tanoland
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No reason to sugar coat it…not for the patient or the caregiver. When my sister got diagnosed…the first thing I did was get on the computer for research. This is one of the first websites I went to and … yes…it was a slap in the face to hear how bad this cancer really is. But it also got my attention that you have to fight with everything you have from the first second you are diagnosed. I think calling it what it is makes you fight even harder. It has taken the people we love the most away from us so there are no other words for it than horrific, horrendous, awful, beast…whatever. Actually I have a few words for it..but they would not be allowed on here.
I’m sorry you are having a difficult time reading this. My sister could not have read anything on this website. It would have hurt her too much. So I did it for her. Sometimes that’s best.
Hi Julia…I’m doing o.k. Bad time of year. This is the time when my sister really went downhill last year. I’m trying to stay positive and happy like she would have wanted me to. Thanks for checking in on me. I’m checking this website every day…
I have submitted myself to volunteer for anything that I can. I would love to do something in memory of my sister.
Wow Jane…I felt like I was reading something I would have written when I read yours. My sister was 42 with 2 children. And I felt exactly what you just described.
I went through the same thing with my sister 10 months ago. You will find strength and wisdom you never knew you had. I will pray for your family.
My sister’s had spread to her lungs at the end…once the chemo had quit working. I don’t know why once it spreads they decide to quit treating. But that’s what they did with her. And it’s scary how fast this cancer spreads.
Trust me…you will never know what to do…you just do it. You sound just like me when this all started for my sister. The guilt is overwhelming…but I think your family will understand if you need to be with your mom. I have a husband and three children and when my sister was at the end…I spent 14 days and nights with her until it was over and didn’t see them at all. You will find the answers as it goes along. Good luck.
I feel the same way…I feel proud to wear my wristband…and sad. This wristband never, ever leaves my wrist. I feel closer to my sister …which I know is odd…but that’s o.k.
Your story sounds so familiar to my sister’s. I swear she suffered no matter how much medication we had.
Hey, I am from Kansas too. My sister had her doctor at K.U. Dr. Stephen Williamson. She also had her treatment at the Cancer Center there. You will always feel this way with this disease. I’m not sure they know anymore than they are telling you. I always felt that way. I wanted so much more information but it was never there.
I’m sorry you and your sisters are dealing with this. I’m sorry for everyone who has to deal with this awful disease:(
Take care.
