willow

Thank you for the update. I’m really happy to hear about this cream and truly hopes it continues to work for your husband.
Willow

I too am thinking if you Michelle, at this stressful and sad time. Pray that the hospice nurses can get to the bottom of the nausea. That compounded topical cream sounds worth a try. Like Marion said, it could be a physical of age that might require a more agressive approach for symptom relief. Never hesitate to call hospice out in addition to their regulay scheded check-ins.
God Bless you, your husband and family.
Willow

Thanks for bringing up this therapy. I had not heard of it. Sounds promising. Please keep us up to date on your treatment and all the best to you!
Willow

Hi again, Kris
Just wanted to let you know that I learned at work yesterday of a treatment for fibroids that sounds like embolization to “plug” the blood vessels feeding the fibroids. I’m not sure what conditions warrant such treatment but this particular had so many fibroids that she had to have a c-section to deliver her daughter safely. Later, they did the embolization and the fibroids shrunk up and “died”. I didn’t know that embization of blood vessels is used for so many conditions in medicine. My older sister also had embolization of a blood vessel in her brain that had bled (hemmorhagic dissecting aneurism) last year. Miracle she survived the aneurism and is thriving today. Interventional radiologists do this kind of surgery. Anyhow, I’m digressing!! I imagine that if a woman is past childbearing age they just do a hysterectomy if and when fibroids become a problem (but they aren’t always a problem).

Wow, Lisa… I didn’t know whether to laugh or cry! Thanks for sharing that!

Hi Porter,
You have a great attitude and clearly a huge motivation with little ones to raise! That’s what bothers me deeply about my sister having cc.. Her innocent young son is affected and she doesn’t always have the energy to do the things moms love to do with and for their kids. Like you, she is grateful for feeling mostly good. I’m hoping and praying for you for lots more shrinkage shown in the upcoming scan. 3cm is a lot already, how much more do you need to be considered for surgery?

Dear Dorien,
I thought sharing my sisters y-90 experience was “real life” and helpful. My friend Martha’s experience was also not bad. Though not a cure, Y-90 is not a last ditch treatment but is one of many treatments for liver tumors. My sister went through y-90 with no complications beyond some pain that got bad around the 2-3 week point. The treatment did help those tumors targeted… Just doesn’t stop microscopic seed cells that were metastasizing. My sister is still here, almost a year from the Y-90 (15 months from diagnosis) and with no serious complications from the CC amazingly. She is still on palliative chemo to buy time (3rd kind) and her disease is still slowly progressing which is super scary. The unknowns can drive you crazy so we try to focus on one day at a time. There’s a book written by the wife of a CC survivor called “Every 15 minutes” and advises to focus and deal with life in small increments to keep from being overwhelmed and paralyzed with fear and grief. Because you have a family and husband to care for, I hope you’re seeking help for yourself. My other advice is to simplify home life as much as possible… This is what I’m doing… A LOT less than I used to. My kids had to cut back on activities too because we just can’t do it all and it makes for a calmer household.
I’m so sorry your husband is having a bad experience. You’re not alone.
Willow