sandy-blake

Hi Michael,

Sorry to hear about your wife. How old is she? The people on this board are the nicest people I’ve ever chatted with. They will not only give you their support, but they seem to have a wealth of information.
My thoughts are with you and your wife,

Sandy

Hi Lynda,
TPN is called Total Parental Nutrition. It is made specifically for that patient. It contains just about everything in breast milk and then some. My husbands was made in Baltimore and shipped to New Castle, DE. It had everything he needed and then some, to get all the calories and nutrition he needed. It went into a vein into his chest. I hooked it up every night and it ran for 12 hours. I had to inject insulin into the bag, aciphex, and two different types of vitamins. He gained 12 lbs those three months, but in the end the cancer was just too extensive. He initially lost 20 lbs. He was only 52 and my 18 year old daughter is having a very hard time. He died one month before her 18th birthday and 6 weeks before her high school graduation from ST. Elizabeths High. My other kids are 29 and 30, and they seem to be holding their own.
I will pray for a good outcome for your family. How old is your husband Lynda?
They told me my husband had four to nine months – he died in three.
You are in my heart and prayers.
Sandy

Dear Ginger,

Please accept my sympathy on the loss of your Aunt. This is a HORRIBLE disease, but it is a little known one, because it is so rare. I wish we could make people more aware of cc, but since it only makes up 1% of all cancers, no one is interested in donating or funding for research. I’m from Delaware, but I consulted with John Hopkins when my husband was diagnosed, and they told me the same things the Dr.s here in DE had told me. Usually, once you have symptoms, it’s too late for a cure.
I wish we could make our voices heard!

Sincerely,
Sandy

Marley,

Boy does that sound familiar! My husband thought he had the flu. Within one week, he had turned yellow and quit eating. In the second week he was on TPN, had two cholangiograms and a stent put in his bile duct. We were shocked. Where had this come from? He died ten weeks later. My kids and I were just devastated and numb!
I wish someone could explain it to me.
I will keep you in my prayers, and I’m so sorry to hear about your Aunt.
Sandy

so sorry to hear about your husband. When my husband was battling cc, he had to be on a TPN bag every night. He didn’t eat for three months, because he vomited everything he took in. I even injected medications into the bag each night and it still didn’t help. This is such a vicious cancer and I am so sorry you are going through this. You are in my thoughts and prayers.
Sandy

Dear Charlene,
My heart goes out to you. My husbands Dr. told us the chemo would be devastating and not much help. The only thing I kept hearing from all of his Dr.s was how rare this cancer is, and difficult to diagnose. I’m from Delaware, but I consulted John Hopkins and was told the same thing. I had nine different Drs. on his case, and we had hope to the very end, but this is such a vicious cancer that nothing worked.
I will keep you and John is my thoughts, because I know the pain you are going through. If there is any advice I could give you – it would be to love him as much as you can, be with him as much as you can, and keep him as comfortable as you can because CC is a painful cancer.
You are in my thoughts and prayers.
Sandy

Hi Charlene,
I’m new here. My husband died on April 8, 2007, Easter Sunday, and I never left his side during his entire illness. You will have other chances to see your grandchild, don’t leave your husband alone. I told my daughter I couldn’t watch my grandson at all when my husband was ill. She will understand. In the end you will make the right choice for you and your husband.
You are in my thoughts and prayers.’
Sandy