willow

Thank you, Gavin!

This is an interesting project. Thank you for the work you’ve put in, Jason. I haven’t used this kind of wiki and am not clear how to post on it. Seems like its easiest to copy and paste posts already written on the CC blog than rewrite our story. I’m also a little confused as to the advantages/differences between searching the categories of info on the CCF discussion board and the wiki? Again, kudos for for passion and efforts!

Glad you brought this subject up (financing of clinical trials). It’s really helpful.
Willow

Hat was really nice, though sad, Gavin. Thank you as always for sharing. Now get out there and take that dip in the sea !! I dare you!

Wow Porter!! That IS cause to celebrate the new year! Being considered for resection! I’m sending hope and prayers that the tumor board finds you have qualified for surgery. Keep us posted and best at your second opinion surgery consult in Seattle.
Cheers!
Willow

Percy,
Are you saying there are only two current immunotherapy studies involving CC patients right now? (The TIL and NIH).
A very basic kind if immunotherapy put my moms bladder cancer into remission (it’s been a couple years now!). The kinds of genetically modified immune system cells mentioned in one of these studies you noted are much more complex and novel. CC is also much more complex than bladder cancer. Anyhow, I’m really hopeful for development if this kind of therapy to be a more specific and safe form of treatment for cancers like CC. Thank you for your continued dedication to research, this discussion board and support if its members. You’re a lovely man.

Thank you for bringing up this discussion. It seems obvious that good nutrition may not be a cure for cancer but it certainly can help give the body and immune system the ingredients it needs while minimizing stress on the liver. One problem is defining and agreeing in what is good nutrition and access to affordable organic foods. I almost keeled over yesterday comparing price of organic bell peppers to the regular ones grown in Mexico! Clearly, changes in food production and economy are needed.
As an aside, My sisters Dr said not to eat raw veggies/fruits when WBCs are too low though because immune system is already compromised and E. coli or other pathogens might cause a GI infection. (Maybe quick Par boiling is ok?).
Also, with regards to pH, I’m a little confused and skeptical..but never claim to be an expert in nutrition! Like LuAnn, I want to see scientific large scale studies. I’m intrigued and curious.. How do you test blood pH at home? As a dental hygienist, I just want to mention that one can’t test saliva and expect that’s equal to your blood pH. Some oral Bacteria (like strep mutans) in the mouth pump out strong acids as a product of metabolism (that’s how tooth decay happens). This happens in first half hour after eating so pH drops dramatically in the mouth but then neutralizes a bit. Everybody is different because we all have a unique biome/ecology of micro organisms living in our mouth, stomach and and lower digestive tract. Also, Stomach acids are normal and necessary part of digestion. Isn’t it true that dietary acids help absorption of some key nutrients? Ok, I’m just throwing out random thoughts now. Still, very good discussion, Everybody! My sister is trying to incorporate some of these nutritional practices Carl mentioned but is not adhering strictly (like you said, its hard to go cold turkey) and is not at all replacing traditional treatments.

Judy,
Thinking of you and hoping the targeted chemo/HAI pump is gentler on Ron. It is frustrating to have side effects preventing the chemo. My sister had problems w gem Cis, tolerated Xeloda and now is having trouble keeping counts high enough to have Taxol. Glad to hear there’s another option for getting the meds where they need to go. Best wishes to Ron in the new year!
Willow