rider97
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Dette- I am hoping that you still check this website. I am wondering how you are doing since it has been three years since your surgery?
CathyLainy,
I find alot of hope in your e-mail. I found this website a week ago and was eager to share my story and talk to other people who knew and felt what I was going through. However, after sharing my fairly positive experience I haven’t haven’t had any responses. I began to feel like you perhaps guilty that my husband had a good experience.
I worry every day about what is going to happen and how we will deal with it when/if it does return. I read a post from Rhonda and her husband also had the Whipple surgery two years ago. He had been doing well until recently. He has begun to have problems. I just found your post and am encouraged by your positive reports a year after your husband’s surgery. I guess I am dealing with this through denial. Hoping that since the surgery was a success our nightmare will be over in 6 months after the treatments. I want you to know that I definitely find hope in your posts and wish you and your husband the best of luck.
Cathy
Rhonda,
I am sorry to hear about your husband. I to am going through the same thing. My 37 year old husband was originally diagnosed with pancreatic cancer on November 13, 2006. After his surgery, (whipple) we were told he actually had bile duct cancer. I am wondering were they able to remove all of your husband’s tumor and leave clean margins?
We were told that Scott’s surgery was a success. They were able to remove the tumor. His tumor was in his pancreas, bile duct and 4 lymph nodes.
Scott began chemotherapy (Gemicitibine) last Thursday. They are given him the largest does possible due to his age and relatively good health. However, he was not able to have a treatment this week because his white blood cells were so low.We continue to main optomistic but after reading your story am not sure if we to will be going through the same thing. It is nice to have someone to talk to that knows what you are going through. We to are young and feel that we have a long life ahead of us. God Willing!!
Cathy
Joyce,
As I said my husband had his first round of chemo on Thurs. along with having his porta-cath put in the sameday. He was a little short of breath on Friday and body aches all over. He felt a little better yesterday, but is not feeling so well today. His bones all ache and he says he feels like he ran 10 miles. Hopefully, things will get better. I am concerned since this is first treatment. We will definitely continue to keep fighting and maintain our positive attitudes. It is nice to talk with someone who understands what I am going through. I moved my original post to introductions. I think I had entered it under the wrong topic.
Cathy
Andy,
My husband was diagnosed with Stage 3 pancreatic cancer on November 13th. They said the cancer was in his bile duct, pancreas and one lymph node. He had the Whipple on November 28th. They removed his gallbladder, 2/3 of his pancreas, 5 cm. of his intestine, duodenum, 12 lymph nodes and common bile duct. The pathology report came back bile duct cancer not pancreatic cancer. His pathology report reads: Tumor location; wall of common bile duct. The reports states that the tumor does not apprear to invade the common bile duct. That the pancreas is sectioned to reveal a 2.5 X1.5 X1.5 cm white firm tumor. Of course, our doctor expressed his concern to the pathologist as to how this could be bile duct and not pancreatic and the pathologist stuck with his findings that the cancer cells were bile duct. Of course, we were told that you could get 10 pathologists into a room and that a few may think it is pancreatic. That is why pancreatic cancer and bile duct cancer have sometimes been misdiagnosed.
We are just hoping that the diagnosis of bile duct instead of pancreatic can give us more time for someone to find a cure!!
Cathy
