willow

I think it depends on type of chemo. Maybe certain ones have limited max dose but other drugs can be used indefinitely (till it no longer works or side effects are too strong). Hope this helps… Ask your onc nurse too.

Susanne,
That’s good news about the Prof. Also great that he will do the radiotherapy soon. I’ll keep my fingers crossed for good weather and ferries running and ultimately, comfort for your beloved.
Willow

Lainey and Percy have very good advice. Most if your questions are common and will be addressed as the treatment plan unfolds. Just to answer one Q: if there will be a resection, they stop chemo for a bit to make sure the patient is at best fitness (and blood cells and pkatelets are all at a good level since chemo suppresses them).
We’ve all been where you are… Head literally spinning. Best to you and your dear husband as you seek more opinions. Some simply require only the records rather than a visit so that can help if the specialist is far away.
Willow

Marco,
Glad to see you posted here and I’m hoping you can find someone who has experience with the stereotactic radiation. Lisa Craine I believe has had it several times and is very helpful in general with CC questions.
Don’t second guess your decision to guide your Dad toward the rad as oppose to the chemo. Chemo was just too hard on him that first go round. There are many different kinds of chemo and he may tolerate some better than others. My sister tolerated Xeloda well. Ultimately, it’s your fathers desires that should drive how hard and long he wants to fight. You’re a caring son, trying to do what is best. Please be proud of the help you’ve given him and stand by the path of treatment you’ve helped your dad with so far. Mostly he needs love and presence. Keep us posted when he gets the MRI.
Sincerely, Willow

Thank You Barbara!! Sounds like it was a fabulous event!
That’s a significant contribution to the CC foundation and the CC family.

Kris,
Understandable that you’re nervous when (if) faced with another option for radiation. Sounds like you did well before… Hopefully the doc can assess the risks vs benefits with you. Keeping you in my thoughts for freedom from anxiety when taking the next step. It doesn’t disrupt or disqualify you from the trial you’re on, right?
Willow

I wish I could give advice but instead I simply want you to know you are not alone in this devastating turn of events. It must be really hard to adjust to the idea of not aggressively treating your husband when he has done so well up until recently. It does seem strange to have to switch your mindset. The Dr sounds like he is looking at everything carefully. I pray he can find a way to relieve your husbands immediate problem of the bilirubin buildup and in the meantime that you both find relief from anxiety. Peace, Willow

Johnny,
Thank you for sharing this amazing milestone and your story (I just read your first post).
Many more healthy blessings!
Willow