pamela
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Hi Nikki,
My daughter, Lauren chews spearmint gum when she is nauseous and drinks ginger ale as well. Compazine usually works if she takes it early in the game. If not, the gum usually helps, but sometimes she just gets sick and then feels better. I agree with Eli in that your Dad needs to take his anti nausea meds combined with the natural ones. I don’t think the natural remedies would work in place of the nausea meds. They would be better used with them if needed.
Thank you , Marion for the many tireless hours you spend on advocating for all with CC. I sure do appreciate all you do.
Love and hugs,-Pam
That is such great news, Melinda! What exactly was your treatment? I am very happy for you. Take care and keep up the great work!
Nancy,
What wonderful news!! I’m sure your holiday season will be merry and bright!!! I bet it was awesome seeing that big, beautiful tree. I saw the tree lighting on tv, but I bet it is spectacular in person. I am so happy for you. Take care and keep up the great work!
Love, -Pam
Dear Laurie,
I am so sorry to hear of Dan’s passing. May he rest in peace and may you overcome your grief and carry fond memories in your heart. Bless you and your family.
Love and hugs,
-PamHi Lovedad,
I just wanted to welcome you to this site as well. I am sorry to hear about your Dad. Once he has seen the GI doctor and has an Oncologist, I think things will feel more in control. They will decide the best options for your Dad. I understand how you are feeling right now. My daughter, Lauren has CC. Your world stops and you feel so lost. But, you are not alone. We are here to help you whenever you need us. Please come back and tell us about your Dad and the doctor visit. Take care.
Love and hugs,
-PamThat is so wonderful your Dad is feeling better and the bleeding is under control! I hope he will be able to go home soon. All the best to you and your Dad.
Love and hugs, -Pam
Hi Christine,
I am so happy for you that your son has returned safely from Afghanistan. What a great holiday gift! I hope your Mom’s stent change goes smoothly and her counts go up so she can continue her chemo. Best of luck with scans as well. My daughter has scans on the 4th, so we can both be nervous together! You are lucky to have most of your shopping done! I can’t get anyone to make me a list of what they want! Take care and Happy Holidays!
Love, -Pam
Hi Darla,
It does look like things are starting to look up for you. I really hope you find someone that will think surgery or transplant is possible. Did you ever see Dr. Sonnenday at U of M? He is a liver surgeon that saw Lauren first. If there is any way he thought surgery was possible, he would go to bat for you. He does lots of surgeries and liver transplants. Dr. Zalupski tends to be a bit more conservative.
Thank you for asking about Lauren. She is only on Xeloda right now since she had her allergic reaction to Oxaliplatin. The Xeloda is really zapping all of her strength. She has been so tired and falls asleep sitting up on the couch every day. She hasn’t felt like doing much at all. She has a CT scan next Tues. and we will see Dr. Z on Wed. and decide what to do next. I am praying for a miracle, but kind of scared for what might show up. Stress from scans is the absolute worst.
Do you not take any pain meds at all? Wow, that is great if you don’t need them. But if you have any bit of pain that bothers you, you should have something. Lauren uses a long and short acting morphine. Lauren also takes ativan at night and it helps her relax so she can sleep. My doctor also gave me ativan to use if I am really stressed. I have only taken it once, but I slept really well. I am also on an antidepressant which has helped a lot. I think it is great that you are working. You can get on disability with CC if you find it too difficult to work. I sure wish you all the best. Please keep us updated.
Love and hugs, -Pam
I just saw your new post after I posted this, so I am now editing. I am really sorry about the call from Barnes. I understand that you want surgery, but at this time it might not be the best thing. I know it is hard to accept, but you don’t want someone operating if it is not in your best interest. Chemo can shrink things down and allow surgery at a later date. Keep your chin up, Darla. I know it is so difficult.
Hi Sheedy,
I am friends on Facebook with a lady from Cork. I can give you her e-mail if you e-mail me for it. She is really nice. Her husband passed away from CC a while ago. She has three children. I don’t remember if I met her on Facebook or on this site. If she was on this site, she doesn’t post anymore that I have seen. I hope this helps.
-Pam
Hi Alla,
I am not in your shoes, but I have a son that is 21. My daughter, Lauren has cancer. She is 26. My son had the same reactions as your son did. Although he did not lose his sister, it was a kind of grief he went through about her cancer. He seemed not to want to spend time with us and was gone a lot of the time. We gave him time to deal with things and then started talking to him slowly about Lauren and her cancer. Lauren was very hurt by his avoidance, but I think it was his way of dealing with things. He was there the day the doctor called and told us she had Cholangiocarcinoma. He was just as devastated as we were. I remember looking at him and he was crying his eyes out. It is hard for kids to come to terms with grown up stuff. Ryan has come around and is involved with us much more. I think he has come to terms with things. I know your son has something even more difficult to deal with and that is the loss of a parent. It has not been very long since your husband’s passing. I would suggest you speak with a social worker or therapist for yourself and about your son. I am not a doctor, only a Mom that cares about my kids the same way you do about yours. I am hoping for the best for you and your family.
Love and hugs, -Pam
