raye

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  • January 9, 2010 at 1:56 am in reply to: Need help finding a doctor in California #34286
    raye
    Member

    Rowena,

    Please visit these links as a second opinion option before you go further. Its worth your while. I was given 8 to 12 months to live at the time of my biopsy and diagnosis, but I was quite able and fortunate to qualify for a transplant at the Mayo Clinic.

    http://www.mayoclinic.org/transplantcenter-rst/patientstories.html

    Read the 1st and 4th stories here, and then peruse the Mayo site for CC information. Search Dr. Gregory Gores, my friend. Phoenix has a Mayo Clinic for oncology and transplant/surgery.

    http://ucsdnews.ucsd.edu/newsrel/health/10-09Hemming.asp

    Dr. Hemming is a truly brilliant surgeon. USC also has a great oncology team. Click the video to play.

    Wishing you the best. You really need to have people treating you who have great experience with CC.

    Raye

    November 30, 2009 at 5:44 pm in reply to: Staging surgery and transplant dates are set…. #32830
    raye
    Member

    I look forward to your call with all the news. It was the two of you who did the work. Good for both of you.

    November 27, 2009 at 6:45 pm in reply to: Staging surgery and transplant dates are set…. #32828
    raye
    Member

    Hi Ashley,

    Your news is terrific and I know how you feel right now! You’ve had the two most amazing individuals working for you. Julie Heimbach was my surgeon and she is the most amazing person. God provided the best for all of you.

    Keep in touch and let us know how everything works out for your mother. If you have any questions about the recovery etc. just ask.

    September 22, 2009 at 2:40 am in reply to: Introductions… #31538
    raye
    Member

    Ladyria,

    I’m a CC liver transplant survivor. You’re in the right town for a checkup and evaluation at the Mayo clinic in Jacksonville. If you’d like a little more information please send me an e-mail or give me a call anytime at 269-598-1861 and I can give you the scoop and my story on the transplant protocol and the value of this surgery. Ashley called me several months or so ago about her mother and they’re glad they did.

    Please call.

    Raye

    September 14, 2009 at 2:50 pm in reply to: Always keep one in your pocket (or purse) so you are always prepared! #31069
    raye
    Member

    I pass the bracelets out all the time. You never know when you can help save somebody.

    September 9, 2009 at 2:14 am in reply to: Newly diagnosed 81 year old father #30908
    raye
    Member

    It was a pleasure talking with you Lee. I wish your family the best during this ‘trip’.

    September 7, 2009 at 11:32 pm in reply to: Questions regarding surgery #31170
    raye
    Member

    Hi friends,

    I just sent Lee an e-mail in hopes she will respond soon.

    As a side story, Helen and I will be heading to Toronto next week to see Sydney Olivia Krell, our third and newest grandchild born Sept. 3 at 8:15 am to Jennifer and Jason Krell. If you know my story Jennifer is my oldest daughter who was my live donor for the CC liver transplant I had on March 20, 2008.

    Mom and daughter are both at home and doing fine. Grandma and Papa Krell live right next door enjoying every moment. Unfortunately I’m in
    Indiana working, but Grandma and Papa Field will be headed to Toronto this weekend to see this new person in our lives.

    I’m glad I’m here for this.

    Raye

    August 31, 2009 at 8:29 pm in reply to: Elevated CA 19-9 in setting of PSC #30561
    raye
    Member

    Rick.

    I’m here buddy if you need information on the transplant evaluation and things that you will go through. Sorry to hear you have such pain as my CC was painless, thank God.

    I was more of a severe liver patient though because of CC and underwent cholangiograms by the dozens ( really) which ended up painfully exhausting after my radiation treatments. It was a long road but all worth it Rick.

    If you need to talk or get info. I’m here anytime.

    Raye

    PS You will BE a good candidate for a transplant.

    August 19, 2009 at 1:15 am in reply to: Elevated CA 19-9 in setting of PSC #30557
    raye
    Member

    Hi Rick,

    Hope you received my reply to your e-mail request.

    24/7/365 here anytime you need to discuss CC, and just about anything else.

    Raye

    August 10, 2009 at 4:28 pm in reply to: advice needed from CC patients #30589
    raye
    Member

    Well said Lainy. It reminds me of my ordeal and very much how I felt at times.

    To all the advocates and caregivers for CC patients, you’ll do a wonderful job. Just let things unfold and everything just seems to work itself out. In our case it did, through good days and bad.

    Raye

    August 7, 2009 at 2:02 am in reply to: Mayo Clinic Protocol may achieve 80% Cure Rate for Kaltskin tumors #23696
    raye
    Member

    Thanks Tess. I am blessed.

    My offer stands for anyone who would like to talk, and for anyone who knows somebody who needs to talk.

    I’m a good listener too! LOL

    August 5, 2009 at 11:35 pm in reply to: Mayo Clinic Protocol may achieve 80% Cure Rate for Kaltskin tumors #23694
    raye
    Member

    Wednesday, August 5, 2009.

    Anybody who would like to talk about CC and liver transplants, or whatever, or to just talk with a survivor, I’m still here.

    I’ve received around 20 calls and e-mails the last 2 months and I’m ready for more.

    Call Raye at 1-269-598-1861, or in Canada at 1-519-351-4406, or e-mail me at raye.field@yahoo.com.

    I’m here to help and listen.

    Raye

    June 15, 2009 at 3:46 pm in reply to: Goodbye my beloved husband, James Bell #29488
    raye
    Member

    Danielle,

    I am so sorry and so shocked to hear of Jim’s passing this morning. It wasn’t so long ago was it we were all talking on the phone and full of joy discussing everything we could think of when we were at the Mayo Clinics in Phoenix and Rochester last March.

    I don’t know what to say except I’m so very sorry for the loss of your best friend Danielle. I’m at a complete loss for words and upset for Jim’s passing. I’ll contact you when we’ll have more time to talk in the future.

    God bless you and your family .

    June 14, 2009 at 2:49 am in reply to: Mayo Clinic Protocol may achieve 80% Cure Rate for Kaltskin tumors #23693
    raye
    Member

    Thanks Duke. I took a look at this and it appears very promising for CC also.

    June 7, 2009 at 6:16 pm in reply to: Mayo Clinic Protocol may achieve 80% Cure Rate for Kaltskin tumors #23688
    raye
    Member

    I thought I’d bump myself on the thread again and let any party interested in information or listening to my experience regarding my liver transplant for CC.

    I’m available by e-mail at raye.field@yahoo.com and by phone at 269-598-1861, or my home phone in Ontario at 519-351-4406. Please feel free to call me or leave a message and I’ll get back to you ASAP.

    There’s a wealth of information here at this site and in talking with others one on one.

    Raye

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