toniak

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Viewing 12 posts - 16 through 27 (of 27 total)
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  • in reply to: new to cholangio… #24860
    toniak
    Member

    A recipe book would be a great fundraiser for this site too!

    in reply to: lots of questions for newbie #24873
    toniak
    Member

    Ana-

    When I came to this place the first time I thought ” My Gosh, I’ll need a vocab cheat sheet. How will I ever know what anyone is talking about?!”

    I started googeling everything. That helped.

    I can’t answer all of your questions but I can help you with your second question.

    I’m my grandmother’s caregiver ( her name is Ina. She’s 83 and my best friend ;-) ) she has had the lower back pain and the sweats. She did not opt to have any chemo treatment. This would tell me that those symptoms in her experieance are Cancer related not chemo. Because she hasn’t had any.

    We have her on Oxycoton for a long acting and then oxycodin for as needed. When the sweats start we use a cold pack or a cold wash cloth.

    As far as your dr goes. I do understand his basic idea. The patient needs to be involved. That’s great, but there may be decisions that you will be needing to make and you’ll need information. Some stuff, like you’ve run into, your husband may not want to talk about.

    Everyone here is amazing.

    Much love and blessings,
    Tonia

    in reply to: Grandma’s itching… #24750
    toniak
    Member

    Jeff-

    Yo probably hit the nail n the head. We got the humidifier going now and have been using Aloe. Seems to help. I think it may be ascites….she’s just moved into hospice today.

    Thank you for all of your help!

    in reply to: Question for everyone #24897
    toniak
    Member

    My Grandma was a huge diet soda drinker. She was a huge diet anything eater or drinker.

    in reply to: I’m about fought out… #24949
    toniak
    Member

    Carol-

    I am so sorry you are having to deal with that on top of everything else.

    I know I was going NUTS trying to deal with the insurance company. It is just such a pain.

    Stay strong. Know you aren’t alone.

    Love
    Tonia

    in reply to: My Dad is in pain…. #24236
    toniak
    Member

    Tess-

    Just read your post. It looks like you were able to get a lot of great information for everyone. The people here are amazing.

    My Grandmother was diagnosed Oct.3 2008 and had surgery Oct. 13th. She is 83 and has diabetes and a heart condition. Her choice was to not have chemo and to try to stay as comfortable as possible.

    I understand what you mean when you say how hard it is to watch your loved one in pain. I want to “fix” it but I can’t. I want to understand and say the right thing but I know I can’t do that either.

    The only thing I’ve been able to do, to make myself feel useful, is to be her advocate. and to be informed. The thing is to be sure to get your info from a good source. The internet is great but anyone can post anything.

    On the subject of stool softeners…whenever Grandma’s pain meds have gone up we’ve made sure to check those too.

    Let me know if there’s anything I can do!
    God bless you and your family.
    T

    in reply to: Grandma’s itching… #24748
    toniak
    Member

    Thank you so much! Both were so helpful!

    in reply to: At Home Hospice care For Jeff #24469
    toniak
    Member

    Jeff
    You were one of the first people to respond when I came to this site. Thank you so much for your caring.

    I hope they get your pain under control and that you can be comfortable.

    You’re in my prayers
    Tonia

    in reply to: Peter is recovering from surgery and is back home #24711
    toniak
    Member

    That’s great that he was able to be “out and about”!

    Those surgeries take so much out of a person.

    in reply to: I am new to this site #23699
    toniak
    Member

    Hi Middlesister

    Just went through that with my grandmother a few weeks ago. Its rough.

    This is the club nobody wants to be part of BUT this is also that best place I’ve found to get support and info that I’ve found.

    Keep us updated as to what’s going on with you and your family.

    All the best to your family and your sister.

    T

    in reply to: Drained and feeling guilty… #23712
    toniak
    Member

    Thanks to everyone for being so wonderful. It means a lot.

    Starting the research on her hospice choice today. Looks nice…as far as that kind of thing goes.

    The treatment options that were offered are made more complicated by diabetes that has been getting more out of control and a heart condition. The Cancer has spread to her pancreas which makes the diabetes even more out of whack.

    They removed her bile duct, her gallbladder, part of her small intestine and lymph nodes. They just couldn’t get all of the Cancer out.

    Thanks again for everything.
    T

    in reply to: My Dad’s story – 83 years young and this happens #23352
    toniak
    Member

    Barb-

    My grandmother is 83 and just diagnosed. She’s obviously not my “mother” but she really has been a 2nd mom and a best friend to me.

    She has always been a young 83. Really active and nobody ever believes her age when she tells them.

    The chemo wasn’t an option for her either because of how hard it would be on her. I know what you mean about watching them go downhill. It is hard. Horrible really.

    We’re still new to this too but anything I can do for you let me know.

    T

Viewing 12 posts - 16 through 27 (of 27 total)