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Thank you so much for the words of comfort. It is so helpful to know how others survived the experience. We’re almost a month from my last post here and we’ve had a few good days. He is weak, hasn’t been sleeping as much this week, but has had bouts with ascites. We’re almost 90 days in now and it looks like we still have some time. Thanks so much again for your encouragement. Blessings, Susan
Dear Terry – I am so glad you have the view of Wayne waiting for you in Heaven. I also believe that. He is near in spirit and in your heart. Those things that trigger our grief are often unexpected. You did what you could do and that was to let it have its moment. I was grieving for my aunt and not appreciating the waves of grief until a wise person asked me what I would do if she just showed up at the front door. I said that I would invite her in. He encouraged me to view the waves of grief as visits from my loved one. It helped me so much. May you have brighter days ahead – those of loving memories, hope of seeing Wayne again. Blessings, Susan
Hi Cocoa – I have no experience with cisplatin, but my husband has had 3 series of gemzar with absolutely no ill effects. He did not have nausea, he did not lose his hair. Food has a bitter taste to him, but he had that before chemo so I don’t believe they are related. Congratulations on succeeding in the battle for such a long period. Let us know what else you learn about theraspheres. Hang in there, make the best informed decisions you can, and take comfort in knowing others care. Blessings, Susan
Dear Terry – Your grief is yours. Others may be uncomfortable because they just don’t know. You have been robbed of a part of yourself and you will need lots of time to adjust to your new, unwanted status. Be patient with yourself. Sometimes I write letters to those who have gone before me, just as therapy for myself and it does make me feel better. Don’t worry about what others think about your grief. It is your time. Blessings, Susan
Dear DD – I am so sorry for your pain. It is such a difficult process. Keep coming here and letting your feelings out. Journaling is a benefit too. Sometimes those difficult feelings are so draining and getting them outside your body is better. Let those who care about you and your family help shoulder the burden and cry, cry, cry when you need to. I will say prayers for you and your family today. Blessings, Susan
Lainy – Happy birthday to Teddy this week. Frances – Keep writing and communicating. It is a difficult process but there are many angels that help you get through just by listening and caring about your journey. My husband has good days and bad and as others have said, it is a roller coaster ride. We plan to keep my husband home until the end. We are not yet on hospice (due to a lack of insurance). My husband has had some chemo which did not give him adverse effects. He may pursue other treatment or continued chemo so we hav enot gotten on hospice yet. At some point, we will. My husband was also stage 4 and was told he had about 90 days. We are on the cusp of that now and he is holding his own. He sleeps a lot, has diminished appetite and started retaining water this week. We have managed the water retention naturally with elevating his legs, green tea, and lemon water. The doctor advised keeping an eye on his sodium intake. Our prayers are with you. Blessings, Susan
Dear Milky – Once again, I wish I had more to offer. My husband also has developed ascites and we are working on managing it. Another member posted that this is a roller coaster ride and we are having on for dear life. Good news, bad news, poor prognosis. Please know that we stand together and pray for one another to get this this difficult time. My prayers are with you.
Lainy – Thanks for the referral to Walgreens for Brioshe If he gets more problem with it, we will definitely try that. Right now we are trying to deal with ascites. He couldn’t walk last night due to the massive swelling in his legs. He is better today after resting his legs above his heart, green tea, and lemon water. Now he feels bruised.
I wish I had good information to offer, but I am not knowledgeable enough to do that. However, my husband has been on Gemzar and after 3 cycles, there has been no noticeable shrinkage of tumors, but he has not been sick at all. Did not lose any hair. He has been off the chemo for a few weeks and we are waiting for health insurance and then he may get treatment again. Since he stopped chemo, we have seen ascites. Of course, he is weak and was anyway. The ascites may have come with or without the chemo. He is on the cusp of the 90 days prognosis he was originally given. We were told that chemo might extend his life by 90-180 days.
My husband has some burping, hiccups, and bloating. The bloating is increasing and I am quite concerned. He had burping and hiccups before chemo. They have not increased after chemo but remain about the same. He also takes a stool softener every other day which helps a lot. I have given him Gas X but he says it doesn’t help much. Best wishes. Blessings, Susan
Dear Nick – My prayers go out to you and your family. My husband just turned 58 and he has CC. I am so sorry that your dad is so ill and the doctors are of little help. Keep loving him, advocating for him, and respecting his wishes as you understand them. Touch him a lot, like massaging his arms, legs and back. There are many on this site who really know of your struggle and how difficult it is. Sometimes it feels so hopeless and other times there are rays of sunshine and hope. Just know that what really matters are our relationships with each other and my hope is that you know God well for there is so much peace to be found there. Blessings, Susan
May I just add my shared sadness at the difficulties you are having dealing with the grief and sense of loss. It is the hardest thing I have ever been through and I’ve been through a lot including my dad have a long illness and passing away because of colon cancer and my brother being murdered for no reason other than robbery, but my husband having CC is tearing me apart. Every day there is something new that we don’t understand. I feel guilty planning for when he’s gone and guilty for wanting him to stay. We were only told he had 90 days when he was diagnosed and we are 60 days in. I can’t say if we are really close because his weakness and tiredness wax and wane. His itching comes and goes. His shakiness seems to increase. His mental attitude is like a roller coaster. I have a strong faith in God, but this is testing my personal limits. I have wonderful support from family and friends, but I can’t escape that I am losing the love of my life. I pray that you find some comfort in the process. Blessings to you and your family.
My husband has tremors that are increasing. The right side is worse than the left. It has affected his ability to eat, hold a spoon, and do many other things. He is frustrated by it. Does anyone else think that dealing with the changes day to day and the new effects of this disease is like trying to put a puzzle together without knowing what the picture should look like?
Dear Manish – I am so sorry for your news. Our diagnosis is also quite recent. My heart goes out to you and my prayers are with you and your family. I wish I had more to offer but am not that knowledgeable on this topic. I am only knowledgeable about the sadness and the grief of this diagnosis when given to a loved one. Know that there are thoughts with you and your family. slittle
Hello – My husband was just diagnosed with CC. We haven’t seen an oncologist yet but have an appointment scheduled for Thursday. My concern is that there are “innumerable” tumors in the liver and one is 12cm x 12cm. That doesn’t sound good to me. I am thinking he is at an advanced stage. Any information you can provide would be welcome. Thank you.
