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Thanks so much Lainy and Marion. We haven’t made the appointment yet but are talking about it. Thanks for the advice, it means alot! Jenny
Hi Lainy, yes, our oncologist said last month that we may want to consider contacting hospice. And believe me, I have read so many peoples stories on their experiences with hospice, I just am so afraid to make the call. I just feel like I am giving up! He is so uncomfortable now though. Maybe your right. Thanks. Jenny
Thanks for your concerns but, unfortunately our doctors say this is due to the cancer in both lungs. He has oxygen that he uses when it gets hard. I am just not sure the Cancer Treatment Center is going to be of any help, I just don’t eant ot put him through anything more. Hope that makes sense!
Hi Beth,
I haven’t been on lately here either but saw your post and wanted to say Hi. My husband Jeff was diagnosed Feb. 2009, and in August of this year the fluid started in his lungs. But his ended up being a hole in his lymphatic channel that was leaking chyle into the lining of his lungs, I guess this is pretty uncommon. We had them tapped two times and then had plurex catheters put in which we drain once a week. Just wanted to tell you we’ve been doing this for a couple months and the fluid has just about completely stopped! He was also on an iv antibiotic, which I can’t remember the name of right now…sorry. We are to have the drains removed in January. Our latest PET scan showed the cancer had moved into his lungs and abdomen now, so we are back doing chemo also.
I will be praying for you, Dave, and your family.
~JennyDear Lainy,
I am so very sorry. Please know you and your family are in my thoughts and prayers!God Bless,
~Jenny
Dear Lainy,
Thinking of you and wishing you strength. I will be keeping you both in my prayers!!~~Jenny
Hi, hope everyone had a nice Thanksgiving. Just wanted to let you know Lainey, that they did come up with a plan and got started on it right away! The liver abscess is gone so the doctors took the drain out on Monday…good news, but we also were able to discuss the PET scan a little better. The cancer has spread to both lungs and lymph nodes in his chest. The lung doctor said the cancer is in advanced stage and not a very good prognosis but believes we should get started on chemo with the hopes it will stop the growth. We also found out that the cancer has moved into his abdomen. This was on Monday and he had chemo on Tuesday! Jeff had gemzar and will have gemzar and oxsaliplatin next Tuesday and the oncologist said they will throw in a third type called 5 FU. This one will be a new one for us. Any bad side effects from this one? Hopefully not. But we know how hat goes! Jeff is really trying to give this everything he has! My daughters and I just pray this will keep it from progressing.
Dear Highsmith and Andie, He is now taking 60 mg. of morphine 2 time daily which has helped with the stomach discomfort too, also prilosec 2 times a day.The doctors nurse also suggested Beano, which actually worked some too! Hope your Dad has been feeling better. He hasn’t had to take the dilaudid much at all this week!Thanks again for listening!!
Hi, just wanted to update, we went for PET scan today. Not what we wanted to hear. Unofficially, we will get the report tomorrow, but it appears the cancer is now in the left lung and lymph nodes which is causing the hole in his lymphatic channel. The liver abscess is gone but now he has some bile drainage in the drain so it’s not coming off until it’s stopped. Is there any specific chemo that has worked on the lungs? Also, I don’t really understand the “markers” but they also said his markers in January were 23 and now are 287. What does this mean? Could really have just used some good news!
Dear Highsmith, No, Jeff doesn’t have any weight to spare. He was always small but now is 120. He has hardly no muscle or fat left. I will ask about the shake and the Ambien. Thank you.
Mary, Thanks too for the suggestion, Jeff takes Prilosec OTC every morning and still has this happen.
Andrea, I will definitely let you know what our doctor has to say about this. It sounds as if your Dad is in the same situation. Some nights are worse than others and Jeff said exactly the same thing with it being annoying.
Gavin, We didn’t say anything to our family doctor about the stomach, we do go to UPMC Monday for a PET scan and then to the Liver Cancer Center to see our liver doctor then. Just thought he’d be the one to talk to about this. Jeff’s birthday is Sunday and I was just hoping maybe someone had a good remedy! He took another half ambian tablet, sleeping for now.
Marion, We have done the stool softeners, he’s not having problems that way, at least not lately.
Again, thanks for all the help, so nice to have others to turn to! Jenny
