Patrickf

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  • in reply to: 1 yearversary of my diagnosis #101598
    Patrickf
    Spectator

    Congrats! I hit one year in March after diagnosis of Stage IIIa ECC. Whipple plus 6 months chemo. Scans since have all been clear.

    Feels great doesn’t it??

    in reply to: Husband scheduled for Laparoscopic Whipple #101597
    Patrickf
    Spectator

    I had a robotic Whipple a year ago (Stage IIIa ECC). Recovery was surprisingly quick, requiring just 5 days in the hospital. At one month post-op, Mary’s advice on exercise is spot-on. It took me a while to recover my strength and stamina but by a month was walking 2-4 miles a day and it helped tremendously in dealing with chemo (capecitabine) side effects.

    Now I’m 12 months post-op and NED. Life is largely back to normal, albeit with smaller meal portions. I’ll take it!

    Best of luck with recovery and what comes next.

    Patrick

    in reply to: Treatment Centers/Physicians #101596
    Patrickf
    Spectator

    Treatment at UTSouthwestern has been outstanding. I am Stage IIIa ECC.
    Dr. Yopp performed my Whipple robotically. In and out of the hospital in 5 days.
    Dr. Beg has been my medical oncologist for the past year and been so good to work with. Six months on capecitabine ended in Oct 2021. Dr. Beg has moved into research so I will switch to Dr. Hsieh next visit in 90 days.
    Nurses, staff, facilities all terrific.

    Patrickf
    Spectator

    Thanks for posting this. I was diagnosed with Stage IIIa and had a Whipple in March 2021. That was followed by 6 months of capecitabine. Now 6 months after the end of chemo I remain NED. Even if I just get another 12-13 months as the study shows I’m grateful for the research.

    in reply to: Any stage 3a warriors out there? #101594
    Patrickf
    Spectator

    Thought I’d post here in reply, even though the OP is 9 months old.

    My diagnosis is just about identical – Stage IIIa Distal ECC after a Whipple. The tumor had begun to invade the mesenteric artery and cancer was found in 8 of 15 lymph nodes removed. That was in March 2021. Six months of chemo followed (capecitabine).

    I’m now 1 year post diagnosis and the last two scans have been clear, so NED. Hope your father-in-law’s treatment has been successful.

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