mustangmort
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Hope your dad enjoyed Santa Fe. I’m a New Mexico native myself….transplanted to Utah for some time now. I have not had an ERCP. My surgeon said it appeared to be a slow grower. I will ask the surgeon if he would consult with Dr. Kato. With his pedigree, he probably knows him. :0) My wife accompanies me to everything. I will start taking notes from now on. I have a great memory for technical stuff, but who knows for how long I will be remembering things once they start poking and prodding and injecting. I feel extremely fortunate to have “accidentally” found this cancer before it got “older”. I have great faith in Huntsman Cancer. Mr. Huntsman poured a ton of money into bringing some of the best and brightest to Salt Lake City. Thanks again, and again, and I’m sure many more times in the future as I am just getting started on this journey.
Well, I will probably start chemo next week and by tomorrow I will have a supply of ginger laid in. Sounds much better than “another medicine”.
Thanks, Jim, for your post. I appreciate very much the concern and offered help that everyone gives here. Trust me when I say that “convenience” is not the issue. Heck, eastern Maryland to NYC? To us westerners, that’s just an afternoon stroll. :0) I will certainly have lots of questions for the oncologist in my appointment next Wednesday. I would really like to know how many CC cases are treated here at Huntsman Cancer.
Amanda,
I can feel your pain. My wife and I both lost our Moms this past spring. It wasn’t from CC, but the pain of losing parents is tough whichever way it happens. For sure Lainy is spot on…..let them know you will be OK. I worry much more about my family than I do about myself. Prayers with you.Have prayed for you and your mom, Nancy. Now, just make sure mom is as comfortable and pain free as you can make her.
Byron
Thanks Marion. Huntsman Cancer hospital is part of the University of Utah. 17 years ago I had my colon removed at the University of Utah because of 20+ years of Ulcerative Colitis and I was growing polyps like a field of corn.
Sorry I posted my “intro” on this string of posts. I’m really a neophyte when it comes to discussion boards as well as a neophyte with CC. I’ve created a new post with my intro.
I will ask if they have conferred with other cancer centers since my case is presenting very differently and out of normal for CC.
I appreciate the concern and suggestions. I will certainly question more but this is it: Have had CT with dye and contrast, CT/PET (showed hot spot in liver), MRI with the liver contrast (did not show any defined tumor), originally had esophogeal ultrasound with biopsy which found the cancer cells in the lymph nodes. The scans just don’t show anything definitive although the doc believes it to be CC. He believes a “small” tumor is blocking 1 biliary branch that is small enough to hide from the scans.
Pathology on cells from lymph nodes showed slow growth. He said there are 2 choices……surgery first or chemo first. He suggested the chemo first to try and knock out any cancer cells that may be lingering elsewhere, then go in and get the tumor/lymph glands.How in the world do other people go about getting different opinions clear across the country on their own nickle? I have great insurance as long as I stay in state. It’s worthless outside of state.
This is who my doctor is. Yes, he has lots of experience.
Sean Mulvihill, MD, is senior director of clinical affairs at Huntsman Cancer Institute and professor and chair of the Department of Surgery at the University of Utah School of Medicine. He is a member of the Gastrointestinal Cancers Program. He holds the Ross Anderson, MD, Presidential Endowed Chair in Surgery.
Mulvihill
Hi all. Just spoke to my cancer surgeon today. They have been attempting to diagnose me. At first, they thought possibly pancreatic cancer but after different scans, they are leaning towards intrahepatic CC but I also had adenocarcinoma cells in the lymph nodes in that area that they biopsied. They say my case has stumped them somewhat because scans show a liver lesion but the new MRI with contrast could not distinguish a tumor. There was a place, he said, where there was a small disappearance in on branch of the bile duct inside the liver and he thinks there may be a small tumor there that is not showing well on the scans. They are thinking to start me with 2 months of chemo before surgery. I am glad that I found this sight. I will be treated at the Huntsman Cancer Hospital in Salt Lake City.
