pamela
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Hi Darla,
Just my opinion, but if I had sent records somewhere and it had been a month of not hearing anything, I would definitely give them a call. The records might have gotten misplaced in the shuffle. Time is important with this cancer and we don’t have time to waste. From what you have written, I think you are responding well to your chemo and are you are in good health. If you are not satisfied with what you have heard, get another opinion. We have only gone to U of M for Lauren’s care because we are happy with her doctor and care. If we felt that everything wasn’t being done that could possibly be done, we would seek a 2nd opinion immediately. You won’t be happy until you are satisfied you have done all that you could. It makes me sad because I wish you could enjoy your life instead of worrying. I am glad no one has ever told you how much time you have. They can only guess and what good would it do. I hope you get all the answers you are looking for and can have some peace of mind. Take care.
Love, -Pam
Dear Barbara,
Thank you so much for representing us at the Liver Meeting. It is so great that you were able to get the word out about our foundation. How bittersweet it must have been to be Jacques 5th year anniversary of passing from this cancer on the day this meeting began. I am so happy this foundation is getting it’s proper recognition. Thanks again for taking the time to spread the word.
Love, -Pam
Has Chris ever tried Compazine. It works best for my Lauren’s nausea. Also chewing mint gum or sucking on mint candy helps. I hope you find something that helps.
-Pam
Hi Carol,
Your husband’s story has to be one of the best I have heard in a very long time! How wonderful and I hope your husband is feeling great for the holidays. I think he truly has been blessed with a miracle. Take care.
Love and hugs, -Pam
I am very sorry about George’s decline in health. Although I can’t add much to what Lainy has already said, just remember we are all here for you and do care.
Love and hugs,
-PamHi Bob and Nancy,
I am sorry I just saw this post or I would have written sooner. I am very sorry to hear about the growth of Jeff’s tumor. I know how that feels when you are so hopeful that treatments will work. Lauren had radioembolization called Y-90 this past May and we were so hopeful that all the small tumors would be gone on the one side. In like six weeks, she developed a new 3 x 4cm. tumor! They still aren’t sure if it is a tumor or dead spot from radiation, but it is still there. We were all devastated. It was like the end of the world…for about a day. Then we picked ourselves up and decided on a new plan of attack. You have to stay positive and hopeful that a new treatment will do the trick. I know you will do that because you seem very positive and upbeat. Lauren has been on a few chemos that have shrunk her tumors and actually her large tumor is almost half its size and half dead. But chemo only works for so long and then a new one needs to be started. Jeff is such an amazing person. Bless his heart for going to work every day with a smile on his face. I am sending many prayers, love, and hugs to all of you. Please keep us posted on Jeff’s progress.
Love, -Pam
Hi Ginger and welcome to this site. I am happy to hear that you are doing ok. I look forward to hearing that you continue to do well. It is wonderful that you have such loving support from your husband. Take care and best wishes.
Love, -Pam
I am sorry for all of your Dad’s trials, but hopefully the doctors will figure things out and make him feel better. Prayers for all of you.
Love, -Pam
Hi Sue,
I’m sorry I can’t answer your questions. I would like to welcome you to this site and say that I am sorry your husband has been diagnosed with CC. He sure has been through a lot. My daughter has CC, but has not had to have stents or drains, thank heaven. I think it makes such a difference when you like the facility and doctors you see, We are very happy with both and trust her oncologist so much. I hope you can find somewhere that offers your husband excellent care and you feel comfortable that they are doing everything possible for him. God bless you both.
Love, -Pam
I agree with Lainy and Marion, Kris. You have done great so far and as long as you can improve or stay the same, that’s ok. But what I really want is for a cure and for you to have it. I will keep on hoping and praying for you. You are such a great person.
Love, -PamHi Helen,
I am happy that you have decided to take the leap. I am sure you you will be a great addition to our family. It is so wonderful that you are doing so well and I wish you all the best with your scan. Hoping to hear from you again.
-Pam
Thanks so much, Eli. I knew you would come through. I just didn’t have the patience to try to muddle through the article when I went to their website. I like that you can explain things in plain english!! Thank you so much for all you do.
Best wishes,
-Pam
This makes me really sad. I followed his Caringbridge with a deep interest because he had his transplant at U of M, where Lauren goes. I will go to his site and send condolences to his family.
Hi Mark,
I went to the website and a box popped up where you can ask questions. I asked if Gendicine could be used on someone with CC. The person said yes. I also asked if it was used in the US and they said yes. They said it was 86% effective for CC. Then they started in on wanting to know who had CC, how long, etc. and they wanted me to send Lauren’s info. I said I just wanted info on this therapy and that I was happy where she got her care. I asked where they used this in the US but they didn’t give me an answer. I am always skeptical about things that sound too good to be true and I have never read anything about this. Maybe our researchers Eli, Percy, or Gavin can tell us more. It would be nice if their claims were true.
-Pam
