rick
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Hey Brigette,
Unfortunately, Facebook has sucked a lot of our users away. I was hoping this was an easier platform to use, the search form is just to the right at the top of the main discussion board page. I will try to make it more prominent and maybe a dedicated page for it. 🙂
What else?
Hey Gavin, it actually goes into a mailbox here on the discussion board. It is in your Account/Profile link at the top of the page. (You will get a notification at your email address though.)
It’s a nice way of communicating, but not publicizing your email address. 🙂
Hey Gavin,
Yes, we’re taking over everything. Posts, discussions, links, users, etc. Just modernizing the technology.
Don’t miss it, this Wednesday!
“Using “Spacers” for Safer Delivery of High Dose Radiation Therapy”
High dose radiation therapy is effective in the treatment of liver tumors. However, the greatest limitation in the use of radiation is not the liver itself, but rather adjacent organs like the stomach or intestines, which do not tolerate high doses of radiation therapy.
The use of laparoscopically-placed spacers can safely provide critical distance between a liver tumor and these sensitive organs and allow for therapeutic treatment of liver tumors, expanding the number of patients who can be offered potentially curative high dose radiation therapy.
To register: https://attendee.gotowebinar.com/register/4203384942289282562
Great idea Marion, if the same information exists on the new site I will point the old link to the new information.
Thanks.
You guys are so kind. It’s not just me though, we have an entire team working on it, props need to be given to Jose Llerena and Adam Kovitz also.
We’re not done yet though, thanks for putting up with our “dust.”
Rick
Our new site is built on a completely different platform, (one that will encourage editing and updating.)
Once its up and we get the kinks worked out, I’d totally be willing to look at doing another wiki. (but that’s really a decision for the foundation board.)
Hey Jason,
We actually did have a wiki for almost 2 years, 2007-2009. No one used it, and users never made any updates. (except for spammers that edited it about 10 times a day.)
Of course, that was 5 years ago, I’d imagine our users are more tech savvy now, it will still take some diligence to keep the spambots off. I’d leave that up to the board if they want to try something like that again.
The good news is our new site design will make it easier to make updates, so expect a site that will remain current!
Randi and Lainy, you have an internet browser with stubborn cache. (Internet Explorer?)
You can hit CTRL-F5 and it will refresh the page new and not access the cache of your computer. (but Cornelius is gone, it’s not Groundhog Day anymore.)
Thanks for noticing him, we actually named him “Cholangiocarcinoma Cornelius”
Yeah, sorry about the shadow, but if we have 6 more weeks of the kind of winter we’re having around here? Bring it on.
It’s also here on our video page. http://www.cholangiocarcinoma.org/media.htm (second row, 1st on the left)
AND! Have you seen our new “Awareness Month Information” page?
(click the orange banner at the very top of the page to see it, or go to the Calendar of Events in the menu, under Patient Support.)On that new page is a secret button that takes you to a very magical, important place, that some of you may have not seen before.
A mystery!
