tanoland
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She does have drops to put under her tongue for the nausea. And they did tell her before she left the hospital that it was the cancer causing her nausea, not her pain medication. But after visiting with her last night, she is pushing the pain pump button every 3 minutes on the dot. So I know her pain is increasing…and so fast. She seems to be deteriorating very quickly.
Her kids are getting some counseling. And we have a large family and their dad to help support them. We are just trying to make it a happy Christmas.
The scariest part for me is that I have never seen anyone go through this before. And she is my very best friend. Has been for 40 years. I don’t want to see her suffer and I just wonder how long this will last. How bad her pain will get. She’s not eating a whole lot and has a lot of bowel problems. The whole thing sucks.
She hate the pain pump and almost refuses to use it until she can barely stand it. She thinks it makes her nauseous even though the doctors told her it’s the tumors on her liver and the stents that are making her nauseous. So I guess she will push that button when she needs to. But she is stubborn.
I just worry about her kids watching her go through this. She has a 13 and a 15 year old. She vomits a lot and I know that is hard for them. Her spirits are up though and I pray we have a good Christmas.
You all are very inspirational to read.
My sister was in the hospital for a week and a half. She became the typical bile duct patient and had to get 2 stents in. She was so sick. They have now sent her home with hospice. I wonder how long she will last. I have never been around somebody dying before. Her pain gets so much worse every single day. They said she has too many tumors on her liver to even count.
I am so sad.
She does have some breakthrough medication. I think she is medicated all the time.
And even though I don’t post often, I read the support you guys give one another and I can feel it. I definitely draw from that. I read every day all day on this website just looking at what is working for other people. Just a wonderful group of people.
She is on so much pain medication. Not morphine yet, but just below that. We see the doctor tomorrow and I hope the bloodwork shows something and they can figure it out. I will definitely update everyone tomorrow. I’m scared.
They took my sister in today and realized that there are no mets to her brain. YEA!!!!!!!!!!!! They decided it was high blood pressure, stress, and we all know the rest. She is resting comfortably. They hooked her up to an I.V. full of good drugs. They did tell us this would be her last Christmas and I am at peace with that. I love her so much and she is so special. I wish you all knew her. And I am sure you all feel the same about your loved ones as well.
Everyone have a wonderful day:)
It just seems now there is so much suffering. So much pain medication. And I have no clue what to expect. She has been my best friend for 40 years and I can’t stop her suffering. I think things will get more under control once she has her scans done. I believe tomorrow. Thanks for caring enough to respond.
My sister also has Stage 4 with mets to bones and lymph nodes. Do you mind me asking how old your sister is? Mine is 42.
Hi Michelle. My sister was diagnosed in March of this year. She is 42 also and has 2 young children. She has tumors on her liver, in her lymph nodes, and in her bones. It’s the worst thing in the world and I am so sorry for you and your family. She was given a year and a half to live. She is doing pretty good right now and handling the chemo great. She gets Gemzar and Xeloda. Her biggest complaint is fatigue and the doctor just prescriped her ritalin to help. She says it does help. Is your situation similar to this?
My sister has been on gemzar and xeloda for 6 months now and it’s doing the same thing. Shrinking tumors and stopping it from spreading. I’m so scared it’s going to quit working, but she has very few side affects. Extreme exhaustion on that 3rd day after but other than that, she’s been doing good.
When he had his original diagnosis, how bad was it? Had his cancer spread at all? I’m just curious on how hopeful I should be.
I am in Kansas City. And my sister has been diagnosed with cholangiocarcinoma and is currently being treated at the cancer center at KU. She is receiving the gemzar which is what i believe is the same thing as your mother is going to be treated with. She also gets a second chemo treatment which is xeloda and it is in pill form. We have been informed that this is just to hold the cancer off as long as we can. There is no cure. My sister is 41. Her cancer is in her liver and bones and lymph nodes. Surgery is not an option for her either.
We traveled to the May Clinic in Minnesota and they 100% agreed with the treatment KU offered. We see Dr. Steven Williamson. And they are wonderful for what they have to offer. I mean, they can’t cure her but they are very compassionate and I believe are doing everything they can.
Good luck and I definitely give KU a good recommendation. I’m not sure there is much better here. Please keep us updated. I don’t know why, but it was kind of nice to see someone from my area.
Yes, it is good news. But being the pessimist I am, I know it’s only temporary. This has been absolutely the worst experience of my life. I sit everyday at my job and just cry. Because I know the outcome is inevitable. I just pray for as many days as I can with my sister. Even though they will never be the same kind of days we had “before” cancer.
This site is so helpful and has wonderful people on it. I don’t know what I would do without it at this point.
