scott-sibley
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Thanks very much, that is very kind. I’ll just be glad to lose this picc line. I have to wear one of those gloves that farmers wear over their arms to have artifical sexy time with cows. The line has bled a lot too, so I spend lots of time either at outpatients or calling the von trying to get the dressing changed.
Picc line is in. I was there for less than an hour. Other than the initial iv line which hurt, and all the blood I could feel running down my arm, it was a breeze.
Hello David, it was great to make contact with you guys last night. I’m still blown away that 2 guys close in age that live minutes apart have the same rare disease. We even have the same name. My first name is David, but I go by my middle name. I added you guys on FB, so message me anytime you would like.
The best way I’ve found to mix the powder is with just enough water that you can swallow it all at once. The chalky residue is the problem for me. I have not itched in a bit now, but Ive made a very conscious effort to not scratch. I’ve found all along that if I dont scratch the itch, it goes away in a minute or so. If I do scratch however, eventually I’m itchy all over and I got crazy.
I have also read to use the same cup for the medication and don’t let others use it. The reason being is that some of the residue remains in the cup.I’m not going to lie, the more I research or see pictures of this picc line, the more anxious I’m getting. I’m sure they will inform me and ease my mind tomorrow when I get it installed, but right now, I’m scared shitless. I think the thought of it interfering with coaching my son’s foitball team is the biggest problem. It also looks kinda gross.
The wife and I actually laughed at the prognosis when we got it, but it upsets so many friends and family if they search for cc on the internet and see the prognosis. We have had many very upset people come to the door or on the phone the first few months after my diagnosis. The good thing is most of them brought me great things to eat.
I do not have that book nor have I ever heard of it. I hope its available here in Canada. I will definitely ask, and thanks for letting me know about it.Wow, 8 years!!!! That gives so much hope to someone like me who is 4 months into this fight, and Im only supposed to get a year. I’m sure many others feel the exact same way.
Yep, I’m a definite hillbilly. not a bit of yuppy city slicker in me. I’ve read so far that I need to clean the picc line constantly and I can’t swim with it. Im gonna ask for the one that is under the skin. I’d have to wait a bit to get it though. Im sure there is a decent waiting list.
Thanks for that link Gavin, it was exactly what I was looking for. I just did a search on google myself for shits and giggles and that link didn’t come up. I dont know if its because I use my phone instead of my pc, but my searches seem to be very limited.
I have never really looked for literature while in Halifax, but I will. The specialist in Halifax is coaching my onc here in Kentville. He seems to have quite a bit of experience with cc, and Im going to try and meet him next trip down.
Im thinking my itching is more winter/woodstove related. I’ve been showering a few extra times in cooler water, and using moisturizer. It seems to make the itch go away. Also, If I can fight the urge to scratch, the itch goes away. If I scratch, it spreads and drives me nuts
I do receive chemo right here in Kentville. I have to travel to Halifax for PET scans. If I ever need radiation or any other treatment I’ll need to travel to Halifax for those as well. Its only an hour away, so that’s ok.
I used to have a stop in Baddeck when I had a sales route many years ago. Its nice there. All of Cape Breton Island is nice.
Are you from Toronto? I lived there for a few months when I worked for Futureshop when I was out of school. I worked at the store on Weston Rd. I’m too much of a hillbilly for the big city, but I had some good times there.
I have not met any other canucks with cc. I don’t know if my onc has ever dealt with a cc case. She always finds the right specialist to get the right answer though.
