middlesister1
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Dear Elaine-
Congratulations!!!! We always love to hear great news. I am so happy for you.
Best wishes- we look forward to many positive reports-
Catherine
Dear Elaine-
Congratulations!!!! We always love to hear great news. I am so happy for you.
Best wishes- we look forward to many positive reports-
Catherine
Dear Mizzie,
I’m sorry that I have no medical advice to offer, but wanted to let you know that I am so sorry to hear how your sister is doing and I wish for as much comfort as possible for all.
Take care,
CatherineTiah,
We are so bad with the scanxiety that we make sure to minimize the time between the scan and the visit for results. Although the fear starts setting in a few weeks before, the worst (especially for Mom), are the days between the scan and visit. One time we had to wait over a weekend and she didn’t like it. Now we try for a scan on wed and results on Friday; next scan is 18th/results 20th.I hope you get wonderful news on Monday- we’ll be thinking of you.
Catherine
Hi Scott,
A port allows the doctors to take blood, give chemo, put dyes in rather than going through the veins. With Mom, we regret not getting in put in right away. Much of her stress was with them trying to find a vein and the chemo makes them more brittle. I think of it almost a a docking station.
I hope the chemo goes well- wishing you much success and minimal side effects. If you get the time, you may want to search here and look up suggestions for chemo side effects. Off top of my head- make sure to stay hydrated. If needed, go in and get a bag of fluids. Also, many seem to do better when they get a steroid (dexamethosone). The docs can adjust as needed. And, chemo can be chilly- dress warmly.
Best wishes,
CatherineDear sdaigre,
We are fortunate that we have not faced such decisions, but wanted to let you know that I am very sorry your husband’s CC has progressed again to this point. From looking back on your posts, he has been fighting it for a long time.
My thoughts and prayers are with you and your family,
CatherineDear Nancy,
Thank you for taking the time to say hello. There are so many families that are touched by this horrible disease and we are only hearing from such a small portion.
I am so sorry for your loss. I hope in time the loving memories will ease the pain.
Take care,
CatherineDear Sandie,
On the homepage, the newly diagnosed section has info on the treatment types. I know it is overwhelming, and I’m sorry your family has been faced with this horrible disease, but there are many who also were given very grim prognosis and are still doing well. All seem to respond differently to treatments. My mother also was not able to have it removed, but she is still with us two years later and feeling well after chemo and radiation. Her last treatment was a year ago, so she has had great quality of life too.
I wish you and your family the best,
Catherinehttp://cholangiocarcinoma.org/newly-dx/
Jack,
Welcome to our group. I agree that the second (or third) opinion could be worthwhile. My mother is 75 and was also given a less than stellar prognosis (one year). However, after 2 SIRT treatments, we are over 2 years from DX and just returned from a vacation in Mexico. She has scans again in 2 weeks, but hopeful that we will be able to enjoy the holidays without treatments.
Take care,
CatherineDear Iyvyo,
I’m glad you found our group and it is great that you are doing so much to help your girlfriend’s mother. I’m sorry to hear that it appears the cancer has returned after resection. And, unfortunately it is not unusual for patients and caregivers to do a lot of research on their own. Most important is to have treatment at a hospital which has experience with CC.
On the newly diagnosed webpage, there is a link to information about clinical trials.
http://cholangiocarcinoma.org/newly-dx/
I’m also hoping that we may have some members from Italy who could chime in with helpful hints.
Best wishes,
CatherineI agree with Lainy’s WOW!!!!!! Thank you for sharing your journey of hope and persistence. There is so much valuable information in your posting.
I wish you best in the next phases. Please keep us updated on how you are.
Take care,
CatherineDear Kernos-
Shrinking tumors is always a good thing. I wonder if the 15mm was so small that they missed it the first time around and maybe not something new.
Good luck Thursday- let us all know how it goes.
Catherine
Dear Cathy,
Very sorry to hear this lousy cancer has manifested itself again. Best wishes that you can put it away again quickly for at least another 6 1/2 years.
Catherine
