mallieg

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Viewing 9 posts - 1 through 9 (of 9 total)
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  • in reply to: He’s given up… #17481
    mallieg
    Participant

    Hi Carol,

    At times my Mom will become distant…especially when she’s in pain or gets bad news. When this happens I give her space but not before I tell her how I love her and how amazing she is for having to go through this terrible illness. I also try to make things normal for her…by talking/ BSing about everday things….just like I would before she got sick. We can only imagine what goes on in our loved ones minds that are sick. Support, Love, Patients,Kindness, and a sense of humor, seems to work for my Mom.
    I hope this helped you. I pray for your husband stays strong as do you.
    Today, My Mom had her second external drainage bag attached. Two bags and four internal metal stents…which are not working anymore (metal stents)…she still makes us smile.
    Seeing a loved one suffer in pain is the hardest thing anyone can experience. Please stay strong…for your husband will seek your strength and guidance!!
    Love and Happiness…Alison

    in reply to: one year ago #16084
    mallieg
    Participant

    Dee,
    My heart goes out to you and your family. I pray that God will give you strength. I believe your mother is with you and will always be. Love is forever!!
    My Mom has been fighting this terrible cancer since March 06. I can’t nor do I want to imagine life without her. However, it’s always in the back of my mind. Reading your message really affected me…It sounded like something I would write.
    I guess, just know that there are people who’s hearts ache too. Hopefully, one day we will all be reunited with our loved ones.

    in reply to: Fevers #14985
    mallieg
    Participant

    Hello,
    I just wanted to thank you all for your responses to my post. My mom is doing much better and her blood work came back okay. She was able to get her chemo treatment on monday.

    Jmoneypenny…I wanted to answer your question about tolerating chemo. My mom has actually been tolerating chemo very well. Her doctor has told us several times that he is very impressed with how well her body is tolerating the treatments….especially for 9 months straight. However, she does get Procrit injections. They really help her maintain her strength and energy. Has your mom had procrit before? It really will help with her anemia.

    in reply to: Hello to all my name is Celia, #14979
    mallieg
    Participant

    Hello,
    I just wanted to reiterate Jeff’s thoughts. Jeff, I found your message very touching and Very True!! It is so important to stay hopeful and have support. It helps on so many levels. Keep in mind, everyone’s body is different and has different tolerances. Life is full of unpredictable situations that we have no control over. What we can control is our attitude.
    My mother, stage IV, has been fighting this cancer for about 10 months. She has been on chemo for 9 straight months. She absolutely amazes me and so many others with her strength and hopeful attitude. Everyone has their good and bad days. Just remember to try to laugh and love as much as possible…and above all have faith and pray. These things have truly helped my mom and our family in so many ways!

    God Bless! Alison

    in reply to: Gemcitabine with 5-FU Push #14815
    mallieg
    Participant

    Jeff,

    I wish you the best of luck with the radiation. Is the radiation going to be IMRT…(Intensity Modulated Radiation Therapy?) Where will you be receiving your radiation? Some of my Mother’s liver tumors are large and cause her a lot of pain at times. I have been doing some research on this therapy and wondering if it would help. Have you been experiencing fevers? My Mom was just in the hospital for fevers and they could not find any infections. The did a bunch of tests and could not give us a solid explanation. They just said it was because of the cancer in her liver. We are wondering why now? Considering she had the tumors for quit sometime and they have shown shrinkage.
    You have been so helpful to us….just thought I would ask a few more questions : )
    I hope this treatment works wonders on you!!
    Alison

    in reply to: Introduction #14738
    mallieg
    Participant

    Jeff,

    Thank you so much for sharing your story. I did not think you were rambling at all. You were very informative, with a lot of good advice that I will share with my Mother. Again, I wish you all the best and Thank you for all of your input!!

    Alison

    in reply to: Introduction #14731
    mallieg
    Participant

    Hi Jeff,

    First of all, I wish you all the best and pray for your continued progress! I do have a few questions for you. What hospital has been treating you? It sounds like they have been doing a great job. Also, was your cancer metastasized when they preformed the surgeries? Finally, have you had any radiation? Thanks Jeff! My mother was diganosed March 06 at stage IV, so I’m trying to get all the info I can! Her story is in the Introductions too.
    Best of Luck..Alison

    in reply to: Gemzar & Cisplatin #14672
    mallieg
    Participant

    Thank you all for your input!! It really helps to know people in a similar situation when dealing with this terrible disease. I will address these issues with our oncologist at our upcoming appointment.

    Thanks Again, Alison

    in reply to: Hello Everyone #14706
    mallieg
    Participant

    Hey jules,

    We are located in Cleveland, OH. Our oncologist, Dr. Afshin Dowlati, is actually the doctor who is heading the international trial our mom was participating in. It was his recommendation to start the Gemcitabine and Cisplatin next. He has a number of follow up drugs to try if or when this combo fails to show positive results. We have also been doing our own research. This site has helped us so much, not only in our research but emotionally as well. It is so helpful to see that there are many others out there fighting this disease with us. Thank you for all of that info!

    Alison & Mike

Viewing 9 posts - 1 through 9 (of 9 total)