vincently22
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Thanks Marion and Lulu for the information! Lulu, just curious, do you feel that your husband is doing better after trying the alternative? Also, were you guys able to find the right oncologists yet? It’s really frustrating when they dont know about the disease, instead of referring to a much better oncologist, they said “there is no hope.” We should try to stay strong!!
Thanks everyone for the information. Mom would prolly try chemo if being offered. I just called the USC for Dr. Lenz but he wont be in the office until tomorrow so I’ll try to call them back again. I just found out that the length of the cancer was about 5 cm about 2 weeks ago. I dont know how long it is now until we get an updated report of the 2nd ERCP. Lainy gave me some information about Cyberknife. Hopefully I’ll get a chance to speak directly to Dr. Lenz 2morrow so maybe we can take mom to USC as soon as possible. Marions, do you know if there is a direct phone # that I can get a hold of Dr. Lenz? I tried calling this # earlier (323) 865 3000. Does anybody know any other oncologists (around LA area) that specialize in this kind of cancer so I can contact them as soon as possible so mom’s cancer could be treated aggressively? Mom’s condition seem to be stable now so we don’t really want the doctors to just “wait & observe” any more. Now I’m very frustrated that mom’s cancer was about 5 cm last time, I wonder if they even know/heard about Cyberknife instead of “inoperable.”
In term of insurance, mom has medicare and medicaid so it shouldn’t be a problem.I live in Los Angeles, California. The hospital that my mom stays at is Garfield hospital. I haven’t been to another hospital/dont know how it is like, but I kinda disatisfied with this one. I mean the other day when she had her seizure, she was in the ICU. I think it’s ridiculous for them to not have at least one back up doctor there (instead of being oncall). But like i said, i dont know how other hospitals are like. But pts are in intensive care b/c their condition is dangerous/not stabled at all. They dont seem to be very helpful but too bad they have all my mom’s record. But then I’m happy that mom could be released from hospital soon. At this point the oncologist told me that the thing we could/should do right now is to pay close attention to mom and hopefully she’ll be healthy enough. He said that about a week later, he’ll have the case manager to follow up and call the oncology institution (City of Hope) and have them review mom’s file to see if she can be a candicate. I’m praying that everything will be fine and that mom will qualify for Therasphere/whatever out there that can prolong her life.
my mom was diagnosed with cholangiocarcinoma recently and I’m really worried for her. Can anyone please give me any information about it (wat treatment options worked and how long can someone live for without treatment/treatment)? Her CC is inoperable as we were told
My family and I really appreciate your help! I also read about SIRT-Y90 and heard it’s very effective, but I would like to know if anybody try it and if it really helped. We’re very desperate for any treatment.
