pcl1029
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Hi, Peggyp,
I know you have mentioned your husband is on Xeloda and Avastin which either each one of them can make your husband very tired. I am on Xeloda,and I have to take a 30min lap during lunch time at work. So I truly understand what you mean about that side effect. Have you asked the oncologist to adjust the dose( how much of the drug) or frequency(how often ) of the medications.
For Xeloda only, twice a day is the frequency I took, but I find out that if I take the Xeloda at lunch time 11 or 1200 and at 8 or 9 pm , it helps me better in controlling the problem of being so tired. It is because by the time the full effect of the Xeloda kicks in , I will be either off at work or in bed .
Just a thought when I saw your post about being tired.
BTW, chemoembolization is also a good palliative treatment for multiple or large tumors inside the liver, most of them will use mitomycin and adriamycin and cisplatin. I had one done but they gave me only mitomycin and adriamycin mixed with gellform type liquid; but if they use the drug eluting beads, then it will be even better. I did not have any side effects after the procedure.
God bless.Hi,
At this stage of the disease,if your mom do not want to take OTC drugs
from Walgreens or Wal-marts like Docusate 100mg or Magnesium citrate by mouth, she can try glycerin adult suppository or stronger Like Dulcolax suppository(just follow instruction on the box or ask the pharmacist how to use the products.) Fleets enema are other choices that do not require a prescription.
But first of all,your mom can stop to take the iron pills for a while until the bowel movement comes back.
Iron pills can increase the chance of constipation.
God bless.71PCL1029Yesterday 23:06:20
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Registered: Fri, 15 Oct 2010
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Hi,Rachel,
I am a cancer patient for sometime now,did your son recently have a follow up CAT SCAN OR MRI done to see whether the6 treatments works or not.( normally with chemo treatment , the scans should be done every 3-4month to monitor the progress of the therapy.) is it possible you email me the “impression ” segment of the most recent scan report for me to take a look for what alternative your son can have.I am not a doctor, but I may be of help to your son in terms of information. Like other member of this board said, 45 is too young to give up.
2nd opinion from John Hopkins liver specialist is a good start to evaluate your son’s case. Remember,nothing is impossible,hoping for the best and prepare for the unknown is part of this journey for this cancer.
Did he on Gemzar only or with other chemo agents like cisplatin or oxaliplatin or caboplatin .?.
In addition,I would like to know is it in hepatic or extrahepatic or peri hilar CCA,
IF you want to ,you can put up the scan result here too.
God bless.
If provided, information are for educational purposes only. Consult doctor is a MUST for changing of any treatment plans.Hi,
The dceadron,Ativan and Zofran combo works well for controlling nausea and vomiting, so you need not to worry too much. Percocet is for pain but should be give like every 4-6 hours as needed. If you give Percocet on a as needed basis without the time of how many hours apart fron each dose of Percocet,your mom may get too sleeply. Ask the doctor to make sure on the frequency of giving the Percocet.
Decadron increases the control of N/V when use with Zofran and increase the appetite too by itself.
God bless.Hi,Rachel,
I am a cancer patient for sometime now,did your son recently have a follow up CAT SCAN OR MRI done to see whether the6 treatments works or not.( normally with chemo treatment , the scans should be done every 3-4month to monitor the progress of the therapy.) is it possible you email me the “impression ” segment of the most recent scan report for me to take a look for what alternative your son can have.I am not a doctor, but I may be of help to your son in terms of information. Like other member of this board said, 45 is too young to give up.
2nd opinion from John Hopkins liver specialist is a good start to evaluate your son’s case. Remember,nothing is impossible,hoping for the best and prepare for the unknown is part of this journey for this cancer.
Did he on Gemzar only or with other chemo agents like cisplatin or oxaliplatin or caboplatin .?
God bless.Hi, Jim ,
Same for me here, I research a lot on radioembolization but few actual experience testimony by patients;
BTW, the radio talk show is a great way to give cholangio CA more awareness .
Thanks
God bless.Hi,
I do not have any EXPERIENCE on radioembolization But I think it is a good choice to do it a few week to 2 months before resection in your case.
depending on how much is left after resection,you need at least 20% of the liver left to function correctly,
In your case ,all your left lobe and the caudate lobe and 2 out of four segments from the right liver are resected ;it is a big surgery.god luck and
God bless.Hi,sheron,
Byron is correct , it depends on the dosage as well as the patient’s sensitivity to the drug itself.
what is the name of the anti-anxiety med.
