vzimarino
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To all:
I am happy to share this positive information. Thanks for your kind words. Lainy, how is Teddy today?I have only been on this site for a few weeks but spend a little time each day reading posts and members experiences. JeffG got my attention quickly because of his fight with cc mets to bones and pain associated with it. This is what my brother is dealing with (with a attitude much like Jeff’s). It took awhile before I realized that Jeff had passed. I have read all of your comments about this wonderful man and could not agree more. I feel there are some members who are taking over where Jeff left off and I say thank you to each and every one of you for the compassion, understanding and knowledge each of you bring to this great website. I’m so very happy I found this site and honored to be part of the family.
God Bless you all, Victoria
My brother just completed his first round of chemo xeloda/gemzar. Around day 7 of the IV (gemzar) his ankles swelled. Went to cancer center to be sure that it wasn’t blood clots, it wasn’t. He is weaning off of steroid that he took while getting radiation. That helped his pain in neck (lots of met tumors there) but as he weans off the steroid his pain is returning. Oncologist increased his pain med (methadone) by 1/2 pill. I don’t know the dosage but my brother doesn’t like taking too much of it cuz of getting tired and feeling like he’s in LA LA Land. No one has suggested RA, seems they think the pain is due to tumors on spine.
Michael,
Thank you for your response. I spoke to my mom on the phone yesterday and she told me my brother had some nausea the morning after his first treatment, but drug for it helped. I will see in a few days if fatigue sets in.Victoria
Mary:
Wow! Did your post ever inspire me!! For the first time since my brother was diagnosed as not operable I have hope. Thank you so much for sharing this great news.Victoria
Gavin:
Thank you for the welcome. I will be visiting the site frequently as questions or concerns pop up.Victoria
Jemima: I did not mean to exclude you from this response. I was able to visit as soon as I got the news. We had a great time together ( we always have been close and enjoy each others company, we are 2 1/2 years apart in age). Again, my brother’s attitude is awesome and he is tolerating radiation therapy and chemo very well which ofcourse is a blessing. Thank you for your concern, Victoria.
Marion:
Oh, thank you so much for all of your tips. Some are I kind of knew, but many I had not thought of. Fortunately, my brother is pretty techy and has been smart enough to record all major Dr. visit sessions which he sends to me. I will also tell you that I am going to retire from work April 2011 and then I can come and go as I please even at this long distance ( I’m just hoping my brother lives that long,I expect you understand how very vague the oncologist are about survival time when a person is first diagnosed with stage IV metestisized CC to bones. I’m still trying to digest it all. Brother Ned is very positive and spiritual about it all. I just don’t have that kind of faith. I sound like such a “Debbie Downer” but am still trying to rap my head around all of this.
Thanks for your interest and concern: Victoria
