologist is caring, compassionate but still I have ? The only thing I don’t question is my will to live. I will keep you and your Dad in my prayers.

    in reply to: Introduction #33866
    lulu07
    Spectator

    Sorry Lainy you had asked where I am from I live in NJ on the border of PA. in a town called Phillipsburg. Easton PA is right across the Delaware. Philadelphia is a little closer than NY which is where I am being treated now. I do not have any travel limits on where I would go for a consult. Maryland where John Hopkins is not to far only about 3 1/2 to 4 hours so I would be interested in any referrals. I saw a local oncologist yesterday not my Dr. from Sloan and he said that I should get a second opinion right away. He said being that I’am fairly young with no underlying medical conditions that I should not be satisfied with the standard of care. He feels that I should be considered for trials or other treatment options. I realize with the holidays just days away the posting is slow but whenever anyone gets back on I would be interested in learning about Drs. treatments etc… Thanks to all have a very Merry Christmas!

    in reply to: Introduction #33865
    lulu07
    Spectator

    So sorry to hear that your moms sugrgery could not be completed. I hope this finds her feeling a little bettler and less sore. I pray that her chemo will be successful. You sound like a wonderful caring daughter your mom is lucky to have you. I have a daughter she is my rock she has just been unbelievable in the face of this horrible disease. I would be interested to learn how your consult with the Mayo Clinic turns out. I will keep you and your mom in my thoughts and prayers.

    in reply to: Palliative survival timeframes? #33855
    lulu07
    Spectator

    Rick
    Thank you for posting your question regarding survival rates. And thank you to everyone for posting their thoughts. When you look on line and do research it really is very grim. I am filled with hope and determination when I hear stories from people who have been diagnosed and are still fighting.

    in reply to: Good CT scan, yayy! #33760
    lulu07
    Spectator

    Wonderful news and very inspiring to all. Iam new to this site and already feel empowered by all of you. A very Merry Christmas to all!!

    in reply to: Introduction #33863
    lulu07
    Spectator

    Thank you so much for the replies. I’am so appreciative. I live in NJ and have been having my treatment at Sloan Kettering in NY. I was so close to being a candidate for surgery that when my husband and I were told it was not being considered we were devastated. We have been reeling from that decision. I have three children-wonderful children the youngest 20. I’am scheduled for a CT scan after 9 weeks of chemo that will be sometime in January I believe the third week i was diagnosed in October had a stent internalized for removal of bilirubin in very early November my wedding anniversay actually can’t say I remember to much of that day. I have had no problems I feel like myself no pain, no nausea, no fatigue I’am tolerating chemo well my energy level is good labs have been good. I feel like I’am getting excellent treatment from Sloan but am extremely interested in a second opinion I have all of my discs from my studies and have all labs, consults, etc… Sloan has told me they will make all treatment options available to me being that I’am healthy and have no underlying medical conditions. They do not believe I am able to have radiation. I have been looking into Fox Chase Cancer Center in Philadelphia I live in western NJ and right now it is taking about 1 hour and 40 minutes to get to NY without much traffic. Fox Chase is affiliated with a local hospital Hunterdon Medical Center which is about 30 minutes from my home I wonder if they can offer all treatment options of the larger facicilities? I’am ready to fight and give this all I have and more. My attitude has been good I do have some very bad days not all day long but times where I just sit and weep. I know others are in the same situation I’am and that is why I’am so grateful to have found this site. Thank you all you have made my day.

Viewing 8 posts - 151 through 158 (of 158 total)