MaryP
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After 3 cycles of Xeloda, the CA19/9 marker seems still elevated and even higher than earlier results. Doesn’t seem like the chemotherapy is working for mom. Sadly palliative care with morphine seems the only route forward now…
Regards
JohnyHi Mary,
As always, thank you so much for your suggestions and references. Very helpful indeed. Will check with her oncologist on the nebulization option.Warm regards
JohnyHi Michael,
My mom’s (stage 4 ihcc diagnosed 3 months ago) is having similar bad nausea since she started on oral chemo with Xeloda (2nd cycle on going now). Emeset (Ondancetron) prior to her meals helps somewhat. You may want to consult your oncologist on using that.
Another common symptom she says is that she gets nauseated when drinking water. So to maintain her fluids we try to give lime juice or any other citrus fruit juices instead of just plain water. It helps her avoid nausea. Ginger (even chewing raw, though it will be a bit pungent) helps too. Hope these tips might be of help to you.
Hope your mother is able to manage her nausea better.
Wishing you holiday season greetings in abundance…
Warm regards
JohnyHello All,
Seems like the Ultraset (tramadol+paracetamol) tablets twice daily regimen is doing the job for now and containing her pain. Apart from nausea as new side effects from the Ultraset, it’s a bit better now….Guess the key is to figure out the right dosage and med for the stage of pain and for each patient this seems to be unique. Keeping higher energy reserves (regular protein supplements etc) also does seem to help with pain management..
Regards
JohnyDear Mary
Her doctor had mentioned sometime earlier (when the pain was milder) that it might be her tumor pushing the diaphragm against the nerve with sensory receptors in her shoulder.But as you suggest, will check with her oncologist again for sure on this and on her pain management too.
Thanks again…
Kind regards…Johny
Dear Mary
As always, very much appreciate such a quick and detailed reply on my query.Thank you. Our oncologist has asked us to visit back in a couple of weeks, so mother can regain a bit more strength and thereafter he will evaluate her condition and potential start her on the chemo pill. He hasn’t yet told us if it will be Xeloda or something else. Will check with him on the rationale to discontinue her past chemo; perhaps it is to do with her tolerance and the balance with quality of life under chemo.
Thanks for the links to the Clinical Trials. Will reach out to some of the nearest hospitals listed there-in for further details.
Regards
JohnyHi Mary,
Thank you for your kind words and suggestion.
Will surely consult with th oncologistonc radiation for the bone metastases; and based on how mother takes the current (harsher) combination chemo regimen. Each day (sometimes even mornings and evenings) is different for her; sometimes in pain & weary while other times cheerfully chatting with her grand kids!
Kind regards
Johny
Hi All,
My name is Johny from India. My mom was diagnosed with IHCC last month during a routine scan. No visible symptoms. Came as a big shock to family, given she was reasonably healthy for her age (mid 70s). Stage IV with some spread to lungs and L4/L5. Tumor on liver seems non-resectable. Oncologist has started her on chemo to reduce the tumor on her liver (Gem and now Gem+Oxi) to improve quality of life.
Came across this CCA Foundation via google search and find it very informational. Thanks!
Regards
Johny
