mybrossis

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  • in reply to: A feel good story #14582
    mybrossis
    Spectator

    I needed to hear that!!!! Thanks!!!!!! Lisa

    in reply to: My Brother #14448
    mybrossis
    Spectator

    I there so we have been busy with life this summer and I have not been on here as of late, My Brother has started chemo and is on his 4th week so far. He feels good other than some back pain but no real sickness to speak of. He had done so well that the doctor added an extra pill. (Xeloda)
    So here is the twist to my story…David is 36 he was told about this now 4 months ago, in the last few months my other Brother whom is 34 as been having the same symptoms….and on Thurs. we found out that he also has Pancratic Cancer that has gone to the liver. What a shock…I am not really sure that I can fully comprehend what has gone on the last week….It is almost surreal. I guess that this is the true test of ones ability to cope with life.
    We are optimistic and are going to look into the genetic factor to all of this….anyone knows anything I would love to hear from you…
    Also what can you tell me about the whipple procedure?? I am wondering about it and if anyone has done it???
    Well I will leave things at this for now…Hope to Hear from someone!!!!!
    thanks….Lisa

    in reply to: Mexico #14052
    mybrossis
    Spectator

    I understand that the Oasis of Hope was shut down???? It may be back open but I think that was the one that treated Corretta Scott-King????

    in reply to: My Brother #14428
    mybrossis
    Spectator

    Hi again I thought that I would let you know that David saw the onc. today….after my Mother called and DEMANDED something be done. He will start on the Gemcitabine in a week, after he has his stint replaced, we are excited to get the ball rolling.
    They will montior things and see and then apply for coverage for others if this doesn’t work…I hope that that is not the case but reality is we may need to look at that.
    Being that we are in Canada all of this is covered by our health system it is just that we have to apply for any of the other things that you all refer to as clinical trials… they really don’t do any here.
    Thanks so much for all of the feedback that you have given it has been great, we have written down all of the drugs and went armed with all of our info the the clinic today…Good stories are great to here….
    And I guess we all just have to have HOPE….

    in reply to: My Brother #14424
    mybrossis
    Spectator

    Thanks for the info
    Yes his billirubin is up or what ever it is not supposed to be. He had surgury they took a portion of his liver and since then all we have done is wait. He has not started with any Chemo as he is just 3 weeks post surgury and we have not seen an onc. as of yet.
    It is the worst wait we have ever had, thanks for your info, Lisa

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