tryingtohelp

Thank you for the link! I appreciate it. The one thing I always find confusing is a response rate. Or partial response. What do those numbers mean exactly? Thanks again!

Thank you, Lainy. We live in a relatively small city, but there are few big names hospitals 3-6 hours away (Duke, UVA, John Hopkins). Back in November 2011 we did go to Duke for the second opinion and both doctors agreed on the same treatment. I was hoping for experimental treatment, but at that time my husband had jaundice and didn’t qualify for anything. It has been quite a roller coaster, like for a lot of people who posted here. In 11 months husband was 6 times in the hospital. It all started with appendix removal, then he had kidney stones, kidney blockage, blood infection, virus infection and last time – blood transfusion. So it has definitely been a battle. I’m wondering if anybody had pain pump for home use? Anybody experienced cancer marker jumping up and down and is it even possible for cancer marker to go back down with the same chemo? What other chemo cocktails are available aside from the ones I mentioned before? I had already asked doctor about chemoembolization and radioembolization, but got an answer that it’d be too risky in his situation. Doctor had not mention hospice and we didn’t ask either. What is “normal” – is doctor supposed to bring it up or we should? About ER – I’m hoping that patch will start working in a few hours and if it doesn’t work by tomorrow morning – I will insist on going to ER. Anybody out there with similar experience? Thanks again, Alla