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Dear Ichase – My heart goes out to you. Let’s pray that youth is on her side and when you get to the major hospital, they will have hopeful options for your daughter. I strongly support Lainy’s advice and comment that when the fight begins, the fright calms down. Please visit us often and share what is happening. We will be here for you. Blessings, Susan
Kelly – You are doing so well trying to take care of both mom and dad. Please remember to take care of you too. This is such a difficult time and it is so hard to help your parents understand. Our thoughts are with you and we will be here when you have questions, need to vent or whatever. I am saying a prayer for your strength and an open path to talk with your parents. My heart goes out to you. Blessings, Susan
Dear Ellen –
Welcome to our family. I am sorry to hear about your dad, but know that on this site, you have people who have been where you are and really care. We understand the roller coaster ride of this disease and are very willing to offer friendship, advice, support and a place to vent. Come as often as you like. Blessings, Susan
Hi Ginnie – Welcome to our family. I wish it were under other circumstances. I am so pleased that you are a transplant candidate. Please keep us posted on your progress. We are here for your family too if they would like to join us. Feel free to ask questions, vent, share, whatever, you need. Blessings, Susan
Dear Mark – This is a difficult time, but you are not alone. We are here. We know what you are going through. We pray for a good result from USC for your wife. On a personal note, my husband felt great on chemo (if that is an option for you). Not everyone feels great on the chemo, but my husband felt good – felt like he had more energy and less pain. Some people get sick, but Randy didn’t. I hope the doctors offer you some good news and treatment options. There are a couple of trials out there if they don’t recommend any of the standard treatments. We considered one at Loma Linda, but it was not exclusive to them. Our best thoughts are with you. Blessings, Susan
Dear Linda –
This diagnosis can be frightening, but now that you know what you are fighting, it is easier to fight back. I have acquaintances who have had some good success with nutrition and others who have undergone chemo. Both had an improved quality of life. I think the most difficult part for me was the constant roller coaster ride and just when you think you have a handle on things, they change. Be encouraged, you can come share your feelings or vent with us any time. We either have been there or are there and truly understand the path you are walking. May you and your family receive many blessings as you walk this path together. Blessings, Susan
I am so sorry that I have no information to offer, only encouragement as you traverse these difficult waters. How blessed your dad is to have you loving him and looking for answers. May you find the information you need to help your dad. While you are gathering answers, continue to share your love with one another, ask questions, remember the happy times, and hug each other. Blessings, Susan
Dear Pam – Your post brought tears to my eyes. How precious your sentiments are. We have a recorded book from my husband and I loved hearing his voice even if I cried the whole time. We long for those familiar things, like their voice, their smile and their hugs. I am so glad you and your mom shared this special relationship and I am sure that you will do as well with your own kids because you had a great role model and you value that. May each day become easier for you as you cherish your precious memories. I am so glad that you are part of this family, although I agree totally with you and pray for that cure so others don’t have to walk this path. Blessings, Susan
Dear CJ – This disease is so unpredictable. You said that the doctors say he is clear of cancer, but the symptoms you describe are consistent with those who have CC. Has he had a recent CT scan? I really think he needs another opinion. Please let us know. Blessings, Susan
Dear Simon – You are so right – some people that you think would be there to provide support are quite noticeably absent. Hopefully others step up to the plate and are there for you during the tough times – like us. We are your CC family and will provide whatever encouragement and support we can. We have walked this walk and KNOW what you are going through. We know what it’s like to be on a roller coaster and not enjoy it. Blessings to you. Susan
Welcome Jenny. I cannot comment on liver transplant, but I can welcome you to our family and let you know that we will do all we can to provide support, encouragement, and a place for you to vent. Our thoughts and prayers are with you and your husband. I hope the liver transplant donor is a perfect match (as perfect as they get) and that you have a wonderful experience. Blessings, Susan
Congratulations! What an encouragement. Yes, we carry our loved ones in our hearts and those memories bring us comfort and strength.
Dear Miles and family – CC is so difficult and unpredictable. Seek treatment. Try chemo. Stay positive and encouraged. Cherish each moment. Hold each other so close. Say all the loving things you want to say. Trust God. Don’t ever give up hope no matter what anyone says to you. Your attitude and hope will take you so far. Blessings, Susan
Jenny – It is so hard to make decisions at these times. Be encouraged, follow your heart and do what hubby wants to do. We had called Cancer Centers of America, but we didn’t have health insurance and they just told us to call back when we did. I have no idea if they have any competence with CC or not. I was so appreciative of hospice when we did call them (less than a month before my husband passed). Make the best decisions you can, but while you are deciding, hold each other close, whisper sweet nothings, and cherish the moment. Blessings, Susan
