mbachini

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  • May 5, 2016 at 8:56 pm in reply to: Update on NIH Trial #78794
    mbachini
    Moderator

    Yes, that is right. Thanks Marion! They are doing everything as fast as they can to get everything and everyone back up and running! I am sure they will contact you Maria as soon as it is a go.

    Melinda

    May 3, 2016 at 3:23 am in reply to: Weight gain and bloating with chemo #92172
    mbachini
    Moderator

    I also gained weight being on Gem/Cis combo. I think it was definietly a combonation of everything…..the steroids, chemo induced menopause messing with hormones, lack of energy to be as active as I once was, lack of sleep…….and of course my Reeses pnut butter cup diet didn’t help either!!

    Melinda

    May 2, 2016 at 11:34 pm in reply to: Clinical trial working! #92158
    mbachini
    Moderator

    HI Cindy,
    That is such great news! Could you post the link to your trial and where people could look into it at? Thanks for participating in this trial and helping others to find hope!
    Melinda

    May 2, 2016 at 11:30 pm in reply to: ARQ-087 Clinical Trial : FGFR2 Tyrosine Kinase Inhibitor #91436
    mbachini
    Moderator

    Go Kris Go!!
    Cheering for you, and keeping you in my prayers!
    Melinda

    April 26, 2016 at 6:00 pm in reply to: First scan after chemo sessions #92146
    mbachini
    Moderator

    So happy to hear of the shrinking of tumors! I think you will be so happy with the port in place. Please keep us posted on how everything goes this nest go around…..sending prayers for shrinkage of the next 2/3rds!!
    Melinda

    April 23, 2016 at 5:05 am in reply to: Update on NIH Trial #78788
    mbachini
    Moderator

    Dear All,

    I had my checkup at NIH this past Tuesday. I am very happy to report that there is absolutely NO change from January. The reactive t-cells are still present in my circulation and keeping the cancer in check. I will return in another 3 months or so and have a PET again to compare to the one I had in January. I can’t tell you how grateful, happy and relieved I am, after January’s check up I have been a bit nervous!

    So to date it has been 30 months since last treatment. I am not cancer free, but can live a great quality of life. I am very happy with these results and hope for others to have them as well. I know that a colon cancer patient has made her official partial response in this treatment. I believe there is a cc patient who has been stable for 4 months now……more hope.

    I was able to meet Chris and Laura in person at NIH this week and enjoyed getting to know them in person. Chris posted his story in this thread a few posts up.

    All my best,
    Melinda

    April 23, 2016 at 4:16 am in reply to: Killing Cancer From the Inside Out #92102
    mbachini
    Moderator

    I said those exact same words…..”Thank you God and thank you Dr. Rosenberg!!!”

    Great videos!

    April 5, 2016 at 2:57 am in reply to: Introduction #92027
    mbachini
    Moderator

    Dear Virginia,

    Welcome to the discussion boards and thank you so very much for sharing your story. I am so very sorry and saddened about the loss of your baby girl……my words can’t express it enough.

    Please keep us posted with how you are handling chemo and with any updates. We are here to help and support in any way we can. Hugs and prayer sent to you.

    Melinda

    April 2, 2016 at 2:32 am in reply to: Work, social security and CC #91799
    mbachini
    Moderator

    Sounds like a great plan! So happy for you! :)
    Here is to new beginnings! Take care!
    Melinda

    March 28, 2016 at 1:49 am in reply to: Financial assistance for prescriptions, Gemzar, Neupogen, Emend, etc. #91989
    mbachini
    Moderator

    Awesome info……thanks Karen!

    March 25, 2016 at 5:43 am in reply to: Hi Everyone. #91974
    mbachini
    Moderator

    Dear Carla,

    Welcome to your first of many posts, I hope! So glad to hear your hubby is doing well, and getting great care at MDA. Please keep us updated with all his progress and please know we are here to support you both in anyway we can. Hugs and prayers headed your way.
    Melinda

    March 21, 2016 at 5:33 am in reply to: Intro #91939
    mbachini
    Moderator

    Hi Paul,

    Welcome to the discussion board. Sorry to hear about your wife’s diagnosis. What has she had for treatment? Any chance she has had genetic testing done on any biopsy samples? Please know we are all here to support in anyway we can. Take care!
    Melinda

    March 21, 2016 at 5:07 am in reply to: Surgery soon!! #91949
    mbachini
    Moderator

    Congratulations on surgery! That is great news, sending lots of good thoughts, hugs and prayers your way! Please keep us posted on your husband’s results and recovery! Looking forward to great news.
    Melinda

    March 18, 2016 at 5:26 am in reply to: First post past frustrated to desperate #91886
    mbachini
    Moderator

    So happy surgery is scheduled! Sending lots of good thoughts and prayers your way for both of you. Please keep us updated!
    Melinda

    March 15, 2016 at 8:45 pm in reply to: First post past frustrated to desperate #91882
    mbachini
    Moderator

    I too, welcome you to these discussion boards. Please seek another opinion with Vanderbilt as Marion suggested. It is so crucial to see a team who have experience with cholangiocarcinoma. Request your records be sent asap. Please keep us updated on your husband’s progress and let us know if we can help in any way. We are all here to support you. Take care, hugs and prayers sent your way.

    Melinda

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