MaryP

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Viewing 9 posts - 1 through 9 (of 9 total)
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  • in reply to: Mother passes on to a better place… #98129
    MaryP
    Participant

    Thank you Mary for your kind words and condolences.

    Warm regards
    Johny

    in reply to: Severe cough & mucositis #98058
    MaryP
    Participant

    After 3 cycles of Xeloda, the CA19/9 marker seems still elevated and even higher than earlier results. Doesn’t seem like the chemotherapy is working for mom. Sadly palliative care with morphine seems the only route forward now…

    Regards
    Johny

    in reply to: Severe cough & mucositis #98050
    MaryP
    Participant

    Hi Mary,
    As always, thank you so much for your suggestions and references. Very helpful indeed. Will check with her oncologist on the nebulization option.

    Warm regards
    Johny

    in reply to: Physical Symptoms of Advanced Cancer #97949
    MaryP
    Participant

    Hi Michael,

    My mom’s (stage 4 ihcc diagnosed 3 months ago) is having similar bad nausea since she started on oral chemo with Xeloda (2nd cycle on going now). Emeset (Ondancetron) prior to her meals helps somewhat. You may want to consult your oncologist on using that.

    Another common symptom she says is that she gets nauseated when drinking water. So to maintain her fluids we try to give lime juice or any other citrus fruit juices instead of just plain water. It helps her avoid nausea. Ginger (even chewing raw, though it will be a bit pungent) helps too. Hope these tips might be of help to you.

    Hope your mother is able to manage her nausea better.

    Wishing you holiday season greetings in abundance…

    Warm regards
    Johny

    in reply to: Shoulder & back pain management #97877
    MaryP
    Participant

    Hello All,
    Seems like the Ultraset (tramadol+paracetamol) tablets twice daily regimen is doing the job for now and containing her pain. Apart from nausea as new side effects from the Ultraset, it’s a bit better now….

    Guess the key is to figure out the right dosage and med for the stage of pain and for each patient this seems to be unique. Keeping higher energy reserves (regular protein supplements etc) also does seem to help with pain management..

    Regards
    Johny

    in reply to: Shoulder & back pain management #97867
    MaryP
    Participant

    Dear Mary
    Her doctor had mentioned sometime earlier (when the pain was milder) that it might be her tumor pushing the diaphragm against the nerve with sensory receptors in her shoulder.

    But as you suggest, will check with her oncologist again for sure on this and on her pain management too.

    Thanks again…

    Kind regards…Johny

    in reply to: No changes after 2 chemo cycles – seeking alternates if any #97794
    MaryP
    Participant

    Dear Mary
    As always, very much appreciate such a quick and detailed reply on my query.

    Thank you. Our oncologist has asked us to visit back in a couple of weeks, so mother can regain a bit more strength and thereafter he will evaluate her condition and potential start her on the chemo pill. He hasn’t yet told us if it will be Xeloda or something else. Will check with him on the rationale to discontinue her past chemo; perhaps it is to do with her tolerance and the balance with quality of life under chemo.

    Thanks for the links to the Clinical Trials. Will reach out to some of the nearest hospitals listed there-in for further details.

    Regards
    Johny

    in reply to: Introduction / Welcome #97660
    MaryP
    Participant

    Hi Mary,

    Thank you for your kind words and suggestion.

    Will surely consult with th oncologistonc radiation for the bone metastases; and based on how mother takes the current (harsher) combination chemo regimen. Each day (sometimes even mornings and evenings) is different for her; sometimes in pain & weary while other times  cheerfully chatting with her grand kids!

     

    Kind regards

    Johny

     

    in reply to: Introduction / Welcome #97655
    MaryP
    Participant

    Hi All,

    My name is Johny from India. My mom was diagnosed with IHCC last month during a routine scan. No visible symptoms. Came as a big shock to family, given she was reasonably healthy for her age (mid 70s). Stage IV with some spread to lungs and L4/L5. Tumor on liver seems non-resectable. Oncologist has started her on chemo to reduce the tumor on her liver (Gem and now Gem+Oxi) to improve quality of life.

    Came across this CCA Foundation via google search and find it very informational. Thanks!

     

    Regards

    Johny

Viewing 9 posts - 1 through 9 (of 9 total)
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