pfox2100
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Thanks for the advice. I’m guessing there will be a lot of trial and error until I find something that I like and that works.
Hi all had second treatment today. Discussed pain management. Nurses all concurred about having stool softeners around the house
my onc wasn’t there today but she did discuss with dr.lopez up at Ohsu and they recommended Tramodol. I will start tomorrow. Has anyone tried this before? I get quite anxious when starting new meds so any feed back would be much appreciated. Hope everyone is enjoying their day!Hi mark and Lisa,
I’ve thought about you guys lately. I just had my second treatment up at Ohsu today. So far tolerating it well. I hope all is going well for Lisa. We would love to meet up or email or chat if you guys are ever up for it. We are so close to one anotherHi crawler. I am new to this group and I am so grateful that I have found it! I was diagnosed in July with stage 3 ICC had for the last 3 years have been living with this disease without knowing or treatment with little symptoms. I just started chemo last week same regimen you started on. Much strength and positivity to you on your journey!
Thanks. I find much beauty and strength in this one room as we are all hooked up fighting for the same purpose. Irionically I was reading about ginger this morning. I might try that next time
Hi Marion. Thanks. I’m nervous and on my way up now. I don’t have a port but the plan is to get one inserted soon I believe.
Thanks for that link. I have had imaging done every 6 months over the last 3 and a half years that showed one large lesion, over time 2 more lesions in other lobe. during this time these all continued to grow and docs continued to report that they were all liver hemangiomas. Until a couple weeks ago when I was finally diagnosed with ICC. Feels very frustrating that I have been monitored over the last 3 years and this was just a mis diagnosis. I try not to focus on the what it’s bc there is nothing I can do except focus on the present and now.
Hi heather I don’t know anything about that , but at my first onc appt last week she did suggest genetic testing as well down the road. Did you find this helpful?
My case to, very different. I was misdiagnosed with what they believed a liver hemagioma in 2010. It never was. I have been living with ICC for the last 3 and a half years without knowing just diagnosed a couple weeks ago . The cancer is still confined to the liver but there has been growth to both lobes when initially it was just one. I’m gathering that every person every body and everyone going through and dealing with this awful cancer is such a variety of cases and scenarios.
PorterI mean would anyone know the answer to … Because they told me I wouldn’t benefit does that automatically mean a bad thing? Does that automatically mean they specifically think I’m a lost cause? I am trying to tell myself even if that is what they do think that I should just say F it and keep believing in my fight now matter what!
Thanks guys. I just felt discouraged and don’t know how to take that answer. It felt like they were saying no hope for you here goodbye. Heather I went ahead and submitted a request online thru mdanderson. Thank you!
PorterSo I just received a call from the mayo clinic in Arizona and they said the dr reviewed my case and all she told me was that they didn’t feel I would benefit from the liver cancer center and that she was sorry. She wouldn’t go into any further details. Can someone help me on how I am supposed to take that news? It made me feel like I’m a lost cause.