Lexapro,Prozac,Remeron ; or the old kind of Xanax,valium or Ativan?
God bless.Hi, Lainy,
Thanks for responding to her. I did ask her to talk to you since your know more about palliative and hospice care.Hi,Sheron,
The anxiety meds will not knock her out,in fact it may help her to gain weight by increasing her appetite.
However the pain medications such as morphine,oxycodan , Norco, fentanyl patch ,hydromorphine will.
Titration( give pain meds depending on the response of the patient rather than give a fix amount prescribed by doctors ; ask the nurse to teach you how to use the pain scale before each pain med will be given your mom.the pain scale is(1-10,10 being having the worse pain)and teach your mom indicate what # of pain level she is on BEFORE give the appropriate dose of pain meds to your mom.ask the nurse teach you before you attempt to do that.as the nurse to ask the doctor to give you the AMOUNT of pain medication for each level of pain eg.pain scale 1-4 takes X amount of morphine liquid for breakthru pain;5-7=y mg and 8-10= Z mg etc.) this is the key to keep your mom comfortable while still awake and function normally.
God bless.Hi,ADRW,
If you are from Toronto,Princess Margaret is the place you should seek care in case you are not familiar with that they are one of the best cancer research center in north America.
Xeloda is another chemo option and can combine with Avastin together.
Chemoembolization or radioembolization are options for CCA palliative care too if no contraindications .God bless
Hi,
the most recent guideline tha t comes from ASCO for prevention and management of treatment-related nausea and vomiting associated with chemo and/or radiation is the use of PALONOSETRON (ALOXI) as the preferred agent for taking moderately emetic chemotherapy.
and specific recommendations for multiday chemotherapy regimens.
I will update the info later, or you can look for “suggestions for treatment of nausea/vomiting” under the experience forum for adverse reaction and side effects
God bless.Hi,
If I may suggest, ask your oncologist to see whether he can prescribe sorefenib (Nexavar)for him, It is a pill that the patient can take daily easily and most without serious side effects. It was recommended by my hepatologist for 2nd opinion in Dec. 2011.
It is not FDA approved for CCA but is approved for HCC(liver cancer).
It may give the patient a few more month without being hook up onto an IV.
Then doctor may not agree since your partner is in quite an advance stage; but if you insist,he might do it for you. I do not think it will hurt the situation.
Avastin is another choice and is seen to be effective in peritoneal carcinomatosis.but it needs to be given as IV.
One more point ,you can take your partner in or out of palliative care with his consent and receive treatment anywhere if you are in the States.
Be strong and hopeful always.
These are the targeted agents that may provide some miracle help that I know of.
BTW, I am a patient only,and if you said you have been lurking here for a while, then you know that I am not a doctor too.
God bless.Hi,
Rubber (ie: dust from tires and brake pads ) had been mentioned in some older articles.
any anothers ?
God bless.Hi,
Below is a portion of an article about chemoembolization and I am quite sure both chemoembolization and radioembolization are used for large tumors rather than tumors smaller than 3-5cm, in that small size RFA can be used effectively.
As the below indicated.PERSONAL EXPERIENCE
We have been performing chemoembolization for appropriate patients at our institution since 1988 (Fig. 9⇓). Patients are carefully selected to include those most likely to benefit. These are generally patients with liver-predominant disease and with symptomatic or rapidly growing tumors. They must have focal rather than diffusely infiltrative tumors. Those with fewer than three lesions, <6 cm each, generally are treated preferentially with radiofrequency ablation, if the location of the tumors makes this technically feasible. Rarely, this may be combined with chemoembolization to improve radiographic results. Any potentially resectable lesions are treated with surgery. If the patient understands the risks, has a good performance status (0 or 1 by Eastern Cooperative Oncology Group criteria), has a patent portal vein, and has a total bilirubin level ≤3.0 mg/dl, albumin level ≥2.8 g/dl, and creatinine level ≤2.0 mg/dl, then chemoembolization is recommended.
God bless.Hi,
Can some of you tell me about what kind of industrial or manufacturing or processing plants and companies around and within 100 miles of the areas you guys live? (ie:nuclear or coal power electric plants, leather or blue jeans, metal processing plants ,mold and dye plants)
I am looking for risk factors in the chemical category .
Thanks
God bless
