sueayers
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I don’t know what a person could say that would help one bit with the pain you must be feeling. I have watched Lauren’s fight since the beginning as my husband was diagnosed around the same time. To your family and Gio may you one day find peace and accept that you did everything possible to give her the best chance.
Take care
Sue AyersPraying this is the end of the nightmare and the start of the good dreams. You all deserve it and Lauren needs to get ready to wear that beautiful dress and start the rest of her life.
Sorry I didn’t reply right away but the ball is rolling again and hopfully in two weeks someone’s head will roll when the Dr that dealt with us is back from holidays.
Finally after 8 cycles we got to see the oncologist again and it didn’t take much for her to see what we were saying. She talked to a number of heads of departments and they have decided to rescan Darrell after the 22 and before he starts his third round of gem/cis
We will not have to pay. Right away she didn’t see how both stents could be gone and the liver resection impossible. She did say she is going to their department to insure it is Darrell’s scan
Thanks very much for your words of wisdom I am still writing everything done and said and may send it in so maybe someone will find out why this GP dr is dealing with all this instead of the oncologist and maybe making the oncologist check the GP’s work.
SueThank you we are actually sitting waiting to see the Dr and find out why he can’t be rescanned. He never had a surgery and we are trying to get transferred to BC for the winter and really don’t want the oncologists out there to think he has had a resection when he hasn’t I will post as soon as we see her
My husband Darrell did 8 cycles with 2 postponements from low counts. Two month break 5 tumors that had disappeared where back. Had one cycle then got day 1 of second cycle but day 8 blood counts to low so hoping next week to get back at it.
I think you are both doing great and should be proud of yourselves. The wanting the end is just because you care so much and don’t want them to suffer. I find it is almost like your life is on hold. You need to take a little time for yourselves to. Stay strong.
How……….absolutely beautiful. Words of lovers and loved
How lucky some of us are to get that second chanceThank you all I am sorry I sounded so weak yesterday it is just so hard to take in. We have been together over 30 years and I can count on one hand the number of times he has been sick with anything. He doesn’t even get a cold or the flu. He had a blocked artery when he was 40 that they put in 2 stents and he went for a 6 week check and never went back. He is just never sick which makes it so hard. I have had a long list of medical problems and he has always taken care of me. But I know I have to step up to the plate and stop the poor me stuff and concentrate on keeping him healthy and with me. Sometimes a person needs a slight kick in the pants so thank you all. Keep him in your prayers and I will stop whining and concentrate on what needs to be done
Tlsinftl hi
I am trying for the first time to see if something I know can help someone else.
My husband Darrell was diagnosed in Feb 2011 with 5 small tumors left lobe and one large one right side. He completed 8 cycles of gem/cis twenty one day cycle. Not sure if others had this because it sure was a concern for the nurses but Darrell received both drugs day 1 and day 8. The nurses were constantly trying to cancel his day 8 chemo saying his numbers were to low but for some reason ( we thought maybe because he was going to get a week off) the numbers could be lower on day 8. Not sure why and had to fight more then once to get the nurses to check again and they always came back shrugging their shoulders but giving him his chemo. Don’t get me wrong every one of them was awesome they just had trouble understanding this. Anyways besides the first treatment after which Darrell was very Ill and ended up with a blood infection he handled it ok. We found as time went on the vomiting subsided and he began to eat and gain back about 25 of the 50 lbs he had lost. After a break after the 8 cycles He has gained all the weight back and has just had a CT scan to see where things are. During the chemo the 5 very small tumors disappeared and the large one had some shrinkage. Now we play the waiting game till the 18 th
There that was ok
Take care everyone and thank god for you and especially you Pamela you give me strength
Love to all
SueIt’s nice to meet another caregiver here You have a very special young lady and if anyone deserves a break it is her. When I told my husband about Lauren and her mom Pam he was at first very upset then very happy to see her results. I read the good ones to him all the time and I know it and everyone’s prayers help. In april the Dr said that they would just keep my husband as comfortable as they could for the time he had and it was like he was deaf. He just kept saying to her when do we start chemo and it is jan and he is still here preparing for the next hill to climb. Give Lauren and her mom a hug for me and maybe we can help all of us caregivers support and beat this monster
SuePamela
I am so happy for all of you. I remember
The first time they said Darrell’s tumors had shrunk. I found out you can lose it with tears of happiness. Thank you for your words and know you are also in my prayers
SueI will pray and beg and plead for both of them Darrell has his scan the 10 th after his 8 cycle completed.
Love and strength to you Pam
SueNot that I want to but I am trying after many months of lurking to introduce myself and my amazing fighter of a husband Darrell who became sick in Febuary which started us on this road of fighting this monster cholangiocarcinoma. I can’t figure out how to get to the introduction posts for new members?
