marions
Forum Replies Created
-
Posts
-
Julie….possible recurrence. This is a good example of specialists difference of opinion and how important it is to have a good “team” by your side. Yeah on the good outcome.
Treatment or not for Lung nodules can be confusing, but – as so in your case – most often they are watched only for changes in size. Great news.
Spine… Radiation can take care of it. I am scheduled for spinal radiation this coming Monday. Not yet sure as to how many cycles I am scheduled for. Perhaps we can share experiences.
MDS – I am learning from you. I want to believe there is some reason other than recurrence of the currently seen nodule. Oh, these rare diseases….always a puzzle.
One thing I learned since the short time of my diagnosis with a different cancer is to not think too much until clear answers are presented. Already you have conquered so much that I feel quite hopeful for this to turn out well
Regarding CCA: the best of all – no evidence of recurrence. Can’t get much better than that.
Tidal wave of good wishes heading your way.
Hugs
MarionImportant update: FDA – The Expanded Access Navigator
Each one of you has touched my heart in a special way. Words cannot express my feelings for you all.
Tearfully and immensely grateful to read your touching words of love, encouragement and support.
Hugs and love
MarionKris….don’t have much to add to Mary’s posting other than many factors can influence rise and fall of the CA 19-9 marker. The most important issue is the long term trend – up or down. In your case it may take some time to regulate. We tend to get stuck on CA 19-9 because it is a concrete, a number. Do you have a CT coming up?
Hugs
MarionThank you all. I am touched and overwhelmed by your outpouring of love and caring. What a beautiful board this is.
Of course, I will stay in touch and of course I will be checking the board, daily. We must continue to unite in the fight against this disease, and so we will
Hugs and love,
Marion
Joviony…..virtually same procedures, one uses chemotherapy drug whereas the other radioative beads.
1. Chemoembolization kills tumor cells by blocking the blood flow to the tumor and keeping chemotherapy drugs near the tumor.
2. Radioembolization kills tumor cells by blocking the blood flow to the tumor and keeping radioactive substances near the tumor.Perhaps your physician can be more explicit with his explanation.
Hugs
MarionHello, Wim, welcome to our special group of people touched by this cancer. So sorry to hear of your Mom’s pain following stent insertion. Hoping it will have eased by now. In any case, make sure to report to the physician any changes i.e. fever as well as an increase in pain.
Your Mom should feel significantly better. Her bilirubin will drop and the yelowing of her skin color will disappear, but give it some time. Skin takes a bit longer than the yellowing of her eyes, which can be gone within hours.
The nausea should decrease as well. It’s very difficult to predict life expectancy as it varies from person to person, but I would not focus on it. This cancer can be treated similar to that of a chronic disease, your Mom very well be around to talk about it in years to come.
I realize that surgery is not possible at this point, but what treatments have been offerd to her?
Hoping for others to chime in as well, as the collective wisdom of this board derives from the hundreds of members sharing and advising us all.
Hugs
MarionFay…..your Mom is doing fantastic, couldn’t be more thrilled to read your posting. Physicians are people, some have good manners whereas others do not. Try to not take it to heart, the fact your Mom is doing well only attests to the fact that this disease can be treated. Who knows what will happen next year or the time to come? For all we know, your Mom will be dancing.
Hugs
Marionpositivity……tons of postings on Megace. It appears to help some and not do so well for others. Basically, it is the synthetic form of cannabis.
All drugs contain substances we could do without, but the way I look at it:
What is the most important reason for using a specific drug? Does it achieve the overall goal of what I am looking for?Hugs
Marionpositivity….have you tried the “search” function by entering Cryosurgery? It’s been around for quite some time and has been used for CCA treatment as well.
Hugs
Marion
